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12-24-2012, 05:37 AM   #1
DustyKat
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Join Date: May 2010
Location: New South Wales, Australia
Treatment Clubs.

Remicade Club

Humira Club

Cimzia/Certolizumab Club

Stelara/Ustekinumab Club

Imuran/Azathioprine/6-MP Club

Methotrexate Club

5ASA/Mesalamine Club

Prednisone/Entocort Club

Flagyl/Metronidazole/Ciproflaxacin Club

EN/EEN (Enteral Nutrition/Exclusive Enteral Nutrition) Club

LDN (Low Dose Naltrexone) Club

Surgery Club

Supplements Club
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Mum of 2 kids with Crohn's.

Last edited by DustyKat; 06-09-2014 at 12:12 AM.
12-27-2012, 05:36 PM   #2
DustyKat
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Location: New South Wales, Australia
The drugs with an asterisks are the the clubs I have yet to compile.

I will be tweaking the form questions a little due to input by David, thanks David.

Hopefully I will have all questions and clubs finalised in the next days.

@izzi'smom: Angie, would you like me to start a Tacrolimus Club?

Do you all think a surgery club would be worthwhile?

Has anyone's child had a faecal transplant? If so would you like a club for that and can you provide me with some details?

Thanks,
Dusty.
08-18-2013, 05:35 AM   #3
DustyKat
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Location: New South Wales, Australia
***Update

All listed clubs now up and running. Sorry for the delay!

If you have any further suggestions for new clubs or suggested changes to existing clubs please respond in this thread.

Thanks,
Dusty
08-18-2013, 09:30 PM   #4
DustyKat
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Location: New South Wales, Australia
LDN added as a club as per request and the due to the fact that there are now a number of children on the medication.

Dusty.
08-19-2013, 08:05 PM   #5
Farmwife
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Join Date: Apr 2012
Location: Michigan

My Support Groups:
Thanks Dusty.

BTW, Grace loves your avatar.
She wants to make fruit hat for our puppy.
__________________
I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
08-20-2013, 07:27 AM   #6
DustyKat
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Well you make that hat we want pics!
08-24-2013, 02:40 AM   #7
DustyKat
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Join Date: May 2010
Location: New South Wales, Australia
Surgery Club created.

If anyone finds anything wrong with the questions or has suggestions for questions that should be added please respond here or PM me.

Thanks.
Dusty
08-24-2013, 06:59 AM   #8
DustyKat
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Location: New South Wales, Australia
EN/EEN Club is now up and running.

As this is something I have very little first hand experience of can those that do please let me know if the questions are suitable and/or if anything needs to be added/deleted. Please respond here or PM me.

Thanks.
Dusty
03-22-2014, 06:05 PM   #9
DustyKat
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Location: New South Wales, Australia
If anyone can add further experiences to these clubs it would be very much appreciated.

Thanks,
Dusty
06-08-2014, 03:24 AM   #10
DustyKat
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Location: New South Wales, Australia
Stelara Club added.
06-09-2014, 12:12 AM   #11
DustyKat
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Join Date: May 2010
Location: New South Wales, Australia
Supplements Club added.
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