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12-29-2012, 10:21 AM   #1
jami
 
Join Date: Aug 2012
Location: Illinois
Surgery!!!

I go in Monday for a resection...more than likely they are taking the whole ileum and the surgeon told me, if there was any more infected that they couldnt see on the tests they would take that also. This has all came up in the past 2 weeks due to me having a bad reaction to remicade and cimzia both. Since, I work in the hospital on the surgical floor, the surgeon was all for getting me in before the end of the year for insurance reasons (thank the Lord).

I am just having an occasional freak out moment here and there when I think about it too much, not the surgery itself...I have the best surgeon here for the job. I am just afraid of what I am going to wake up to. He tells me I should not have to have any tubes or ili. bag...but of course, cant promise it and I know it since I work with it day in and day out.

I will update later how the surgery went, just throwing this out there and asking for prayers that the surgery goes just the way I want, but I know it will go the way the Lord wants!!
__________________
Currently taking:
mercatopurine (6MP)
zoloft
xanax
wellbutrin
zofran

previously:

azathioprine
remicade
humira
pentasa
pred.(not wanting to use that one ever again..LOL)
entocort
cimzia
12-29-2012, 02:21 PM   #2
SarahBear
Moderator
 
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Join Date: May 2012
Location: Charleston, West Virginia

My Support Groups:
I hope it goes well for you, Jami! Just try to relax and not worry! Remember, they've done this sort of thing before.
__________________


Sarah.
Diagnosed with Crohn's disease 12/6/08.
Have taken: Prednisone, 6mp, methotrexate, Pentasa.
Currently waiting for a new medication!

Check out the Crohn's forum chat!

12-29-2012, 02:23 PM   #3
jami
 
Join Date: Aug 2012
Location: Illinois
Thank you, they have me on xanax to help me with the whole relaxing thing. LOL!!
12-29-2012, 05:49 PM   #4
Ihurt
Senior Member
 
Join Date: Mar 2012
Location: United States

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I hope all goes well with your surgery. So the cimzia and remicade Caused you to need this surgery?? That is terrible and scary. These drug reactions are really scary and the side effects. I am sorry you are dealing with all this. I hope all goes well for you. It sounds like you are in good hands thought...




I go in Monday for a resection...more than likely they are taking the whole ileum and the surgeon told me, if there was any more infected that they couldnt see on the tests they would take that also. This has all came up in the past 2 weeks due to me having a bad reaction to remicade and cimzia both. Since, I work in the hospital on the surgical floor, the surgeon was all for getting me in before the end of the year for insurance reasons (thank the Lord).

I am just having an occasional freak out moment here and there when I think about it too much, not the surgery itself...I have the best surgeon here for the job. I am just afraid of what I am going to wake up to. He tells me I should not have to have any tubes or ili. bag...but of course, cant promise it and I know it since I work with it day in and day out.

I will update later how the surgery went, just throwing this out there and asking for prayers that the surgery goes just the way I want, but I know it will go the way the Lord wants!!
12-30-2012, 03:43 PM   #5
Stressed Mom
 
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Join Date: Nov 2012
Location: Strathroy, Ontario
Sending lots of hugz and prayers to you sounds like you are in very good hands and have a great surgeon, I wish you all the best!!
__________________
Michelle

Son diagnosed with Crohn's March/03

Right hemicolectomy Oct 30/12

Currrently on Humira
Discontinued Aza Oct/12 (prior to surgery)
Discontinued Pentasa July/12
12-30-2012, 04:36 PM   #6
jami
 
Join Date: Aug 2012
Location: Illinois
The remicade we decided to try one last ditch effort to avoid surgery, but it didnt work attacked every single joint except my ankles. We knew it was a chance considering I had been on it years ago. So, my GI was discouraged as was I. I am just praying that I dont wind up with an ileostomy bag! Thanks for the support here, I will update after surgery!!
12-30-2012, 07:57 PM   #7
Stressed Mom
 
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Join Date: Nov 2012
Location: Strathroy, Ontario
They tried Humira to prevent my son's surgery as well but was too much scarring so didn't work either he is only 18 and was terrified of the possibility of waking up with the ileostomy bag as well but thankfully it was avoided. He said he can accept the fact it may happen in the future but really wanted to get through college before having to deal with that.

I hope your surgery goes very well and they can reconnect the tissue for you and if not there are many many people here to support you in the event things don't go as planned but positive thoughts bring positive things so try to stay positive it will all work out and most important you will feel much better in the end
12-30-2012, 08:04 PM   #8
jami
 
Join Date: Aug 2012
Location: Illinois
Thank you stressed mom...this momma is gonna go try and get a good nights sleep, cant seem to get off the toilet and it is draining me...didnt even have to do any prep for the surgery either, just clear liquid diet that is going straight through!!
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