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View Poll Results: Do you experience constipation, how often, and what disease do you have?
I have Crohn's disease and never experience constipation 9 16.07%
I have Crohn's disease and sometimes experience constipation 31 55.36%
I have Crohn's disease and am almost always constipated 10 17.86%
I have Ulcerative Colitis and never experience constipation 1 1.79%
I have Ulcerative Colitis and sometimes experience constipation 1 1.79%
I have Ulcerative Colitis and am almost always constipated 1 1.79%
I have another form of IBD (please share in a post) 1 1.79%
I am undiagnosed 2 3.57%
Voters: 56. You may not vote on this poll

01-02-2013, 09:59 AM   #1
David
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Do you experience constipation?

I'm curious how many of you experience constipation and what your disease is.

If you're willing to share the location of your disease, that would be extremely useful as well. For example: Crohn's ileitis, Crohn's ileocolitis, Crohn's colitis, Ulcerative Proctitis, Proctosigmoiditis, Left-sided Colitis, Pan-ulcerative Colitis.

Thank you!
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01-02-2013, 10:05 AM   #2
David
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I personally have Lymphocytic Colitis so chose, "Other IBD" and I very rarely experience constipation.
01-02-2013, 10:35 AM   #3
SarahBear
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My CD is throughout my entire small intestine. I'm not sure what the technical term for that one is, and google isn't helping. Anyway, I voted CD and sometimes. Never severe and not very often, but it has happened.
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Sarah.
Diagnosed with Crohn's disease 12/6/08.
Have taken: Prednisone, 6mp, methotrexate, Pentasa.
Currently waiting for a new medication!

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01-02-2013, 11:23 AM   #4
Devynnsmom
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I voted for my daughter, I voted I have ulcerative Colitis and sometimes experience constipation. Before diagnosis she suffered from constipation a LOT.
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Samantha, AKA Devynn's mom


Devynn (12 years old) was *unoficially* diagnosed with Crohn's disease in Dec 2009.
That diagnosis was changed to Ulcerative Colitis in Mar 2012.
Pentasa ASA Dec 2009-Mar 2012 (dosage tweaked a couple of times)
Mezavant Mar 2012- Nov 2012
Sulfasalazine-Nov 2012
01-02-2013, 11:27 AM   #5
Niks
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My daughter has been hospitalised 3 times because of constipation and obstructions, at the end of last year! So far diagnosed with Coeliacs but is still being tested for IBD
01-02-2013, 12:40 PM   #6
2thFairy
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Before total colectomy, I had left-sided colitis and never had constipation...always the big D.
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Ulcerative colitis

Total colectomy with ileostomy featuring Sideshow Bob since January 2012

"The colon seems an unlikely candidate for dramatic effect, but now and then it serves that purpose well." The Associated Press Guide to Punctuation
01-02-2013, 12:56 PM   #7
ctrl z
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I have Crohn's disease and sometimes experience constipation. This usually happens when I'm on my period. CD in TI.
01-02-2013, 01:17 PM   #8
DustyKat
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Sarah tended to constipation most of the time as her symptoms became more frequent.

Matt had normal bowel motions but then he was diagnosed very quickly.

Both have ileitis and neither had diarrhoea as a symptom of their disease pre op.
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Mum of 2 kids with Crohn's.
01-02-2013, 03:23 PM   #9
CrohnsChicago
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I actually get constipation during the first few days of starting prednisone.

But medication aside, it defintiely happens to me sometimes. I havent really tracked it, but I think it mostly has to do with what I eat, especially just after having a bout of diarrhea. I Have some Miralax on hand for those moments. But majority of the time it is loose stools or constant diarrhea.
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Crohn's-Colitis May 2012
Current Meds:
6-MP (100mg) / Asacol (4800mg)
Past Meds:
Prednisone/ Entocort / Flagyl
Current Supplements:
B12 Shot (1cc/mo) / Multivitamin / Vitamin D (1000iu) / Calcium (1200mg) / Omega 3 Fish Oil (4800mg)
Additional Info:
Anemia/Borderline Anemia - whole life
Generalized Anxiety Disorder - 2009 (Cognitive Behavioral Therapy, mindfulness meditation)

01-02-2013, 04:13 PM   #10
Jennifer
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I have Crohn's ileocolitis and Crohn's colitis (we just call it Crohn's really) and only experience constipation when I take a lot of pain meds, otherwise I have none so I voted "never" since the Crohn's has never caused me to have it.
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Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 50mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel, Tylenol 3, Omeprazole 20mg 2/day, Klonopin 1mg 2/day (anxiety), Restoril 15mg (insomnia), Claritin 20mg
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 17 years and counting.
01-03-2013, 03:42 AM   #11
Cozmo
 
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I voted CD and sometimes, but the sometimes is rarely. It's usually been connected to medication or diet. When I have been experiencing flare ups and having maximum amount of Co-Dydramol I've gone days without going. Whereas with Prednisone I find it makes me go soon after taking it.

I'm not sure of the location of my Crohns but I will endeavour to find out.

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Diagnosed Crohns Nov 15th 2012
Prednisolone 30mg a day (6x 5mg)
Pentasa/Mesalazine 2 x 500mg 4 x a day
Azathpioprine 2 x 50mg a day(stopped after bad reaction)
Alendronic Acid 1 x weekly
Calceos 2 x a day
Diagnosed Gastronitis 2004
Lansaprazole 15mg a day
Diagnosed Aneamic 2011
B12 Injection every 3 months
Iron Tablets 3 x a day
Co-Dydramol
multivitamin
Vitamin C Disolvable Effervessent 1000-2000mg a day
Questran
Diagnosed Aortitis May 23rd 2013
Ertapenam IV Antibiotic
01-03-2013, 08:22 AM   #12
Skycruiser
 
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Location: Washington
Deleted.

Last edited by Skycruiser; 07-31-2015 at 01:11 PM.
01-20-2013, 12:08 AM   #13
Polaris
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I have Crohn's in my terminal ileum, and sometimes experience constipation.
01-20-2013, 01:37 AM   #14
afidz
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I get constipation now about once a week or so, I don't know exactly where my Crohn's is, I know its somewhere in my large intestines. My diagnosing doctor was not very imformative and I was too young to ask questions. My current GI never received the diagnostic report from the first and has never scoped me so he is unsure as well, but he knows that it is somewhere in my large intestines. I will be scoped sometime in late spring early summer, so I will know more then.
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Crohn's since 2007
15 Abdominal Surgeries since 2008
Severe Non-repairable abdominal hernia
Ankilosing Spondylitis
Inflammatory Arthritis

Failed meds:
Humira
Remicade
Asacol HD
Cimzia
Methotrexate
01-20-2013, 06:11 AM   #15
Cross-stitch gal
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My Crohn's is located in my small intestine. I do sometimes get constipated. Even with my flares in which I pass and drip blood I can still go a day without passing any bm's or diarrhea at all. Although, the next time I do pass a bm the following day I'll pay for it by having trouble getting off the toilet...
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Diagnosed:
Ulcerative Colitis/IBD 1996, Iritis 2001, Ulcerative Proctitis 2013, Indeterminate Colitis 2016, Remission 2017, Hand Eczema

Current Meds:
Pentasa 1000mg 2xday or Mesalamine DR 1.2gm 2xday, Canasa Suppositories (when needed) 1000mg 1xday, Tylenol 3 with codeine 300-30mg (when needed)

Non-Meds:
600+D Calcium 2xday, Multivitamin, 65mg Iron 1xday, Fish Oil 1000mg, Vitamin D3 5,000 I.U., Eye Drops 2xday


UP Support Group http://www.crohnsforum.com/showthread.php?t=68350
01-20-2013, 10:15 AM   #16
xX_LittleMissValentine_Xx
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My crohn's is in my terminal ileum and rectum, and I think it might be in my colon too.
I voted sometimes. I basically have diarrheah or soft stools all the time, but since being on pred I'm either constipated or have normal stools. I hate it because its painful going to the toilet and also, I'm eating so much fibre at the moment to try and stop/prevent it but it doesn't seem to be getting softer!!
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~Holly~
Diagnosed with CD March 08 at 17
Currently on:
Infliximab

Past:
Pentasa
Prednisolone
Azathioprine

My blog: http://hollysbloggyness.blogspot.com/
01-20-2013, 10:26 AM   #17
Sailorluna
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Rarely and it is generally related to medication. Also I have a bad rectal stricture (very low) so I think it make it seem worse than it is. Most of my activity is rectal since they removed my terminal ileum.
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Symptoms since 98
Resection and diagnosis June 2010
3 fistulas
abscess drained 6 times (so far...)
currently 2 seton in place 1 since 9/11 the other 4/14
1 strange small air pocket with an 8 cm sinus track leading into the great unknown
methotrexate weekly
folic acid
2 lomotil
2 Welchol
B12 injections (monthly)
Remicade

_____
Goodbye Humira
Goodbye Cimzia
Goodbye Azathiprine
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