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07-03-2013, 04:46 PM   #601
Mylittlesunshine
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Lucy started her 6mp today.
Upto now she seems to be fine with no
Problems. Everything crossed that it works.
Hugs to you all x
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Currently on EN
Neacate LCP
Multivitamin
Folicacid
Iron
Dalavit
Calcium sandos
Dyclavlovin
Inhalers x3
Pred tapering
07-03-2013, 06:28 PM   #602
CarolinAlaska
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Yes for getting off to a good start!
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J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), controlled with 6MP.
Osteoporosis, Scoliosis, EDS, Asthma, Lymphedema, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety postural tachycardia/POTS and multiple food allergies.
07-03-2013, 08:52 PM   #603
kimmidwife
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Glad to hear so far so good! Keeping fingers triple crossed that it all continues going smoothly.
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Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
07-03-2013, 09:13 PM   #604
Tesscorm
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Hope all continues to go well!!!
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Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
07-03-2013, 09:15 PM   #605
Jmrogers4
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Go Lucy!
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Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
07-04-2013, 06:28 PM   #606
DustyKat
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Sending tons of luck that all goes well for Lucy!

Dusty. xxx
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07-07-2013, 12:28 PM   #607
ChampsMom
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Hope everything is going well!!
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Shell

Mom of Champ (Alex)
Dx: CD April 2010
Meds: 04/25/13 switched back to Pentasa 3,500mg/day - Lialda brought lower abdominal cramps & exhaustion); 04/05/13 switched to Lialda 1.2GM 3 pills/day verse Pentasa 3,500mg/day, prevasaid 15 mg x 1/day, elemental iron, daily vitamin, calcium w/mag D, 50,000 mg Vitamin D/week, B12, B6 supplements, Cetrizine (for sinus issues)
Prayer
Priesthood Blessings
07-07-2013, 12:44 PM   #608
Clash
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I hope 6MP does the trick for your sweet little one!
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Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
07-19-2013, 03:57 PM   #609
Mylittlesunshine
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Lucy started 6mp and is doing fine so
Far, she is still on full time feeding
Though mickey button
07-19-2013, 05:10 PM   #610
Niks
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Fabulous news MLS!! So lovely to hear.

How are you doing?

Hope all is okay and you are recovering from your surgery xxx
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Daughter 22, 1. Upper GI and colonic dysmotility with viscernal hypersensitivity.
2. Predominant Constipation with slow colonic transit and moderate gastroparesis,
3. Nephrolithiasis
4. Osteopenia bordering on osteoporosis



Peristeen Irrigation every other day.
Citramag/Picolax

Waiting for bowel stimulator!
07-19-2013, 05:31 PM   #611
DustyKat
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^^^^+1!

Thanks for the update Mls, it surely is wonderful to hear that Lucy is doing well!

Dusty. xxx
07-19-2013, 05:55 PM   #612
kimmidwife
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So glad to hear she is continuing to do well. May it only continue!
07-19-2013, 05:56 PM   #613
Jmrogers4
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Glad she is doing well. Long may it continue.
07-19-2013, 06:28 PM   #614
my little penguin
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Woohoo for doing well
That is great news
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08-01-2013, 01:18 PM   #615
Mylittlesunshine
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Hi all been awhile since I updated
Lucy seems to be doing well
On the 6 mp so fingers crossed x
08-07-2013, 04:45 AM   #616
Mylittlesunshine
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Update
Since yesterday Lucy has been flaring
Her BM's yesterday 11 times
She not taking her feeds manged to get
2 out 8 feeds in her she complaining
Her if her tummy hurts and really tired.
This morning she woke up and said
Her legs hurt, crying for mummy to
Carry her down stairs...... That's a laugh
Can't can't even walk down stairs myself
I'm down on my bottom.
Thanks god my 11 year old could carry her.
Feels like its going to be one of those days.
08-07-2013, 06:52 AM   #617
Niks
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Aw, bless her and your 11 year old! Sounds like they are a massive help to you right now.

(((HUGS)))) xxx
08-07-2013, 08:11 AM   #618
Mylittlesunshine
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Yeah NIks it's a good job I've got my
Eldest otherwise I would be stuck.
The only thing is I feel so guilty
Having to ask her to do washing
Helping me with things that I should
Be doing ect..... After all she is still a child.
08-07-2013, 10:16 AM   #619
crohnsinct
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Oh MLS! Don't feel that way. She has probably been feeling helpless with your illness and this gives her "something" she could do for you. Plus you are teaching her some excellent life skills. I am sure that you are gushing over her about what a big help she is and all so she is feeling really good about herself and her importance. Let everyone do all they can for you. It truly makes them feel better and if it helps you on top of it a win/win.

Hoping that each day gets a little easier for you!
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Daughter O dx 2/1/12 at age 12
Crohns & Remicade induced Psoriasis
Remicade
Methotrexate (12.5mg wkly - oral)
Vit d 2000IU
Multi vitamin plus iron
Calcium
Folic Acid
Previously used - Prednisone, Prevacid, Enteral Nutrition

Daughter T dx 1/2/15 at age 11
Vitaligo, Precoscious puberty & Crohns
Methotrexate (15mg weekly oral)
Enteral Nutrition
Entocort
IBD-AID Diet
Vit d 1000IU
Calcium
Folic Acid
Previously used: Mtx injections
08-07-2013, 10:25 AM   #620
Jmrogers4
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Yes ditto what CIC says at 11 they so want to be mature and grown up. She probably feels as if she is doing something to help you get well.
08-07-2013, 10:29 AM   #621
Niks
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Absolutely agree!!! I am sure she loves being able to do somethings to help you both. (((HUGS)))) xxx
08-07-2013, 06:46 PM   #622
kimmidwife
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Triply agree with what everyone else said. Your older one is probably very happy to help and happy you are home! I am sorry Lucy is flaring again. Hopefully things will get back under control quickly.
08-08-2013, 04:21 AM   #623
Sascot
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Sorry to hear Lucy is struggling just now. Hope it may just be a virus that's causing things to flare up! Try not to worry about your 11 yr old having to help - you just have to do what needs doing to get through this period. I agree she is probably just really happy to have you at home - you can still sit and cuddle them!
08-08-2013, 11:14 PM   #624
CarolinAlaska
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I think in the end your 11 year old will be much better off for it. She will be a much more compassionate person and much more mature than her classmates.

I'm sorry Lucy is feeling poorly again. Just when you were saying how well she was doing . Hopefully this will be a passing bug <<<Hugs>>> to both of you.
08-09-2013, 04:14 PM   #625
polly13
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So sorry to hear Lucy is moot doing so well. Hope you and her start to feel better soon
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