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01-02-2013, 07:11 PM   #1
Kf1986
 
Join Date: Dec 2012

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Extreme pain :(

Hi i have uc and have proctitis at the min , the first time i have experienced this and i am in terrible pain when going to the toilet . I have been using mesalasine enemas for 3 wks and no improvement basically getting more painful . What should i do ??
01-02-2013, 08:07 PM   #2
Trysha
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You need help with intolerable pain and I suggest you call your GI and get some help as soon as possible.
There could be other treatments available to you.
If its really bad go to emergency.
Feel better soon
Hugs and best wishes
Trysha
01-03-2013, 03:09 AM   #3
Kf1986
 
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Thanks for the reply just didnt want the doctors thinking i was wasting their time . Im fed up now i will be speaking to them today . I just want to feel normal again ! . Thanks for the advice
01-03-2013, 09:01 AM   #4
2thFairy
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You might try steroid enemas if the mesalamine enemas aren't helping.
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01-03-2013, 09:11 AM   #5
Kf1986
 
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Ive spoke to my specialist at the hospital they are going to put me back onto oral steroids to try get my symptoms under control . She mentioned that it doesnt matter if the bleeding doesnt stop as they know were it is coming from they are more bothered about the pain and needing to go and the boils i am getting on my body also the lack of energy . I would of thought the bleeding was serious and needed controlled. Although i am nt getting D .
01-06-2013, 03:04 AM   #6
FrancisK7
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Hey Kf1986!

I'm very sorry about your pain. I have pancolitis and like you, for the past two months, I've had to deal with severe cramps and pain.

Unfortunately I'm allergic to mesalamine so while I wait for prep test results for the remicade, I had nothing to help with symptoms. I read about MMJ on this board. I was already using it recreationally, but decided to use it more frequently and regularly to see if it helped with symptoms.

To be honest, it changed everything.

I'm still flaring but I'm pain free most of the day. I've now built a tolerance to the psychoactive effects so I can work effectively. The amount of stools is reduced and the pain is very well managed.

If modern drugs do not work for you, medical marijuana might be. Is it an option at all where you live?
01-06-2013, 03:37 AM   #7
Kf1986
 
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Hi there although i have tried this in the past before i was diagnosed with uc i couldnt do it now . I have 2 kids so not really an option :/ thanks for the comment though its interesting to know what works for people. Ive also heard that nicotine helps
01-06-2013, 03:40 AM   #8
FrancisK7
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My best friend has 3 kids and has MS. He's been using MMJ daily for a decade. He makes edibles and eats them.

Kids don't have to be a deterrent.
01-06-2013, 03:52 AM   #9
Kf1986
 
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Yeah i suppose each to their own but i dnt think i could b in that frame of mind when with my kids thanks n e way !
01-06-2013, 04:05 AM   #10
FrancisK7
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Psychoactive effects can easily be managed and eventually you build a tolerance and feel none at all.

If you make tinctures of cannabis with a strain that is low in THC content and high in CBD, your state of consciousness will be unaffected and you will get the pain relief and inflammation suppression benefits.

In the mean time, you should discuss the long-term plan with your doctor. If you're flaring and 5-ASA don't help there needs to be something other than steroids in play. Remicade? Did you discuss that?

Steroids are temporary fixes.
01-06-2013, 04:10 AM   #11
Kf1986
 
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Yeah i have an appointment wit my doc in 3 weeks to discuss what we will try after the steroids. Im currently taking azathioprine but that doesnt seem to be working for me any more the joys of this illness !
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