Crohn's Disease Forum » Treatment » Remicade/Infliximab » Remicade Club Support Group


 
07-18-2017, 02:15 AM   #3931
Scifimom
Senior Member
 
Scifimom's Avatar
 
Join Date: Aug 2010
Location: THESSALONIKI, Greece

My Support Groups:
Hey Gram what about inflectra? I am on Inflectra for two years now, full remission no other medication needed, gained my weight back and generally I am fine. In Greece we have universal healthcare for everyone but with the recession and the memorandums etc hospitals had to cut back on their expenses, all new patients go directly to inflectra and old patients are ecouraged to switch too. As far as I have seen it has the same results as remicade . Its quite cheaper, its the biosimilar, since Remicade's substance was no longer protected by the patent. So its infliximab in another bottle. It may be worth looking in it.
07-21-2017, 03:49 PM   #3932
BrennieJoyce
 
BrennieJoyce's Avatar
 
Join Date: Jun 2015
Location: Concord, California

My Support Groups:
I have a question about my Remicade treatment. I've had 3 treatments so far, and am scheduled for my fourth one next Friday. I haven't seen any improvement in my CD symptoms, and my flare was so bad I decided to go on another course of prednisone 2 weeks ago. My doctor has assured me that it is safe to get Remicade while on prednisone, but I saw online that it's not a good thing to do. Does anyone have any experience with this? Thanks!
__________________
Diagnosed: May 2015
Current Meds: Entocort, Lialda, Imuran, Remicade
Past Meds: Prednisone, Humira, prednisolone eye drops
07-21-2017, 04:40 PM   #3933
More Than Pickles
 
Join Date: Jun 2017
Location: Rockledge Florida

My Support Groups:
I was on prednisone when I started Remicade because I was in a flare. I think I stopped/tapered the prednisone after my starter doses of Remicade were done. You should start to see improvement very soon, I did. Best of luck.
07-21-2017, 04:49 PM   #3934
Gram214
 
Gram214's Avatar
 
Join Date: Jul 2014
Location: Gratz, Pennsylvania

My Support Groups:
HI BrennieJoyce..yes I've taken prednisone off and on for too many years to count. For the past three 1/2 years I've taken it along with my Remicade infusions. I take a low dose constantly. And I'm given a booster of it in my IV before my actual Remicade treatment to prevent an allergistc reaction. I experienced hives and B/P problems once and ever since I get Benedryl and pred.beforehand.
I think your dr. Is trying to get you under control then I'm sure he'll taper you off . I'm sorry your Remicade hasn't kicked in yet. Try to just think positive thoughts..don't stress about it because this disease feeds off of stress ! Have faith..! 😊🙏🏻 If it doesn't do the trick..something else can be tried. Good luck my dear..XX
07-21-2017, 07:04 PM   #3935
BrennieJoyce
 
BrennieJoyce's Avatar
 
Join Date: Jun 2015
Location: Concord, California

My Support Groups:
I was on prednisone when I started Remicade because I was in a flare. I think I stopped/tapered the prednisone after my starter doses of Remicade were done. You should start to see improvement very soon, I did. Best of luck.
Thank you!
12-12-2017, 10:34 AM   #3936
Hobbits
 
Join Date: Sep 2017

My Support Groups:
I'm about to start Remicade in less than a week, after putting it on hold until I got MRI results. Can anyone offer any advice for a newbies first loading dose? I'm a tad nervous about this medication even though I have been on Enbrel for another disease for many years. I guess because Remicade is an infusion, it just seems so much more powerful than injectable biologics. Does anyone know why Remicade has to be infusions and can not be at home injectable like Enbrel?
12-12-2017, 01:12 PM   #3937
rrhood1
Senior Member
 
rrhood1's Avatar
 
Join Date: Oct 2013
Location: Didsbury, Alberta

My Support Groups:
∑ Stelara
I donít know why Remicade has to be IV but my guess would be that it has to administered slowly mixed with saline and itís too much to inject. You would have to do too many needles in order to get it all in. I enjoy my Remicade days. My infusion centre has a big screen tv, Netflix and I nap or read my iPad. They usually give me a drink and a snack too. I get pre-meds - Benadryl and a steroid in case of reaction (better safe than sorry) and it makes me sleepy so I nap. Other than having to have an IV needle, itís actually pretty enjoyable. Even the IV is okay - I have no nerves at the site they use so it doesnít hurt going in. But Iím used to it now. Good luck!
__________________
Alison

Dx: Crohns - 2010
Dx: Severe cervical spondylosis/foraminal stenosis, ruptured discs
Dx: Severe lumbar ruptured discs
Dx: thyroid cancer - 2 surgeries - done with
Rx: Remicade, Methotrexate, Lyrica, Butrans patch
Vitamin D, C, B, calcium
12-13-2017, 08:36 AM   #3938
Hobbits
 
Join Date: Sep 2017

My Support Groups:
Thank you so much for the reply. Gives me a better idea what to expect. I was supposed to start Remicade earlier but I decided to delay until after MRI results. They told me my first appt I will be there at least 6 hours, so they can monitor me for reaction, as the Bioadvance clinics is getting away from giving Benedryl. I believe they will have it on hand though if needed. Subsequent appt will be 4 hours long, they told me. I'm in Ontario, so nice to meet a fellow Canadian!

I found booking my appointments very challenging, especially these loading doses, as I cant keep taking huge chunks of time off work, it makes me question this drug, since I know there are other newer drugs in pill form like Jxeljanz or injectables. I thought perhaps because Remicade is infusion it may be a more stronger drug, but sounds like its more like what you said, just the delivery system via IV

Well I have a pretty picture in my head now for a pleasant experience and will try to relax and not stress over it.
12-13-2017, 09:46 AM   #3939
Madhu
Senior Member
 
Madhu's Avatar
 
Join Date: Jul 2015
Location: New Jersey

My Support Groups:
Hi Hobbits, only the loading doses are close to each other. After that you will have a fixed schedule for each infusion and it will make life much easier. The first infusion is the slowest, because they load it very slowly to check how you're reacting to it. Once it's all clear, the other infusions will be quicker. By quicker, I mean around 3 hrs. Take a book or music with you. Or you can just sleep. Good luck

__________________
Hubby dx with Crohn's in Feb 2015, in remission from Feb 2016 to Feb 2017.
2 anal fistulas (setons placed in June 2015 and removed in Feb 2016)

Mild flare in Mar 2017. Remicade schedule adjusted

Current Meds - Remicade 10mg/kg
12-13-2017, 09:58 AM   #3940
Hobbits
 
Join Date: Sep 2017

My Support Groups:
Thank you! Trying to stay calm, and not stress over it. I like to be prepared and know what to expect. Thank you for the tips!
12-21-2017, 09:09 PM   #3941
dave13
Forum Monitor
 
dave13's Avatar
 
Join Date: Dec 2013
Location: Maine

My Support Groups:
Hi Hobbits. I have been on Remicade for four and a half years. My insurance offered at home infusions. My GI was against it. The reason was,in my case,I live 30+ minutes away from the nearest hospital. If there was an issue it would take 30 minutes to get to me and the same to get back to the hospital.

There are many people that do at home infusions. Talk it over with your GI,perhaps it is offered in your area.
__________________
"It does not do to dwell on dreams and forget to live."
Reply

Crohn's Disease Forum » Treatment » Remicade/Infliximab » Remicade Club Support Group
Thread Tools


All times are GMT -5. The time now is 02:24 AM.
Copyright 2006-2017 Crohnsforum.com