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01-06-2013, 07:36 AM   #1
elvie
 
Join Date: Jan 2013
Location: Adelaide, South Australia, Australia

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Crohn's newbie

Hi everyone, I am so glad this forum exists. I have been reading many posts over the last few weeks and have learnt a lot. I figured it's time I posted and started to make whatever contribution I can.

I was diagnosed with Crohn's in December 2012 after having diaorrhea for most of the year as well as arthritis. It all started with psoriasis behind my ears - which eventually led to a diagnosis of psoriatic arthritis - then diaorrhea for much of the last year as well as a an acutely sore foot.

After much to-ing and fro-ing and diagnoses that while accurate did not identify the real problem (I made the mistake of attending a university physiotherapy practice run by students for the foot pain and was told I had tendonitis (true) but neither the student nor the supervising physio picked up that there was a much deeper problem - athritis). All my subsequent specialists said straightaway that the degree of inflammation - which spread to both feet - was much worse than basic tendonitis. Hence the eventual arthritis diagnosis.

Then I opened up to my rheumatologist about diaorrhea I'd been having for most of the year - I'd stupidly assumed, because I'd been diagnosed (also correctly) with a haemerrhoid early in the year, that the diaorrhea was because of that, so I hadn't spoken to my GP about it. Fortunately my rheumatologist immediately referred me to a gastroenterologist she knew and once I saw him, after examining me he suspected Crohn's and five days later he did a colonoscopy and endoscopy, which confirmed his suspicions.

The colonoscopy and a pelvic MRI showed a few fistulas as well as ulcers. The fistulas scare the hell out of me so I hope Humira will fix them...

I'm going to be on Humira injections starting in a few weeks time and I am a bit anxious about that but trying to be brave. My gastro (I assume "GI" is a gastroenterologist?) is also considering putting me on Imuran at the same time. I'm relieved to have this forum where I can let my hair down and not feel I have to put on a brave face as I am trying to do in public. I have a thousand questions which I'll try to address to the appropriate sub-sections in the forum. Thank you for reading my rambling post.
01-06-2013, 09:16 AM   #2
Angrybird
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Join Date: Nov 2011
Location: Cambridge, United Kingdom

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Hello and welcome to the forum

What meds are you on right now if any? I do not have any experience with fistula's so could not advise on these bit we do have a sub forum that is worth checking out for some info: http://www.crohnsforum.com/forumdisplay.php?f=76. We also have a treatment section that is also worth a look at to get info on the two meds that have been suggested: http://www.crohnsforum.com/forumdisplay.php?f=16. One thing I was wondering is whether your docs have done any checks on your vitamin levels?

I am pleased you have decided to join and please keep us updated on how you get on.

AB
xx
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Angrybird

DX: Crohns July 2002
Surgery: Ileocecal Resection Sept 2011
Now:Tummy behaving itself and new mummy to baby Nicholas
Current Meds: 6-MP 75mg,B12 injections every 3 months
Previous Meds: Budesonide, Prednisone, Remicade, Pentesa,Hydroxychlorequine,Azathioprine (tried twice) and Methotrexate
01-06-2013, 05:53 PM   #3
elvie
 
Join Date: Jan 2013
Location: Adelaide, South Australia, Australia

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Thanks Angrybird! At the moment I'm on: Metronidazole and Nexium for the Crohn's, Naproxen and Cholecalciferol for the arthritis and Calcitrate supplements for all of the above. To think that 20 years ago I was the kid who hated taking tablets - it's best not to find out what lies ahead in your future!!

I have checked out the Humira forum, and will look into the Imuran one so thank you for the link.

Re vitamin levels, yep, they've been checked. I am Vitamin D deficient which is why my rheumatologist prescribed Cholecalciferol. It does feel odd to have a drug which I ingest via squeezing a syringe full of it on to toast and then eat the toast though! Fortunately it seems to be working as my Vit D levels have improved since taking it.

Thank you for the welcome, and I'll certainly update as things progress. I am looking forward to getting my life back with the Humira, as for most of the last year I've barely been able to walk without excruciating pain, and obviously I hope it works with the fistulas, ulcers et al too. Fingers crossed.

Oh, and congrats on the pregnancy! I am going to be an aunty soon (all going well) and can't wait to meet my niece/nephew.
01-06-2013, 06:16 PM   #4
Earnellzwifey
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Join Date: Sep 2012
Location: Aberdeen, Mississippi
Hi Elvie and glad you found us. I am looking toward to hearing more from you and yes GI is a gastroenterologist. I would also like to point out that naproxen can be really harsh on the stomache, especially with CD. You might want to ask your rheumy to give you something different. All NSAIDS are a general no-no.
__________________
Dx 8/31/ 2012 w/ CD
taking:
Remicade,Librax,Lomotil,Prednisone,Probiotic,
Iron,multi-vitamin, B12 injections, magic mouthwash,
Zofran.

32 medical conditions and counting. 22 pills a day with daily blood sugar testing and urinary cathing.

If you live in the loo , because you always gotta poo , then this is the place for you.
01-06-2013, 06:42 PM   #5
Angrybird
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Thanks hun, luckily the pregnancy is helping to keep the tum settled, I have told hubby we will just have to keep having babies as it is good for my health lol.
01-06-2013, 06:57 PM   #6
elvie
 
Join Date: Jan 2013
Location: Adelaide, South Australia, Australia

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Thanks Ernzellswifey. I was put on the Naproxen well before the diagnosis of Crohn's and I'll be going off it once I start Humira. At the moment it's the only thing that is helping me to walk without severe pain so until the Humira on Jan 25 I'll stick with it. My rheumatologist also feels the Humira will aid the arthritic pain so hopefully it will work well.
01-06-2013, 07:03 PM   #7
Jasontorzilli81
 
Join Date: Jan 2013
Location: Stamford, Connecticut
I've also tried humira n had no luck. All my meds work for alil n stop. Currently on cimza n now that is not working been in horrible pain all week n worse this week end Hopefully u have better luck
01-06-2013, 10:50 PM   #8
elvie
 
Join Date: Jan 2013
Location: Adelaide, South Australia, Australia

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That sounds awful, Jasontorzilli81. I hope you can find a medication that works for you. All the best to you.
01-06-2013, 10:57 PM   #9
Jasontorzilli81
 
Join Date: Jan 2013
Location: Stamford, Connecticut
Actually I'm in the ER as we speak. Could take the pain n e more
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