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Crohn's Disease Forum » Parents of Kids with IBD » In the hospital since yesterday


01-09-2013, 11:38 PM   #1
araceli
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In the hospital since yesterday

Hello.
Here I am a in the hospital with my daughter, trying to figure out what went wrong. Thursday went to get Remicade infusion, (third dose). No problem friday, Saturday and Sunday with mild headache, Monday no problem. Tuesday she woke up with nausea and not feeling good. started vomiting and told me she was feeling very sick. First time she tells me that. Emergency room here we go. Fever, vomiting, a very high heart rate, and dehydrated, Vomit went away, fever disappear, a lot of IV. antibiotics (no sign of infection that I know.) but I guess just in case. Only thing that doesn't resolve is the high heart rate. No explanation to that. Could be a reaction to remicade?. I am pretty sure is not a flare up. No lose stools , no pain, no blood and when she got a flare up she does not trow up. She is feeling pretty good now. But I wish I will know what was the problem
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Mom/ Girl 19
dx 2011 crohn's in terminal ileum, peri-anal
Prior Meds Asacol, Prednisone, nexium
Current meds.
Remicade since Nov. 2012
Supplements
5000 Vit. D, Multi-Vitamins with Iron
Currently in REMISSION :dance

Mom/ 16 boy
Amplified musculoskeletal pain
Prior. Prednisone, sulfasadine,
Currently. Celebrex, gabapentin, amitriptyline.
01-09-2013, 11:53 PM   #2
Hope345
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Hi,
My 14 year old daughter has had her 6th treatment of Remicade.
She got a high fever last night which I believe is due to a flu bug. She got the flu shot but this bug is not one that was on there. I have heard the flu is hitting people really hard this year.
What has her GI doctor said? Are these symptoms for a remicade reaction?

Thinking of you and your daughter, hope she gets feeling better. Please keep us informed of how she is doing.
take care,
__________________
Daughter (age 17) diagnosed with Crohns Colitis/UC 1/2012 Mod/severe changed to U.C.: 11/7/2014 anemia:blood transfusion current: Flare, weaning from Prednisone, still bloating: Meds ,Pentesa: 2000mg twice daily, Vegan diet, mesalamine enemas .Previous: mercaptopurine, Remicade (13 treatments), Imuran, prednisone ), Flagyl, iron infusions, cortifoam,
Continue to be hopeful
Daughter: age 21, undiagnosed: GI issues

Last edited by Hope345; 03-05-2013 at 12:03 PM.
01-10-2013, 03:57 AM   #3
DustyKat
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How are things going araceli?

Has the heart rate settled?

Dehydration will cause an increased heart rate because the heart has to work harder when there is less circulating volume. Once the dehydration has been dealt with that all should go back to normal. Fever will also increase the heart rate.

Thinking of you,
Dusty. xxx
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01-10-2013, 05:51 AM   #4
upsetmom
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I hope the heart rate settled down i know how scary that can be.....

A few months ago my daughter was getting chest pain and her heart rate was very high...the Dr said when there is pain anywhere the heart rate goes up.
01-10-2013, 06:13 AM   #5
Catherine
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Hoping she better soon.
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Catherine
Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)
01-10-2013, 07:09 AM   #6
Johnnysmom
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My son just went through a bout with the flu and it presented just like that. He was afraid to drink water because he had gotten sick so he got dehydrated as well. I think Dusty is right that dehydration could cause the elevated heart rate. Anxiety on top of that can make it worse.

Glad she is feeling better
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Mom of Johnny
Dx Oct 11 2011 Crohns disease
Prednisone done 12/30/11
6mp 50mg every day
Allopurinol 50mg -discontinued per new G.I. on 11/01/12
Multi Vitamin
Vitamin D3 1000mg
Prayer
01-10-2013, 08:56 AM   #7
kimmidwife
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I hope she is doing better and things have settled down!
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Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
01-10-2013, 09:42 AM   #8
jmckinley
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How are things? I hope the heart rate has been resolved. We didn't have any issues like that with remicade. Usually the reaction should happen during infusion. Maybe it's a bug. I see you're down South too. Flu and everything else is going haywire here in Bama.

Hugs and hope she's better soon!
01-10-2013, 12:19 PM   #9
araceli
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Hello. Thanks for your replies.
everything has been resolved but the heart rate(not as high now ). Tests show no infection but she is on antibiotics anyway, waiting on electro. What ever it was, I am just glad she is doing better I can not say the same about me, looking really bad, no sleep and with the same clothes since Tuesday. I DID TAKE A SHOWER THOUGH! I will update as soon as something new comes up. Thanks.
01-10-2013, 12:22 PM   #10
Hope345
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so glad she is doing better.... so hard to see our children sick.
Now you need to get some sleep
take care
01-10-2013, 07:20 PM   #11
Devynnsmom
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I'm glad she's feeling better. I hope you get to the bottom of the heart rate issues.
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Samantha, AKA Devynn's mom


Devynn (12 years old) was *unoficially* diagnosed with Crohn's disease in Dec 2009.
That diagnosis was changed to Ulcerative Colitis in Mar 2012.
Pentasa ASA Dec 2009-Mar 2012 (dosage tweaked a couple of times)
Mezavant Mar 2012- Nov 2012
Sulfasalazine-Nov 2012
01-11-2013, 09:20 AM   #12
Tesscorm
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Hope she's continuing to improve!
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Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
01-11-2013, 11:32 AM   #13
polly13
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Hope she feels better soon
01-11-2013, 02:43 PM   #14
jmckinley
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Glad to hear she is better and I hope the improvement continues! AND, I hope you got some rest last night!
01-12-2013, 02:12 AM   #15
DustyKat
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Electroardio-graph/gram (ECG)?

I so hope things are continuing to settle for your daughter......and you are getting some decent rest and sleep...

In my thoughts,
Dusty. xxx
01-13-2013, 12:34 AM   #16
araceli
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Hi. Finally we are home. She is doing great, like nothing happened. We don't have a DX, so I don't know what was wrong, she will see her pediatrician on Monday, and hopefully GI soon. I don't know how the ECG was, but I guess it was good if they let her out. As far as I know she will continue with Remicade. Thanks everybody for your support and kind words.
01-13-2013, 01:44 AM   #17
DustyKat
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Yay! So good to hear you are home and all is well.

I know it is hard not having answers but I hope whatever it was it is a one off!

Good luck with the follow up appointments and treatments!

I hope you both sleep long and well in your own beds.

Dusty. xxx
01-13-2013, 01:57 PM   #18
jmckinley
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Yay! So glad that you are home and she is feeling better. The kids bounce back and we melt! Now get some rest!
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