Hi,
A little update on Ella, beginning on Dec Ellas wbc dropped and her neutrophils were severly low, so she has to come off her meds.
She was on Infliximab, which she is not having again due to side effects.
100mg Azathioprine a day and 4 x 500mg Sulfasalazine a day.
Unfortunately Ellas blood count hasn't improved yet and they are talking about doing a bone marrow test in Feb.
The last couple of days Ella has been having fresh blood in her stool, it doesn't hurt so I don't think it's a tear. She has also had a couple of burning tummy pains. She is so tired and her joints are achy, which has been ongoing for a while.
I took Ella for some blood tests today and managed to chat to her dr, who has ordered a calprotectin test for early next week.
I'm really worried that if Ella is flaring that they wont be able to do anything to help as meds are off at the moment. She absolutely refuses the suggestion of EN after past experiences. It's like being in no-mans land.
Any suggestions would be so helpful.
Also I'm struggling to understand why they may do a bone marrow test when it is drug induced neutropenia.
Thanks for taking the time to read this. Steph
A little update on Ella, beginning on Dec Ellas wbc dropped and her neutrophils were severly low, so she has to come off her meds.
She was on Infliximab, which she is not having again due to side effects.
100mg Azathioprine a day and 4 x 500mg Sulfasalazine a day.
Unfortunately Ellas blood count hasn't improved yet and they are talking about doing a bone marrow test in Feb.
The last couple of days Ella has been having fresh blood in her stool, it doesn't hurt so I don't think it's a tear. She has also had a couple of burning tummy pains. She is so tired and her joints are achy, which has been ongoing for a while.
I took Ella for some blood tests today and managed to chat to her dr, who has ordered a calprotectin test for early next week.
I'm really worried that if Ella is flaring that they wont be able to do anything to help as meds are off at the moment. She absolutely refuses the suggestion of EN after past experiences. It's like being in no-mans land.
Any suggestions would be so helpful.
Also I'm struggling to understand why they may do a bone marrow test when it is drug induced neutropenia.
Thanks for taking the time to read this. Steph