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Crohn's Disease Forum » Your Story » Success Stories » New here and in remission :)


01-12-2013, 09:23 PM   #1
crohnie92
 
Join Date: Jan 2013
Location: United Kingdom
New here and in remission :)

When I turned 19 I had crippling stomach aches constantly, so bad I had to be signed off sick during my gap year job. I was vaguely diagnosed in August 2011with Crohn's, after which I still never felt well on any of the medication. Starting Uni in September 2011 was hell, I had no energy, constantly in pain and unable to eat so lost a lot of weight. Then I changed to another hospital in July 2012 and had my diagnosis confirmed, had lots of tests, and I was intially put on prednisone and then azathioprine. Now I am in remission! Been on aza for 6 months now, and although it took over 2 years, I am so happy as I have gained all my weight back, barely ever get any pain and feel myself again!

Been on (since August 2011):

Omeprazole
Prednisone
Budesonide
Calcium
Folic Acid
Aloe Vera
Metronidazole
Ciprofloxacin
01-13-2013, 07:29 AM   #2
Angrybird
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Join Date: Nov 2011
Location: Cambridge, United Kingdom

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Hello and welcome to the forum

I am so pleased to hear that the tum has settled for you! Do you still have to be careful with what you eat? What dosage of the Aza are you on?

AB
xx
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Angrybird

DX: Crohns July 2002
Surgery: Ileocecal Resection Sept 2011
Now:Tummy behaving itself and new mummy to baby Nicholas
Current Meds: 6-MP 75mg,B12 injections every 3 months
Previous Meds: Budesonide, Prednisone, Remicade, Pentesa,Hydroxychlorequine,Azathioprine (tried twice) and Methotrexate
01-14-2013, 09:37 AM   #3
SarahBear
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Join Date: May 2012
Location: Charleston, West Virginia

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Welcome to the forum!

I'm glad you're feeling well again!

Wishing you the best, in both health and school!
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Sarah.
Diagnosed with Crohn's disease 12/6/08.
Have taken: Prednisone, 6mp, methotrexate, Pentasa.
Currently waiting for a new medication!

Check out the Crohn's forum chat!

01-14-2013, 03:55 PM   #4
crohnie92
 
Join Date: Jan 2013
Location: United Kingdom
Hello and welcome to the forum

I am so pleased to hear that the tum has settled for you! Do you still have to be careful with what you eat? What dosage of the Aza are you on?

AB
xx
Thank you! Yep, I have to avoid spicy or greasy foods, and also some fruit (especially pineapple). I try to avoid dairy as much as possible too. I am on 150mg of aza a day did aza not work for you?

x
01-14-2013, 05:27 PM   #5
Angrybird
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Location: Cambridge, United Kingdom

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It did a great job for the tum but unfortunately gave me issues with low bloods counts etc so we have now just had to draw a line under it. I am on it's 'sister' med now and doing very well.
01-16-2013, 10:16 AM   #6
Devynnsmom
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Location: Toronto, Ontario
That is AWESOME!! I'm so glad you are feeling well!
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Samantha, AKA Devynn's mom


Devynn (12 years old) was *unoficially* diagnosed with Crohn's disease in Dec 2009.
That diagnosis was changed to Ulcerative Colitis in Mar 2012.
Pentasa ASA Dec 2009-Mar 2012 (dosage tweaked a couple of times)
Mezavant Mar 2012- Nov 2012
Sulfasalazine-Nov 2012
01-21-2013, 02:24 PM   #7
Hope345
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Crohnie92,

So good to hear you are in remission.
Are you on the antibiotic treatment used by Dr Borody? How long are going to be on the antibiotics?
__________________
Daughter (age 17) diagnosed with Crohns Colitis/UC 1/2012 Mod/severe changed to U.C.: 11/7/2014 anemia:blood transfusion current: Flare, weaning from Prednisone, still bloating: Meds ,Pentesa: 2000mg twice daily, Vegan diet, mesalamine enemas .Previous: mercaptopurine, Remicade (13 treatments), Imuran, prednisone ), Flagyl, iron infusions, cortifoam,
Continue to be hopeful
Daughter: age 21, undiagnosed: GI issues
01-23-2013, 04:54 PM   #8
crohnie92
 
Join Date: Jan 2013
Location: United Kingdom
Thank you

I'm sorry I've never heard of that dr, who is he?

I'm on the azathioprine for the next 6 years, provided everything is okay with my blood tests!
01-31-2013, 01:27 PM   #9
Hope345
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Keep us informed of how you are doing.
It is always so nice to hear when others are in remission and what worked.
My daughters Crohns is in her colon and she is on Remicade, asacol and a cortifoam. All is working well together for her right now and she is symptom free.

wish you the best.
any advice from you on what works is much appreciated.
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