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01-16-2013, 01:50 AM   #1
katiesue1506
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It Seems Stoma Stuey Fits Me

Sooo I got my pre-reversal bloodwork back and its the highest hemoglobin I've ever seen since diagnosis. I was at 11.7 which is ALMOST normal. Like normal people normal

Also every other thing was spot on, CBC was great, liver enzymes awesome, clotting factor cool. I didn't have a Sed rate or CRP pulled so I'm not sure what I am on that.

Maybe this stoma helped me out tremendously. Without the bowel perf I wouldn't have had the bad parts removed so I'd still basically be bleeding little bits everyday and battling anemia.

I've been really tired lately and I don't have anything to blame it on right now. I'm wondering if my b vitamins and D levels are adequate. I've also been working a ton of 12 hour shifts at work lately too. So I guess it could be genuine tiredness.

Anywho. Thanks Stuey... it was nice knowing you!! I have a CT scan in 6 hours (assuming it will have an enema cause I'm not sure how they will see my un-connected part) I did call to ask if maybe they could put contrast in my mucus fistula but the lady said my case was still in protocol so she didn't know. The reversal with a splenic flexure resection is on January 28th provided the CT scan comes back alright.
01-16-2013, 02:34 AM   #2
Terriernut
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It's amazing what a stoma CAN do for people. (once we get the 'wobbles' out of the way. And yet, most people fight it like it was the most horrible thing on earth to keep it from happening.

I am so glad you are healing up so nicely! As for the fatigue, 12 hour shifts would do that to anyone. But I do think you should have all your vitamin levels checked.

Onwards and upwards!!
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Misty
DX Crohns Feb 2011, symtoms 1997, 2009 and then WHAM! Emergency surgery for perforated sigmoid, fistula through fallopian tube, septic and near dead: Colostomy-Stan was born 22/12/10. Another parastomal hernia, his name is Ollie and he is MONSTER size!
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01-16-2013, 07:49 AM   #3
Jaano711
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Good for you Katiesue, I hope all works out and you can farewell Stuey.

Yep those 12hr shifts will knock you around. Try get some rest before your reversal.

Fingers crossed for you
.janette
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01-16-2013, 08:53 AM   #4
2thFairy
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wooHOO!! Way to go Stuey and katiesue! You two make quite a team.
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Ulcerative colitis

Total colectomy with ileostomy featuring Sideshow Bob since January 2012

"The colon seems an unlikely candidate for dramatic effect, but now and then it serves that purpose well." The Associated Press Guide to Punctuation
01-17-2013, 02:40 PM   #5
Misty-Eyed
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Wow that's great! I hope it continues that way after the reversal!!!
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Michelle

'You can't change the past but you can ruin the present by worrying about the future.'

Diagnosed with Crohn's colitis aged 9, 1992.

Panproctocolectomy and terminal end ileostomy October 2011.
01-18-2013, 12:25 PM   #6
Gav
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Good news! Good luck with the CT. Hope all goes well and the reversal is able to go ahead as planned!
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UC diagnosed 2003. Sub total Colectomy resulting in ileostomy July 2007. Proctectomy February 2008. Late 2008...finally back in business!
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01-18-2013, 12:46 PM   #7
katiesue1506
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Thanks, the CT SUCKED.

So I had to have an enema due to the ileostomy, so they could see the lower portion of my bowels. I asked if they could put it in through my mucus fistula and they brought a doc down to administer the Volumen via fistula. The doc asked if I had any disease involvement with my colon and I told him about my splenic flexure stricture. He goes "well, we can try it but theres a possiblity it will go down to the stricture and come back up all over your stomach. So I just told them to go for broke and do the enema. Not so bad-- till the tech put too much in and it ended up coming out my mucus fistula anyways.

I kept telling her that I thought I was full enough but she insisted that she had the tube clamped off. I told her I could feel it still going in. "no no, its clamped off". Then the spillage occurred and she goes "oh, must've been still running". Rawr.

Anyways, I have had a CT before with the IV contrast, but I don't remember it causing basically a panic attack. I remember the hot feeling and the "I peed my pants feeling" but this time it was more of a chest heat and I felt like I couldn't breathe. It really felt like a panic attack, so I just talked myself through it and tried to slow my breathing as best as possible.

Anyways. Its over and I'm glad
01-19-2013, 04:46 AM   #8
Gav
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Sorry to hear that the CT was such a painful experience KatieSue.

Good on you for taking control with the panic attack and sorting it out yourself. That could not have been easy at all.

Fingers crossed getting the results of it are a much better experience!
01-27-2013, 09:24 PM   #9
katiesue1506
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Say goodbye to stuey. Tomorrow he rests in peace. Wish me luck!
01-27-2013, 09:30 PM   #10
Nyx
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Good luck tomorrow!!!
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Crohn's Diagnosis: May 2006
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Oscar is awesome! Loving my life with my stoma (with a hint of poo)!!

01-28-2013, 12:39 AM   #11
annawato
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Best of luck for tomorrow Katiesue, keep us posted with how you go.
This is for Stuey for making you better
And this is for you for after the op.
Can you tell I love using these emoticons?
Anna
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Anna

you name it, i've tried and failed it! currently on- waiting to see whats new and reducing pred
temp. ileostomy reversed feb 2011, new ileostomy, nov 2012
4 resections plus removal of adhesions etc, recurrent intestinal abscesses
lyme disease, depression, sacroileitis, chronic pain and......Crohn's..........
01-28-2013, 01:53 AM   #12
Terriernut
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Good luck!!!!!!!!!!!!
01-28-2013, 02:27 AM   #13
Minionaire
 
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Good luck katiesue!
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Dx - Crohn's colitis, 2005

Pan-proctocolectomy and end ileostomy surgery. Alf the stoma born 23rd Feb 2013.

Re-Dx - Ulcerative Colitis, Mar 2013 (Post surgery pathology on my removed colon concluded my "Crohn's" was actually UC!).

My surgery blog: http://davesbelly.blogspot.com
01-28-2013, 08:38 AM   #14
2thFairy
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Best wishes, katiesue!!
01-28-2013, 02:32 PM   #15
Destiny
 
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Good luck Katie !!
01-29-2013, 12:46 PM   #16
Terriernut
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Hope you are doing OK after surgery Katiesue???
01-29-2013, 01:57 PM   #17
Gav
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Hope it all went sell Katiesue. Hoping we hear from you as soon as you are able to update us!
01-29-2013, 05:32 PM   #18
GrantC
 
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Hi Katiesue. Hope all went well with the reversal.
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Diagnosed in May 2012- symptons since 2004 (IBS anyone?)

Ileostomy and Right Hemi in October 2012 due to large stricture in Caecum and over dilation of small intestine at IC valve.

No Crohns meds yet, but on Loperamide and Omeprazole for consitency and acid.
01-29-2013, 06:45 PM   #19
katiesue1506
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Going pretty decently. My surgeon ended up taking about a foot of my large intestine that was strictured and she reversed the stoma. Still have a fair amount of pain. Still a little groggy. Just had my ng tube removed too which was nice.
01-29-2013, 08:07 PM   #20
JennaRae
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The NG tube is my mortal enemy!
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01-29-2013, 09:23 PM   #21
annawato
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Glad to hear it all went well and hope the pain is manageable.
Did you have to get opened up the middle? Actually, silly question since they removed a foot of your intestine!
Lots of get well hugs from OZ,
Anna
01-30-2013, 02:00 AM   #22
Terriernut
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Thanks for updating us Katiesue! So what should've been a 'whip and snip' became another surgery it sounds like? But hopefully all this will give you a loooong remission. Digits all crossed for a very quick recovery for you!

Thats certainly my hope for you!
01-30-2013, 06:45 PM   #23
katiesue1506
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I'm still progressing, was able to walk a couple times today and use the restroom on my own (no bm yet). Still in a fair amount of pain. I didn't eat much of my liquid trays because my roommate was pooping the bed all night and day. They finally moved her after she tested positive for cdiff. Let's hope I don't need to go down that road too. Tomorrow I will probably transition to solids later in the day.
01-30-2013, 07:52 PM   #24
Terriernut
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So good to hear from you!

No Cdiff for you girlfriend! Don't even think that! (shudder) Your bowels will wake up in their own good time. (mine are quite 'lazy' after surgery) Try gum to wake them up....if you dare.

But better to take it easy, you wouldn't want to have to run while in pain after all. I'm hoping the pain will fade for you very soon sweet lady.
02-03-2013, 05:37 AM   #25
GrantC
 
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Hi Katiesue. How are things going?
02-03-2013, 08:30 AM   #26
katiesue1506
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I'm doing pretty well, I got to come home Friday and I'm currently only using Tylenol for pain. I'm in a bit more pain than I'd like sometimes but I refuse to use oxycodone. Eating is getting easier and I'm just waiting for my stools to sort themselves out. I plan on returning to work light duty on February 10th.

Thanks for asking!
02-03-2013, 08:37 AM   #27
GrantC
 
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Good to hear it is going well. That's quite quick to return to work? My surgeon said at least 4 weeks. That is quite a positive way forward.
02-03-2013, 08:41 AM   #28
2thFairy
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wooHOO! katiesue!! Glad you are home and seemingly doing well. Take it easy on the whole going back to work thing. If you overdo it at this early stage, it is double hard to recover.
02-03-2013, 02:00 PM   #29
Nyx
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Glad to hear you're doing well...take it easy!
02-03-2013, 05:42 PM   #30
annawato
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Great news KatieSue! How long were you in hospital? 4 days? you're a lot tougher than me!
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