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Crohn's Disease Forum » Surgery » Stoma Subforum » Stoma Support: Good advice for you!


 
01-16-2013, 06:06 PM   #1
Terriernut
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Stoma Support: Good advice for you!

Here is a requested thread for good advice for new or old members to post. I'll sticky it so it's at the top. Come on everybody, post your advice whether it be for rings, odour control, favourite manufacturer, longer wear advice, whatever you think could help everyone.
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02-04-2013, 03:14 PM   #2
2thFairy
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Eating seafood is just as stinky, if not more so, going out as it is going in.

Eating beet root gives you a pouch that appears to be full of blood, but everything is just fine. Would make for a great Halloween prank, though.
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02-04-2013, 03:18 PM   #3
2thFairy
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My stoma has a good spout on it that hangs down when it is not active. I had a hard time figuring out a good way to apply strip paste when changing it, so the stoma nurse told me about using a square of guaze wrapped around it. It works great for moving Sideshow Bob out of the way and also catches spurts while going through all of the steps for a bag change.

Also, don't be afraid to handle your stoma, just be gentle. They do bleed easily when bumped, but the bleeding generally subsides within a minute or less.
02-04-2013, 03:38 PM   #4
Terriernut
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Don't forget with a new stoma that they will shrink! Measuring your stoma every time you change the baseplate or bag is very important for the first 6 weeks. (it can shrink for a longer period too) You will save yourself alot of leaks and sore skin if you do!

Don't cut the opening too tight! (causes leaks!) Nor too large. (Causes leaks!) It should fit very nicely around your stoma, but not squeeze it.

If you have just had surgery, and have to care for the wound as well, remember stoma first, dressing second.
02-04-2013, 03:46 PM   #5
Gav
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Good thread!

For me, eating mushrooms causes a big build up of food around the stoma on exit. Only mashing them down to next to nothing while eating alleviates this!

If using stomahesive paste around the stoma, try applying it around on the wafer instead around the hole you cut just before sticking it on. I find it's a lot more accurate and easy to do.
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02-04-2013, 08:15 PM   #6
annawato
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If you have excoriation (sore, weeping skin) use a little bit of stoma powder, brush off excess and then dab with skin barrier before applying flange (baseplate).
Always make sure skin is dry before putting skin barrier on and that that dries before applying flange. I use a few layers of skin barrier, drying between each coat with a hairdryer. i use welland skin barrier cos it doesn't sting and it stays moist to do a few layers.
Paste to stop leaks stings on sore skin but it only lasts a few minutes and its worth putting up with cos it helps prevent leaks and also helps heal the skin. If you just can't bare it use a ring like eakin seals but I find I always get leaks with seals. Other people find them good. (i think).
If you are getting leaks, look at the baseplate when you remove it - you can see where the output has escaped and then know to use extra paste in those spots. My stoma nurse told me today that the flange sticks well to the paste (just don't cover the whole area). I'll let you know tomorrow if this is true cos she put on more than I've ever used before!
And as Gav said applying paste to flange is a lot easier unless you are using it to fill scars or creases.
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02-04-2013, 09:44 PM   #7
JennaRae
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Put your base plate, (wafer, barrier,) what ever you want to call it, and or rings in your bra while your getting supplies ready to change. It warms them up and makes them stick better!
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02-04-2013, 10:27 PM   #8
PsychoJane
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I've always hated to sit down on the toilet to empty my pouch so I started using the disposable closed pouches and empty them from the top. It seems messy but it is less messy than emptying it from the "normal" down side with the ones that you can empty. I am a huge fan of coloplast sensura product. It is so far the only ones that has proven a 100% odor protection for the time desired. I can get 5-8 days out of them even though they are meant to be disposable.

When I really need odor protection for the fear of embarrassment, I carry some peroxide in a hair spray travelling bottle that I spray in my bag. It helps reducing the smell the next time. That along with drinking a coffee at the end of my meal, it helps a lot. Then you toss some incense match/paper and you are good to go.

Before emptying, put a few pieces of paper on the water, it avoids noise and splashes.
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02-04-2013, 10:29 PM   #9
Dukeis
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Put your base plate, (wafer, barrier,) what ever you want to call it, and or rings in your bra while your getting supplies ready to change. It warms them up and makes them stick better!
So you're saying I'll have to start wearing a bra after surgery?
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02-04-2013, 11:06 PM   #10
2thFairy
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Yes.

Hahaha!
02-04-2013, 11:36 PM   #11
annawato
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So you're saying I'll have to start wearing a bra after surgery?
02-06-2013, 07:57 PM   #12
JennaRae
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Lmao! 😄
02-06-2013, 07:59 PM   #13
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I sit on the toilet sideways, with my stoma side facing the bowl. That way when I empty, the pouch is hanging right over the bowl.
02-06-2013, 08:02 PM   #14
JennaRae
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Oh! And I prefer to wear my pouch out of my pants but its annoying when people stare at it so I bought some pouch covers that we're custom made to the size of my pouch. They had a ton of different fabrics and now it just looks like some fabric hanging out from under my shirt.
02-06-2013, 08:14 PM   #15
2thFairy
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Oh! And I prefer to wear my pouch out of my pants but its annoying when people stare at it so I bought some pouch covers that we're custom made to the size of my pouch. They had a ton of different fabrics and now it just looks like some fabric hanging out from under my shirt.
Same here, JennaRae! And my doctor complimented me on my way cool pouch cover.
02-06-2013, 08:21 PM   #16
JennaRae
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Lol! Good doctor! I think it's much more comfortable that way and I can coordinate with my clothes lol
02-09-2013, 04:56 AM   #17
annawato
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where do you get your pouch covers cos i like to do that too.
02-09-2013, 10:10 AM   #18
JennaRae
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I get mine at Gus gear.net they have a bunch of fabrics and can find one for you if you want something specific. They're custom made to your bag. I got mine for $17.95 a piece I believe.
02-09-2013, 10:21 AM   #19
2thFairy
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I got mine at pouchpals.com for $13.00. I don't think you can't get them shipped to Australia, however.

http://www.pouchpals.com/ostomy.htm
02-09-2013, 10:26 AM   #20
2thFairy
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OOoo!! I found this for you, Anna! "Australian made ostomy covers"

http://betweenyouandme.com.au/catalo...terns-5-1.html
02-10-2013, 06:56 AM   #21
annawato
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If you are having problems with liquid output the first thing to try is loperamide with your doctors approval. You can also thicken output with dietary changes such as peeled apples and apple sauce, marshmallows, bananas, rice, pasta and noodles, smooth peanut butter, sago and tapioca, white bread and plain biscuits/crackers, jelly products.
Basically any soluble fibre will help as it absorbs liquid. Google soluble fibre to find choices that agree with you remembering that for 6-8 weeks post surgery you need to be careful about what you eat so you don't cause blockages.

Metamucil or benefibre are made from soluble fibre so can help - sounds counter intuitive I know since they help constipation, but the hospital put me on to them.

And yes I can hear everyone laughing since despite the above advice and following it I still have liquid output. I'm beginning to think its all the tea I drink - its got to come out somewhere but its so much more pleasant than water, or worse, the sweet salty water I am supposed to drink!
02-10-2013, 07:09 AM   #22
annawato
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if you have a high output you need to be especially vigilant about keeping up your fluids. My gastro gave me the following recipe -
1 litre (just over 1 1/2 pints) water
8 teaspoons sugar
1 teaspoon salt
juice of a citrus fruit

or, 300ml (1/2 pint) powerade or sports drink
300 ml water
1 teaspoon salt

you should aim for 2000- 2500 mls (3-4 pints) of liquid each day. Caffeine drinks dont count and 2 litres of it should be from gastrolyte or powerade mixture.
Liquids include water, cordial, juice, milk, soup, soft drink (soda), nutritional drinks, sports drinks, mineral water.

Good luck keeping to this, perhaps high output is easier to deal with, but you do need to be aware of electrolyte problems if you have a high output. Adding salt to everything helps unless you need to medically follow a low sodium diet in which case talk to your gastro or hospital nutritionist.

Last edited by annawato; 02-16-2013 at 05:56 PM.
02-13-2013, 07:27 PM   #23
annawato
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Below are a couple of links to youtube vids about how to change your ostomy. There is also a very good thread on this forum titled 'how do you change yours' that may be helpful
http://www.youtube.com/watch?v=l9PYMfqNGm0
http://www.youtube.com/watch?v=bpGfcd7RL4o
03-14-2013, 04:20 AM   #24
maria
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Eating seafood is just as stinky, if not more so, going out as it is going in.

Eating beet root gives you a pouch that appears to be full of blood, but everything is just fine. Would make for a great Halloween prank, though.
SOoo Funny I did that to a nurse freaked her out!! but it was just juice
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03-14-2013, 05:42 PM   #25
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Hi! I agree with Terriernut that it's important to check/ measure the stoma size, but in my case it's got bigger not smaller (according to the stoma nurse that's not uncommon?). I started off at 35mm in hospital, which went quite quickly through 38mm (first check up) and then jumped to 50mm by my third check up. When I saw the stoma nurse this week (because my skin is sore and bleeding) as well as help and advice on this she also measured again and recommeded a further increase to 55mm! At this rate (I've only had the stoma six months) I think I may end up with a drainpipe!
03-21-2013, 10:38 PM   #26
Jaano711
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For yeast/ fungal skin infections around Stoma try myalanta. Just dab it on wit a cotton ball, then use a hair dryer to dry the skin, I also sprinkle on some 'resolve' foot fungal powder, blow off the excess and then dab on skin barrier like cavilon before applying flange.

Fingers crossed it seems to be working at the moment.
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04-11-2013, 08:06 PM   #27
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immodium helps on a night out to slow down output

I sometimes eat a bananna or marshmellows if i wanna slow down for a change

I used to drop an altoid in my bag for the smell at first. now i dont even smell it when i empty, besides the more you do it the faster you do it.

I put a little piece of papertowel in the fold because i get some kind of poo condensation when i unfold. does anyone else get that?

Eggs smell horrible! I wear a two piece to let out gas easily....hmmm what else?

thats all for now, hope it helps someone lol
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06-17-2013, 01:26 PM   #28
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My stoma is oddly shaped and we weren't getting good results trying to measure it. My girlfriend took some tissue paper (the gift wrapping kind, shiny side toward the belly) and pressed down...voila! Instant outline! We went just outside the wet with a fine sharpie and then transferred to cardstock paper. Boom. Custom template, easy as 1..2..3.
06-17-2013, 01:34 PM   #29
2thFairy
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My stoma is oddly shaped and we weren't getting good results trying to measure it. My girlfriend took some tissue paper (the gift wrapping kind, shiny side toward the belly) and pressed down...voila! Instant outline! We went just outside the wet with a fine sharpie and then transferred to cardstock paper. Boom. Custom template, easy as 1..2..3.
That's really smart. Great idea!!
06-17-2013, 02:01 PM   #30
davmor
 
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Well, my stoma has continued expanding - longer and wider - now having to cut to 60mm and have had to change to a new (70mm) flange two-piece bag as the flange on the smaller system was digging in to the stoma. Apparently (two stoma nurses have told me) this is due to my (loop) ileostomy becoming prolapsed. It hurts most of the time now - and particularly if I cough or sneeze - and I've had to give up lifting anything even moderately heavy as I can feel it push out (and hurt) more. I'm waiting to see the surgeon again, but have to wait for two more months before I can get an appointment (I'm glad the NHS covers the cost, but the system is terribly slow if you're waiting for an operation). Ah well, just to have to be a patient patient I suppose!
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