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Crohn's Disease Forum » Treatment » Low Dose Naltrexone » Anyone in Australia using LDN for treatment?


01-17-2013, 08:41 PM   #1
rollinstone
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Anyone in Australia using LDN for treatment?

Hi guys and girls, just wondering if there are any Aussies using LDN as a treatment, and if so, how are you finding it. My GI says its not approved here yet, and my GP won't prescribe it off label.
01-18-2013, 07:28 PM   #2
scottchopchop
 
Join Date: Jan 2013
Location: Stillwater, Oklahoma
Drop Crystal Nason an email. She keeps a database of LDN doctors. She might have one in Australia. If she doesn't and you happen to find one, she would definately want to add that to her database.

Crystal has MS and uses LDN
[email protected]

Crystal's MS,TM & LDN Website
- http://www.freewebs.com/crystalangel6267/index.htm

Crystal's LDN Support Group - http://health.groups.yahoo.com/group/LDN_Users/

Crystal's FaceBook - https://www.facebook.com/AngelInDisguiseLDN
01-18-2013, 07:30 PM   #3
scottchopchop
 
Join Date: Jan 2013
Location: Stillwater, Oklahoma
You can also order it from Canada thru River Pharmacy without a prescription. They send you the full strength Naltrexone and tell you how to easily dilute it to make LDN (low dose naltrexone)
https://www.riverpharmacy.ca/faq/wha...naltrexone-ldn
01-18-2013, 08:07 PM   #4
rollinstone
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Cheers, I swung her an email, I don't think im game enough to make my own though
01-18-2013, 08:58 PM   #5
scottchopchop
 
Join Date: Jan 2013
Location: Stillwater, Oklahoma
It's easy. I have done it before. Lot's of people do it. If you look online, some think that the "make it your own" version is more effective because it is liquid and absorbs better....others think the opposite. But it is completely safe...no dangers at all. There is an interview with Dr. Bihari somewhere, and he says that LDN should be considered more a vitamin than a drug....meaning that it is that safe...no side effects, very few interactions with other drugs, etc. Any hoot, hope Crystal has a name for you.
01-21-2013, 10:00 AM   #6
scottchopchop
 
Join Date: Jan 2013
Location: Stillwater, Oklahoma
Joshuaaa, I contacted Helen at Dr Myhill's office in England. She did not know if EPD (called LDA Immunotherapy in the USA) was available in in Australia, but she gave me a list of doctors in the UK that use EPD. She said to contact them, and at least one of them would know another doctor in Australia. Doctors that use EPD/LDA will most likely also use LDN (low dose naltrexone)....anyway here is the list of EPD doctors in the UK. It is broken up into three links:

https://docs.google.com/file/d/0B0-U...RtWXhYOGs/edit

https://docs.google.com/file/d/0B0-U...1qOHhjX0E/edit

https://docs.google.com/file/d/0B0-U...FMUkxpVG8/edit
01-21-2013, 04:55 PM   #7
rollinstone
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Thanks my friend
01-23-2013, 02:06 AM   #8
Jessasha
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Join Date: Jan 2012
Location: South Australia, Australia
Hi Joshuaaa,
I,m near Adelaide and have just been prescribed it. You could try googling compounding pharmacies in your area and ask them which docs are prescribing it.. As these pharmacies usually have to make it up or you..
Cheers
01-23-2013, 03:14 AM   #9
rollinstone
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Thanks for that, let me know how you go on the LDN?
01-24-2013, 11:39 PM   #10
SJF
 
Join Date: Jan 2013
Location: Victoria, Australia
I ordered it for my wife from alldaychemist and she'd tried it for a few months with limited success.

Just put 1 50mg tablet in 50mg of distilled water. It's 1mg per ml then.
01-24-2013, 11:43 PM   #11
scottchopchop
 
Join Date: Jan 2013
Location: Stillwater, Oklahoma
SJF...do you happen to know if any doctors in Australia are using LDA Immunotherapy (or EPD as it's known in Europe)?

Here is the LDA Immunotherapy thread
http://www.crohnsforum.com/showthread.php?t=45977
01-24-2013, 11:53 PM   #12
SJF
 
Join Date: Jan 2013
Location: Victoria, Australia
I've done alot of reading, but I've not heard of LDA Immunotherapy. Very interesting.
01-24-2013, 11:56 PM   #13
scottchopchop
 
Join Date: Jan 2013
Location: Stillwater, Oklahoma
Well, it has been amazing for me. My doctor uses LDA Immunotherapy (EPD) and LDN (low dose naltrexone) together. He thinks they are actually synergistic. I know some other in Australia were interested to know about LDA Immunotherapy, but as of yet we can't determine if it is available or not. If you happen to stumble upon a doctor using it, please post it.
01-24-2013, 11:59 PM   #14
SJF
 
Join Date: Jan 2013
Location: Victoria, Australia
Very interesting to know. I know that GI's are quite reluctant to prescribe LDN here. My wife's Dr. said he was happy for her to try it, but he wouldn't prescribe it to her. So we resorted to the internet.

She's currently on the GSK1605786A clinical trial (which has been going pretty well). After failing with the majority of traditional drug treatments.
02-07-2013, 06:06 AM   #15
Jessasha
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Join Date: Jan 2012
Location: South Australia, Australia
SJF, My naturopath prescribed it for me, you could try and find one that specialises in gastric conditions like mine.. After not being able to tolerate all the other meds he suggested LDN, My specialist was reluctant to prescribe it to.
02-07-2013, 06:15 AM   #16
rollinstone
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Thanks for the response, how long have you been on LDN for?
02-08-2013, 06:34 AM   #17
Jessasha
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Join Date: Jan 2012
Location: South Australia, Australia
Only a couple weeks now, hoping all goes well.. Good luck with your search for LDN.
02-09-2013, 05:42 PM   #18
Paulob
 
Join Date: Feb 2013
Get in touch with this compounding pharmacist in NSW. Search google for Ballina Compounding pharmacy. They have a good web site.
They will let you know drs who prescribe. They post all over Aust. Mixing yourself will make dosing unreliable.
12-16-2013, 06:10 AM   #19
Rypen
 
Join Date: Mar 2012
Location: South Australia, Australia
Jessasha I'm in port augusta in sa and am looking for someone to help prescribe Ldn for my 6 year old. Can you give me your naturopaths details if that's okay. We are desperate to get my son off imuran
12-17-2013, 02:42 AM   #20
Jessasha
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Join Date: Jan 2012
Location: South Australia, Australia
Hi Rypen,
Professional Integrative Medicine
226A Glen Osmond Road, Fullarton, SA, 5063
Phone: 08 8379 1124
Dr Timothy Hall
He is very booked so get in as soon as you can. Phone consults are also available to country patients.
Good luck, hope all goes well with your son.
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