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Crohn's Disease Forum » Treatment » Enteral Nutrition & TPN » Questions about Modulen (UK)


01-19-2013, 11:20 AM   #1
Jordyi
 
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Join Date: Sep 2012
Location: Leeds, United Kingdom
Questions about Modulen (UK)

Hi, I'm a 20 year old male living in the UK. I was diagnosed with Crohns in July but have just got around to having an appointment with gastro at my local hospital during the winter break home from University and they have put me onto modulin for 8-10 weeks. I have a few queries though..

Firstly, can I eat any flavour/colour Jellies? I know before a previous colonoscopy I was only allowed clear jellies, but I'm not sure how this works?

It also says I'm allowed "Jelly sweets". I'm not sure what it means by this... Me and my mother think it means the standard fruit jellies you can get from supermarkets that don't contain sweeteners/ E numbers. But as I say, I really don't know...

Also, I'm aware I'm not allowed juice with sweeteners in them but what are the limitations with this? My mother bought me Ribena and I've read the ingredients and it seems fine, but I can't help but feel that it's too... artificial? If that's the right word?

Any help would be much appreciated.

- Jordan
01-21-2013, 06:43 AM   #2
SarahD
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Location: Cambridge, United Kingdom
Hi Jordan,

Have you seen a dietitian at all? Modulen is usually prescribed through a dietitian and they can answer questions like this. Generally enteral nurtrition (like Modulen) is given as a sole source of nutrition meaning that nothing else but the EN and water are consumed. I've heard of others being allowed things like clear mints and jelly whilst doing EN but the advice varies from one dietitian to the next.

Sarah
__________________
Symptoms from the age of 12. Mis-diagnosed with UC at the age of 13, and later diagnosed with Crohn's in January 2012 at 24 years old. Disease mainly in terminal ileum.


Current meds:
Azathioprine, Allopurinol, Calcichew D3-Forte, Fortijuice, Alendronic acid, Ranitidine

Previous meds:
Augmentin, Doxycycline, Lansoprazole, Asacol, Pentasa, Prednisolone, Entocort, Cipro, Flagyl, Elemental Extra 028
01-22-2013, 02:56 PM   #3
Jordyi
 
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Join Date: Sep 2012
Location: Leeds, United Kingdom
Hi Sarah,

Yeah, I have seen my dietitian and have started on modulin. Now on day 4...

I've just started and so I have all these questions that I don't know the answer to. I have an information leaflet and whatnot that covers the basics but I'm not sure when it comes to these things...

I know I should probably just phone my dietitian and ask but I see her again on the 31st so there's not much point in calling to ask about these things. I just thought I'd see if anybody knew anything in the mean time being curious and all haha.
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