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Crohn's Disease Forum » Tests for IBD » Barium enema test, good idea??? help help


01-20-2013, 11:41 AM   #1
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Barium enema test, good idea??? help help

hey all I'm Ayana,

I'm 20 years old and headed back to college this coming saturday, so the chances of me getting anymore tests done is highly unlikely. I have had crohn's disease for a bit over 6 years now and have not been in remission. over the past few months it's gotten a lot worse, I'm still in serious pain everyday, now I have sharp pains, everytime I eat or drink I hurt really bad and am naseated, I know I'm loosing blood when I go to the bathroom, I cant eat meat, veggies, fruit, seeds nuts, things that are greasy or carbonated drinks. My doc thinks its IBS i know its not, I dont know what kind of tests I shold request to have done, I already had an MRI and bloodwork, the MRI showed nothing and the bloodwork said my iron is low, and my inflammation is up. I have been trying to figure out what kind of test would show the problem, i think the barium enema test might, but I dont know, maybe the one where you drink the barium, a scope???? I'm a bit scared, but I hide it so no one knows to the extent of how i feel.

I already have had 2 major surgeries in less than a year, I really dont want there to be a suprise 3rd one in an emergency situation. I'd love to hear from you all please.
01-20-2013, 12:24 PM   #2
Clash
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I responded in your other thread and mistakenly thought you were referring to an SBFT. Maybe someone will be along shortly with more info on the test you are considering.
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01-20-2013, 12:32 PM   #3
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I really hope so.
01-21-2013, 11:57 AM   #4
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How was your Crohn's diagnosed before? Or was it never an offical diagnosis?

Biopsies from a endoscopy or colonoscopy are usually a good way to get diagnosed or rule IBD out, though I know other people here got diagnosed through other tests.

As far as I know barium tests (of the upper and/or lower digestive tract) can detect Crohn's or other abnormalities, but don't provide as much information as scopes. They're less invasive though.
01-21-2013, 01:08 PM   #5
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I don't remember if it was a blood test, or my first scopes that was the diagnosis. I have had crohn's for 6 years now, never been in remission, even after my surgeries. I think my doc was thinkin about a scope, both endo and colonoscopy, I have to get both done the same day, but she isnt being very helpful. I just had an MRI that showed nothing, of course, and bloodwork, that showed some stuff was off but she just wants to repeat that in a month. scopes for me, have never shown that I needed surgery, even when they couldn't get into my terminal ileum. I am nervous that I might have something worse than stricturin again, like a fistula or something (i had a fistula before but it somehow corrected itself). Im having weird pains that arent the normal ones, on the left side more than all over, as always but it hurts more. I don;t know what kind of tests are going to show a stricture , I forget which ones work because I have had to get to many different ones. I have been managing my sich, but sometimes the pain is too much to be that strong for.
01-21-2013, 01:25 PM   #6
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Don't have a barium enema without the express wish of your gastroenterologist.
GI specialists do not usually like this type of exam.
My GP ordered one on me in the absence of my GI, and reluctantly I had to undergo this test which was extremely painful and almost unbearable at times, I could hardly move on the xray table.
Finally when the GI found out he almost exploded and said never to allow this type of exam. He phoned my GP as well who did regret doing it.
I ended up with various complications and hospitalisation.
Go to your GI first and take their advice.
Usually the gold standard for diagnosis is colonoscopy with biopsies.
There are other tests that can be done and this would be up to your GI specialist.
You could also get another GI opinion if you do not have confidence in your present gI.
Feel better soon
Hugs and best wishes
Trysha
01-21-2013, 01:54 PM   #7
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Oh wow!! I'm so sorry you had to deal with that, sounds horrid. I don't have confidence in my present GI who is in children's hospital of pittsburgh, but I have another one close to campus when I'm up by phili for school and he says the same stuff she said, that it's just ibs and they can't do anything for me. I just don't believe that because if it's just ibs, I don't think I would have all of these symptoms. I was talking to my GI at school about my health and I said I'm managing, during the week days I only drink starbucks coffee, tea, and a lot of water, and that's the only way I'll make it to class, and I eat on the weekends because I don't usually have a class and I can just be sick in my room. I'm frustrated because I feel like nothing has been accomplished this winter break, and I'm goin back to school, worse than when I came home. I have blood in my stools which hasnt happened for a while and I dropped 7 pounds in a week. I'm usually tougher, but honestly I'm kinda scared..
01-31-2013, 11:11 AM   #8
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I'm not going to comment on the effectiveness or appropriateness of Barium Follow Through X-Ray's as i simply don't know. Simply report a different experience with this.

My son Liam who is 10's GI ordered a Barium Follow Through XRay. He had this done today. Liam drank the solution without complaint and although he experienced significant pain during the test, it wasn't obviously any worse than the pain he's been experiencing all week. The process took 5 hours, but the tests we're done in 5 sets and we we're allowed to get up and walkaround, go out for coffee and even leave the hospital between the sets. It wasn't at all the ordeal I'd expected and this evening he's in better shape than I'd expect him to be at the end of a normal day at school.

The radiologist said we should be able to pick up the report in 2 days.
01-31-2013, 12:11 PM   #9
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I have had the upper gi before (i think it's called that), thats how they found that I had a fistula and my first stricture i think. My doc hasn't done that test, or any for that matter, in a while. I had an MRI that showed nothing. I am hoping, weeks from now, when I have my endo and colonoscopy that it will show a problem. it takes a while for them to find out what's wrong and causing the problems. Good luck to you and your son, wishing you the best.
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