• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Hey all- just a newbie!

Hi everyone!
I've been reading all the posts for a while now and this forum is great. I have learnt so much and had some great advice (thanks Pen!). Because all of my friend's are at the pub tonight and my intenstines are having a little snack on themselves I thought I may as well introduce myself. My name is Jackie and I was diagnosed with Crohn's in April. For the past 4 years I had had random pains in my stomach and vomiting but it usually only lasted a night or two and because I was travelling I just thought it was food poisoning. Then it continued when I got home. In January it started again and this time it didn't stop. Got the usual run around that preceeds a crohn's diagnosis- ulcer, gallbladder, appendicitis, tuberculosis (WTF?!). Continued to work through this as I was on a casual contract and didn't get sick pay. Have no idea how I was getting up in the morning. One day I couldn't do it anymore. I was in foetal position and couldn't move. My housemate (and good friend) was home after being away on and off for a few weeks. I went out to say hello and moving just angered the crohn's beast! By this point I'd lost 13 kgs and looked a little skeletal. I was biting the couch in pain and then vomited cartoon green spew. His response "dude I think you need a hospital' Indeed... Spent 9 days in hospital where i learnt that:
a) Flagyl makes me vomit
b) Steroids make me psychotic
c) Scottish doctors are hot:) Hmm but I digress

Anyways to cut what is turning into a long story short, I went home had 2 weeks off and went back to work high as a kite on 50mg of roids (I'm a school teacher and I suspect lessons took on a manic twist...) Then eventually the pred turned my into a fat psycho:voodoo:

It has been an interesting year some might say. Others would say just plain f$% (and they would be right) I'm feeling a hell of a lot better than I was. It has been very life changing though. I was looking to work in development in foreign countries. That's the area of education I specialised in. I have a job interview in January to work for the governemnt os but I must pass a medical. Hmmm. Anyways I will be gutted if I can't follow my dream career but I guess it isn't the end of the world and plenty are worse off than me. So if it doesn't work out I will head to Canada next year. Travelling is my favourite thing in the world. Sorry this is so long! It's quite cathartic writing here...

Thanks for all the great info! I'm so glad I found this place

...almost as good as being at the pub:(

cheers
Jackie
 

soupdragon69

ele mental leprechaun
Hi Jackie,

Good to see you found us! Welcome!

So you have joined the "crackers and on pred club" lol Know the feeling very well and am just coming down off them yet again at the minute so will be very happy when they are gone!

Crohns can have a big impact on your life but its up to you how you allow it to... you sound very much a glass half full person in general so you will manage through the ups and downs. Good to see you have contingency plans if the dream job doesnt come through. I am in my dream job but know it will come to an end at some point as it exhausts me greatly. In the meantime I enjoy it and obtain great satisfaction from it too.

Half the battle however is knowing what is wrong finally and at least you can now look at diet and meds that will help you pick up.

Post as long and as much as you like - we all listen and we all understand. Keep asking here and of your medical team as the more info you have the better you understand what they are trying to do and also you can monitor how you feel in relation to anything they start you on. Looking forward to seeing you around.

Welcome again!
 
C

catfud

Guest
Hello Jackie welcome to the forums loving your positive attitude. It's seeing this kinda of outlook from fellow crohnies that has given me the strength to better deal with CD.

I'm on pred at the moment and well my mental state isn't quite a 100% lol. Had a situation recently where I was in Tescos with some friends food shopping and I had quite a lot of trouble controlling myself hehe.

You have lots of friends here ready to help you through the good and the bad :)
 
welcome to the forum Jax!
know exactly where youre coming from with the pred, not on it anymore but it def turned me into such a psycho crazy lol. hope that you can start weaning off soon!
my best to you! :)
 
T

TummyTroubles

Guest
Scottish Doctors are hot?!?! Can I be seen at your hospital?
Haha
 
Thanks for the warm welcome!
It is very comforting to know I am not alone in crohn's and pred craziness. I try and avoid supermarkets as I think I would be found in one of the isles stuffing my face! There's a certain irony that pred is used to treat tender intenstines and makes you eat and eat and eat. And keeps you awake 24 hours. That's 24 hours of eating with wild and reckless abandon... I remember burning a chocolate candle and it smelt so good I wanted to take a bite. I'm like 'no! control yourself! ':)

It's early days but I am slowly coming to terms with what this disease means. I think I am close to remission now but I get anxious worrying when it will come back. I have never felt pain like that has lasted so long. It's mentally exhausting to be in pain continually for so long and I need a little reprieve before its return. I am banking on a 15 year remission though :)

Thanks again everyone! I look forward to getting to know everyone and learning alot more!

Cheers,

jackie
 
Hi Jackie and welcome! I havent had a Scottish doc but I had a really cute English guy! ;)

Your story about the choc. candle made me laugh! :D I dont get hungry on Pred but I am most def. manic! My sleeping is hopeless, no matter how tired I am! It should wear off if/when you get off it, although I seem to be stuck on it cos I go downhill fast without it.

Not too well atm, but I wanted to stop and say hello. :)
 
hi Jax & welcome to the forum :D

love your positive attitude and sense of humour, despite all the trials and tribulations Crohns has brought... seems to be a common trait in many of us, like a refusal to bow down to the Crohns Monster.

i hope you get to live your dreams - meanwhile, chill out here at our cyber pub :D
 
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