How ya going? Im Chris from Perth in WA.
I was diagnosed with crohns when i was 16, so 7 years ago now, cant say ive had much success with it since then.
Ive tried a few different things and been on prednisolone from day one. Currently on 15mg in morning 5mg at night... right now it feels like it needs to be a higher dose. The bleeding is bad. Nights seem the worse.
.
I used to be a fit and healthy kid and have struggled every since being diagnosed. Holding down a job can be really difficult. That and training involved prior to getting a job as i can come down with a cold or something draining at the drop of a hat. REEEEALLY FRUSTRATING!!
Tried immfliximab, humira, stemm cell trial studys at royal perth hospital.
Problem is ive never really known what to do for diet and therefore just went by the rule "whatever is bad for a normal person is twice as bad for me".
Other problem is being 16 through to 21 is a hard time to forceably stop partying. So i can say ive taken the medications and felt good and probably screwed it all up by tryn to live a normal lifegoing out partying with friends. Just to take more meds to make myself "feel better" without really being better.
Im pretty sure if i had approached the drinking and diet a bit more strongly along with meds like humira then things migt be different..... not sure though.
If your still reading.. cheers. I kno its a bit of a book.
Im hoping that people on here will be able to shed some light on a few things.
Like are there any alternatives to prednisolone? How do you stop bleeding with no medications but prednisolone without upping the dose.
Aaaaand now im looking into a gluten free diet. Anyone had any luck???
The only thing ill add is my specialist doesnt seem 100% sure that i have crohns... always says it may b ulcerative colitis.. i dont understand how he cant know..
Anyway..thanks for reading..
I was diagnosed with crohns when i was 16, so 7 years ago now, cant say ive had much success with it since then.
Ive tried a few different things and been on prednisolone from day one. Currently on 15mg in morning 5mg at night... right now it feels like it needs to be a higher dose. The bleeding is bad. Nights seem the worse.
.
I used to be a fit and healthy kid and have struggled every since being diagnosed. Holding down a job can be really difficult. That and training involved prior to getting a job as i can come down with a cold or something draining at the drop of a hat. REEEEALLY FRUSTRATING!!
Tried immfliximab, humira, stemm cell trial studys at royal perth hospital.
Problem is ive never really known what to do for diet and therefore just went by the rule "whatever is bad for a normal person is twice as bad for me".
Other problem is being 16 through to 21 is a hard time to forceably stop partying. So i can say ive taken the medications and felt good and probably screwed it all up by tryn to live a normal lifegoing out partying with friends. Just to take more meds to make myself "feel better" without really being better.
Im pretty sure if i had approached the drinking and diet a bit more strongly along with meds like humira then things migt be different..... not sure though.
If your still reading.. cheers. I kno its a bit of a book.
Im hoping that people on here will be able to shed some light on a few things.
Like are there any alternatives to prednisolone? How do you stop bleeding with no medications but prednisolone without upping the dose.
Aaaaand now im looking into a gluten free diet. Anyone had any luck???
The only thing ill add is my specialist doesnt seem 100% sure that i have crohns... always says it may b ulcerative colitis.. i dont understand how he cant know..
Anyway..thanks for reading..