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03-30-2013, 08:19 PM   #181
Twiggy930
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Join Date: Feb 2012
Location: Canada

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Hope things are improving for Claire.

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Son (age 13) diagnosed with Crohn's Feb. 2012.
Currently on Imuran and Sulfasalazine.

Also taking: TuZen probiotic and following a low FODMAP diet (not very strictly).

Past Treatments: Prednisone, Flagyl, Cipro, Pentasa, exclusive EN via NG tube (6 weeks), Prevacid, Iberogast (20 drops twice a day) and high doses of vitamin B2.
03-30-2013, 09:00 PM   #182
CarolinAlaska
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Location: North Central, Illinois

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I'd be just like you - obsessing! What in the world! I guess it is better than what your mother reported... Maybe it has to do with that bleed clearing up from earlier?
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Carol
J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), controlled with 6MP.
Osteoporosis, Scoliosis, EDS, Asthma, Lymphedema, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety postural tachycardia/POTS and multiple food allergies.
03-30-2013, 09:46 PM   #183
AZMOM
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Well stool frequency is better, pain is worse. Fed her some of that organic blended food you suck out of a tube for dinner. It's about all she could tolerate. Couple more days of this and Im calling the doc.

J.
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Julie

Mom to Claire - 11 going on 17

Dx JRA age 3, Crohn's age 6
Acute transverse myelitis at age 5

Started IVIG September 2016
Started Tacrolimus October 2016
Neurontin 100mg twice daily
Folic Acid
Calcium/D supplement
Daily Vitamin
Daily Probiotic

No more Enbrel, Stelara, Methotrexate, Allopurinal or 6MP
03-31-2013, 10:54 PM   #184
DustyKat
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Location: New South Wales, Australia
Thinking of you both J...

Dusty.
04-01-2013, 05:09 AM   #185
Farmwife
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Location: Michigan

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How's it going?
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
04-01-2013, 05:12 AM   #186
Niks
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Location: Swindon, United Kingdom

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Hope Claire is feeling better xx
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Daughter 22, 1. Upper GI and colonic dysmotility with viscernal hypersensitivity.
2. Predominant Constipation with slow colonic transit and moderate gastroparesis,
3. Nephrolithiasis
4. Osteopenia bordering on osteoporosis



Peristeen Irrigation every other day.
Citramag/Picolax

Waiting for bowel stimulator!
04-01-2013, 06:16 AM   #187
AZMOM
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She slept 5 hrs yesterday afternoon. Stool situation stable. Pain under sternum complaints and back pain complaints did not change. Im working today and she'll be with my mom. I'll let you all know the report.

J.
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