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Crohn's Disease Forum » Parents of Kids with IBD » C is having symptoms


 
02-18-2013, 11:46 PM   #61
Mehita
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So sorry you've been going through all of this. I hope he feels better soon!
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Mom of DS, age 17, dx Crohn's and Celiac Oct 2008
- Remicade, started Nov 2013, added Solumedrol June 2015
- added Methotrexate/Folate March 2016
- Multivitamins, Probiotics, Vit D
- Small bowel resection, Jan 2013
02-19-2013, 01:51 AM   #62
upsetmom
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The only time my daughter got hot flashes was when she was on pred.

I hope things settle down....
02-19-2013, 02:09 AM   #63
CarolinAlaska
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Not something we've experienced here either. <<<Hugs>>>>
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J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), taking pred only. NG feedings nightly.
Osteoporosis/osteopenia, Scoliosis, EDS, Asthma, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety, postural tachycardia/POTS and multiple food allergies.
02-19-2013, 03:25 AM   #64
Sascot
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Sorry, I don't have any advice on hot flushes. Andrew used to get hot now and again, but used to go away after about 1/2 hour. That was before diagnosis.
As for pain, the numbers I suppose can only be a guide, it is such an individual thing. They never seem to want to "bother" the docs. Once we were taken to the ward after Andrew had been doubled over in pain for 4 days - the doc asked him how he was and he says "fine" . Not a happy mother!
02-19-2013, 08:56 AM   #65
Tesscorm
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Sorry, wish I could help but no hot flashes here...
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Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
02-19-2013, 09:57 AM   #66
Crohn's Mom
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I don't have an answer but Gab is going through the same thing. She is tapering off of Entocort, but it's been going on a while now so I don't think that's it.
I've read a lot of other threads on here tho with people saying its "just part of Crohn's" -
Wish there was a better answer than that for our kiddos!
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DX: Crohn's 2/2010
and Austin (18)
DX: Crohn's 7/2013
02-19-2013, 11:04 AM   #67
Clash
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I've read that too, Crohn's Mom. C didn't end up having a great day. I just feel if we could get past one of the issues going on then it might make the others more tolerable. I also read alot of people on Z-packs get hot flashes but couldn't find it listed as a side effect on the drug's website, so I just don't know. Hope things are just taking their time about getting better.
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Clash
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C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
02-19-2013, 03:30 PM   #68
Tesscorm
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Clash, I just came across this thread discussing remicade and hot flashes...

http://www.crohnsforum.com/showthrea...t=35085&page=2
02-19-2013, 03:52 PM   #69
Clash
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Just got off the phone with the GI nurse, it seems we are headed back to the hospital, they are going to admit him and do an MRE. His GI is still out of town so his partner is admitting him. C was pretty bad off last night. Today he has had 5 bm the last two were just yellow liquid, it honestly looked like he had peed in the toilet. He is not in pain as much as he says his stomach is uncomfortable. Up until 30 min ago he wasn't eating then all of the sudden he said he would eat a hotdog and did(wish that had happened before the GI nurse convo) but it was right after eating that he had to rush to the bathroom only to pass watery liquid. The joint pain stays around sometimes not as bad as others.

They want him first thing in the morning but I already have a procedure for myself scheduled(that I've already put off a couple of times due to his issues) that I have to do so I guess we will be leaving straight after.

I don't know what to think, this isn't the sickest I've seen him but it is the most worried I have seen him. None of this reminds me of CD flares of the past I just don't know what to think and I'm ready for his dr to be back!!
02-19-2013, 04:04 PM   #70
Tesscorm
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Wow, I'm so sorry to hear this... you must be so worried and confused!!! At least you know, while he's in the hospital, he be closely monitored! And, from my experience, you get test results quicker... the sooner you know what's going on, the sooner you get start fixing it!!

I hope things get a bit better (or, at least, stay stable)!!!!
02-19-2013, 04:09 PM   #71
upsetmom
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.. I'm so sorry to hear this.
02-19-2013, 04:50 PM   #72
Jmrogers4
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Sorry Clash hope you get answers soon. Sending you lots of hugs ((HUG))
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Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
02-19-2013, 07:56 PM   #73
my little penguin
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Hugs
Sorry to hear this
Glad they are admitting him to get to the bottom of it.
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DS - -Crohn's -Stelara -mtx-IVIG
02-19-2013, 09:21 PM   #74
Dexky
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Bummer Clash! Hope it's a short stay and quick turnaround for him!
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Mark, father of EJ

EJ dx w/ Crohn's 12/09
PSC 3/10

No more 6mp
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02-19-2013, 09:40 PM   #75
parentnj
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I hope he feels better soon!
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Son Alec 13yrs old - DX 11/2012
Remicade
Methotrexate 12.5 MG Oral & Zofran weekly
Folic Acid Daily
2000 IU Vitamin D Daily
1000 IU B-12 Daily
One A Day for Athletes

Failed - Pentasa
02-19-2013, 11:35 PM   #76
kimmidwife
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Thinking of you guys! Just had a chance to catch up. Hopefully all goes smoothly and you will get some answers!
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Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
02-20-2013, 01:05 AM   #77
Hope345
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I hope the MRE tells you what you need to know. thinking of you both.

You probably already did plenty of research but I found this under yellow d.:

Yellow Bowel Movement Color Is Rare

A pale or yellow colored stool is rare and can be caused by a few different malfunctions of the digestive system.

The first is known as Gilbert's Syndrome, which mainly affects males in their teens. If you suffer from this ailment, it means your liver doesn't process enough red blood cells. Broken down, red blood cells give stool much of its color. When fewer cells are processed, the stool can appear a pale brown or yellow in color.

A more serious problem is yellow stool resulting from malabsorption. When your body doesn't properly absorb fats from the food you eat, the excess fat passes through your colon and into your stool, giving your stool a yellowish hue.

A parasite infection known as giardia, in which protozoans invade the intestines, results in diarrhea that is yellow in color.

sending hugs your way:
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Daughter (age 17) diagnosed with Crohns Colitis/UC 1/2012 Mod/severe changed to U.C.: 11/7/2014 anemia:blood transfusion current: Flare, weaning from Prednisone, still bloating: Meds ,Pentesa: 2000mg twice daily, Vegan diet, mesalamine enemas .Previous: mercaptopurine, Remicade (13 treatments), Imuran, prednisone ), Flagyl, iron infusions, cortifoam,
Continue to be hopeful
Daughter: age 21, undiagnosed: GI issues
02-20-2013, 03:26 AM   #78
Sascot
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Glad to hear that they are going to admit him and find out what's happening! Hope you get some answers soon so he can feel better. Good luck for your procedure as well (yes it's hard fitting your own stuff in)
02-20-2013, 06:57 PM   #79
Clash
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So we arrived at the hospital today and they had a bed ready for us. C has been complaining of joint pain but has only had one bm although it did have blood in it. He seems hydrated but they have him on IV fluids. His GI has been contacted and has a colonoscopy scheduled for Friday, they also wanted an MRE tomorrow but something with the machine, maintenance and lots of surgical kids in line, so the MRE will be Saturday. So nurse said she felt Saturday would be the earliest we would be out.

C was really down about coming back but has settled in nicely and is playing on his laptop and sleeping.

He ate a little bit of lunch, although once again his eyes were much bigger than his stomach.

At admission on Friday evening, he weighed 51.3 kg(113.0 lbs) at admission today he weighed 48.5 kg(106.9 lbs) so a little over 7 lbs of weight loss in 5 days

He's isolated right now because they are checking for C-Diff but it would have to be atypical symptoms, I think.

Anyway, happy his GI will be returning and performing the colonoscopy. Hopeful they will get to the bottom of all this real soon!

Last edited by Clash; 02-20-2013 at 07:20 PM.
02-20-2013, 07:03 PM   #80
Niks
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Good luck!!

Thinking of you both

xx
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Daughter 22, 1. Upper GI and colonic dysmotility with viscernal hypersensitivity.
2. Predominant Constipation with slow colonic transit and moderate gastroparesis,
3. Nephrolithiasis
4. Osteopenia bordering on osteoporosis



Peristeen Irrigation every other day.
Citramag/Picolax

Waiting for bowel stimulator!
02-20-2013, 07:11 PM   #81
upsetmom
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Good luck......hopefully they'll figure out what wrong.
02-20-2013, 07:32 PM   #82
my little penguin
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Hugs Glad they are getting to the bottom of it.
02-20-2013, 08:56 PM   #83
Jmrogers4
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Glad things are being taken care of, hope the answers come soon. Thinking of you. ((HUGS))
02-20-2013, 10:16 PM   #84
Tesscorm
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Was watching for your update ALLLLLL day!!!

But, I'm glad he's in the hospital and the tests will be done soon. Hopefully, you have clear answers by Saturday and a plan to go forward!
02-20-2013, 10:52 PM   #85
Clash
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So there is no chance they will buddy up on the pain med at bedtime, to help me sleep too, right?? If that is not an option it should be(should've snuck in a bottle of CIC's wine) because I am so wound up there is no way I'm going to be doing anything but analysing what every possible outcome of every test is going to be and how that is going to affect each angle of C's treatment...
02-20-2013, 11:28 PM   #86
Hope345
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I hope all goes well for your son. I understand your anxiety, but hopefully this will give you some answers that will help.
thinking of you...
02-21-2013, 03:38 AM   #87
Sascot
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Hope you managed to get some sleep. I always find the first night almost impossible to sleep! It's good they are planning to do all the tests to get a good idea what's going on. Hope it all goes well!
02-21-2013, 01:55 PM   #88
jmckinley
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Clash, so sorry C is feeling bad enough to warrant a stay in the hospital. I hope that you get some answers soon and don't go stir crazy on isolation!! I hated that last summer with Ryan.

Hugs!!!
02-21-2013, 03:39 PM   #89
Crohn's Mom
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Just catching up Clash ~
so sorry he's been admitted

Hope you got some rest (or at least someone delivered you wine!)
Don't forget to take care of you
02-21-2013, 04:26 PM   #90
Tesscorm
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Hope things are going okay today...

Love the new picture... we're currently at -9 deg C (15 deg F ... brrrr) so I'm a bit jealous of the scenery!!!

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