Share Facebook


 
05-23-2013, 08:19 AM   #361
mccindy
Senior Member
 
mccindy's Avatar
 
Join Date: Apr 2013
Location: Wisconsin

My Support Groups:
Hi Cat,
I'm sorry to hear that you're still not feeling well. I was hoping you'd be feeling better! It sucks that you aren't able to eat at all. Hopefully another day of rest will get you feeling up to snuff and able to work out again.
__________________
Cindy

current diagnosis is undiagnosed (possible Celiac disease)

Colonoscopy done August 2013, no evidence of Crohn's seen, biopsies done and one polyp removed.
Polyp is precancerous adenoma

(Diagnosed with a diffuse astrocytoma (brain tumor) 5/31/13.
Craniotomy with tumor resection performed July 2013. 99% of WHO grade II diffuse astrocytoma removed, MRI scheduled every 6 months to monitor for regrowth.)
05-23-2013, 08:55 AM   #362
Cat-a-Tonic
Super Moderator
 
Cat-a-Tonic's Avatar
 
Join Date: May 2010
Location: Madison, Wisconsin

My Support Groups:
I seem to be able to eat a little better today. I just had a piece of toast. So far it's sitting fine... hopefully it stays that way!
05-23-2013, 09:21 AM   #363
mccindy
Senior Member
 
mccindy's Avatar
 
Join Date: Apr 2013
Location: Wisconsin

My Support Groups:
Hooray for toast! Get that strength up!
05-24-2013, 07:22 AM   #364
Cat-a-Tonic
Super Moderator
 
Cat-a-Tonic's Avatar
 
Join Date: May 2010
Location: Madison, Wisconsin

My Support Groups:
Update 5/24/13: I felt gradually a little better as the day went on yesterday, I had more toast and an ensure and those sat fine, and I was starting to feel okay again. Then yesterday evening I went to the bathroom and passed a whole bunch of bright red blood into the toilet. I'm not usually a bleeder so that was quite disconcerting! It only happened once, and I still feel okay, so I'm not sure what was up with that. I'll treat it as a fluke if it doesn't happen again - if it does happen again, I'll call my doctor. The stress and worry about that are making my guts a bit upset so I'm trying not to worry too much. Really a scary thing though when you typically do not pass blood!

So I'm going to go in to work today. Partly because I'm feeling somewhat better, and partly because I don't want my boss to think I'm just taking a really long Memorial Day weekend! I'm feeling pretty fatigued, haven't slept well throughout this entire episode, so I expect it to be a rough day. I'm hoping to mostly rest up over the long weekend. Hubby works Sat & Sun so we have no plans and I can just stay in and rest those days for sure. Monday we were thinking of maybe taking the kayak out for some paddling. I'll have to see how I'm feeling then. I am kind of wanting to try going to the gym tonight too, and again that'll depend on how I feel this evening, if I pass more blood, etc. I know I can always go to the gym and take it easier than usual, so that's what I'm aiming for. I'll skip the abdominals machines if I do go!
05-24-2013, 08:06 AM   #365
mccindy
Senior Member
 
mccindy's Avatar
 
Join Date: Apr 2013
Location: Wisconsin

My Support Groups:
Oh my, Cat! I'm not a bleeder either so I can imagine how you felt, seeing blood. I hope that it doesn't happen again but definitely call the doc if it does. Take it easy at work and don't overdo things. I'll be thinking of you.
Make sure you get plenty of rest this weekend. Take it easy at the gym too.

Be well.
05-24-2013, 10:33 AM   #366
Cat-a-Tonic
Super Moderator
 
Cat-a-Tonic's Avatar
 
Join Date: May 2010
Location: Madison, Wisconsin

My Support Groups:
Ugh. I just passed blood again. I hate this! I am *not* a bleeder, this is highly unusual for me. Guess I'll be making a doctor appointment. I'm thinking I'll go through my GP first, as I can get in to see him quicker. This doesn't feel like a flare (I never bleed even in a flare - and right now I don't have night sweats, joint pains etc which I always get in a flare), so I'll probably ask him to do stool samples to see if I've got a bacterial infection or something like that. If he can't figure it out then I'll see my GI.

This kind of thing really gets me down. This is not supposed to happen - I'm supposed to be in remission, I'm not supposed to pass blood! I'm upset. Trying not to cry at work. There's nothing quite like being horrified at what you see in the toilet to bring you down!

And as for the gym, I'm torn. Part of me wants to go and put in a good workout because I know that always makes me feel better & happier, it makes the stress and the blues go away. But the other part of me thinks I should just rest and try to heal from whatever is going on. I don't know what to do.
05-24-2013, 10:52 AM   #367
Cat-a-Tonic
Super Moderator
 
Cat-a-Tonic's Avatar
 
Join Date: May 2010
Location: Madison, Wisconsin

My Support Groups:
Quick update: I called my GP's office. He's not in today but another doctor in his clinic can see me this afternoon. I'm kind of relieved that I don't have to wait the long weekend before I get to see a doctor. The nurse I talked to on the phone said that they take rectal bleeding seriously so she wanted me to be seen ASAP.
05-24-2013, 11:02 AM   #368
xX_LittleMissValentine_Xx
Moderator
 
xX_LittleMissValentine_Xx's Avatar
 
Join Date: May 2009
Location: Reading, United Kingdom

My Support Groups:
Good luck I hope everything is ok.
I do often bleed with my crohn's and I'm not usually worried about it if I see a little bit, but if there is quite a lot or its in clots its horrible.
Having said that, since I have been better recently, if I saw a bit of blood now I would be worried a little.
Sorry that was a bit of a ramble!
__________________
~Holly~
Diagnosed with CD March 08 at 17
Currently on:
Infliximab

Past:
Pentasa
Prednisolone
Azathioprine

My blog: http://hollysbloggyness.blogspot.com/
05-24-2013, 11:36 AM   #369
Cat-a-Tonic
Super Moderator
 
Cat-a-Tonic's Avatar
 
Join Date: May 2010
Location: Madison, Wisconsin

My Support Groups:
Thanks LMV. The only times I've bled are that time I ate greek yogurt (probiotics + dairy kill me) and the time I ate cottage cheese multiple days in a row (apparently that also contains probiotics), but that was just a tiny bit of blood. Or if I get an anal fissure there will be a teeny bit of blood on the TP, like just a drop or two. This is more significant bleeding than those times, and I can't trace it back to anything that may have caused it (I don't have a fissure, I don't seem to have hemorrhoids, and I haven't eaten probiotics/dairy). So yeah, I have bled a very minor amount a handful of times in the past, but this is new and scary!
05-24-2013, 12:27 PM   #370
xX_LittleMissValentine_Xx
Moderator
 
xX_LittleMissValentine_Xx's Avatar
 
Join Date: May 2009
Location: Reading, United Kingdom

My Support Groups:
Let us know what the doctor says x
05-24-2013, 03:18 PM   #371
Cat-a-Tonic
Super Moderator
 
Cat-a-Tonic's Avatar
 
Join Date: May 2010
Location: Madison, Wisconsin

My Support Groups:
I just got back from the doctor. I wrote a much longer post about this in Vent Away, but in a nutshell, they think the bleeding is from something like salmonella. No hemorrhoids seen on exam and probably not viral either.

But I suspect I will have a virus shortly - the doctor was really sick with gastroenteritis, and didn't bother to tell me this right away! She shook my hand, examined me, then said that viral gastroenteritis is going around, and in fact she has it herself. Great - I've been exposed to a highly contagious stomach bug, that's just super. Good thing I didn't have any plans for the long weekend because I think I'll be spending even more quality time with my toilet. I'm so mad about this! I hope somehow I avoid getting it, but with my luck and crappy immune system, the odds are not in my favor. At this point I'll never get back to the gym...
05-24-2013, 04:18 PM   #372
Cat-a-Tonic
Super Moderator
 
Cat-a-Tonic's Avatar
 
Join Date: May 2010
Location: Madison, Wisconsin

My Support Groups:
So I'm reading the information sheet that came with my Cipro. And it says things like, "tell your doctor if you do any strenuous exercise" and, "this medication may cause tendon damage". From the sounds of it, I'm guessing it's safest to skip the gym altogether when I'm on it, either that or take things much easier. Not that I'm in any state to be able to work out right now anyway. I realized a little while ago that it's 4 PM and I haven't eaten today. I'm drinking an Ensure right now for the calories but I have zero appetite, none. As a result of barely eating, I'm still quite weak. I so want to hit the gym, but it's not going to happen for a little while. That sucks. But I guess I would rather skip the gym for a week than rupture my achilles tendon or pass out from weakness. Blah! I feel like I'm supposed to be tougher than this, I'm supposed to be able to keep going no matter what hurdles come up in my path. I hate feeling weak and unable to work out. Not cool, body, and not cool, Cipro.
05-25-2013, 03:55 AM   #373
xX_LittleMissValentine_Xx
Moderator
 
xX_LittleMissValentine_Xx's Avatar
 
Join Date: May 2009
Location: Reading, United Kingdom

My Support Groups:

Maybe when you have a bit more energy you could just do your yoga or a short bike ride rather than anything too strenuous like the gym. Chin up cat do you have any other hobbies you can focus on while you are going to be less active ?

I'm into my knitting a lot at the moment.
05-25-2013, 09:35 AM   #374
Cat-a-Tonic
Super Moderator
 
Cat-a-Tonic's Avatar
 
Join Date: May 2010
Location: Madison, Wisconsin

My Support Groups:
Funny you mention knitting, I've been crocheting a blanket! I have a few other crafts I'm working on too, and there's always work to be done outside in the yard & garden. I won't be bored, but it is frustrating to not be able to exercise for a little while. I know I could do yoga, but honestly, even that right now sounds like too much. I've had a lot of weakness since this bacterial thing or whatever it is started, and dizzy spells too. I'm afraid I'm just going to fall over/fail if I try even yoga. Maybe when I start the Cipro, I'll feel better and could handle yoga then.

Speaking of Cipro, I can't start it until I turn in some stool samples. I've been trying to collect them, but I am having issues. I keep getting urine in the collection hat thing. The last time I did stool samples was a couple years ago, and I recall it being really easy then. For some reason it's more difficult this time around! I empty my bladder, then I try to poop in the hat, but more urine ends up getting squeezed out somehow and ends up in there too. And I don't have much poo to work with since I haven't been eating much. This is getting just silly now. I gotta get it together so I can actually start Cipro.
05-25-2013, 11:49 AM   #375
Cat-a-Tonic
Super Moderator
 
Cat-a-Tonic's Avatar
 
Join Date: May 2010
Location: Madison, Wisconsin

My Support Groups:
Update: Finally got my stool samples taken care of. It only took 4 tries! I kept getting a little bit of urine in the collection hat. (Why do they call it a hat, anyway?) So I took my first Cipro tablet just now. I haven't taken Cipro before, so I'm not really sure what to expect - wish me luck. I recall my husband was on it when he had kidney stones and he did fine, so hopefully I will too.
05-25-2013, 01:38 PM   #376
xX_LittleMissValentine_Xx
Moderator
 
xX_LittleMissValentine_Xx's Avatar
 
Join Date: May 2009
Location: Reading, United Kingdom

My Support Groups:
Oh god! I hate doing stool samples!

also, I have crocheted a blanked recently too! I think there is a pic on my profile on here
05-25-2013, 03:03 PM   #377
Cat-a-Tonic
Super Moderator
 
Cat-a-Tonic's Avatar
 
Join Date: May 2010
Location: Madison, Wisconsin

My Support Groups:
So, Cipro is interesting. It makes me feel a little loopy and... silly? I feel like I'm just slightly drunk, things are slightly funnier/more awesome and I feel a bit more gregarious. I probably shouldn't drive while I'm on this stuff! Seriously, I had to take my stool samples to the lab so I did have to drive. I had my car stereo on and I thought at one point, my music is too quiet. Oh well. Then like 5 minutes later I was like, Oh, right, I can turn up the volume! Yeah, I'm not going to drive any more until I get used to Cipro, pretty sure I'm dangerous! Hopefully this weird effect wears off by the end of the long weekend.
05-26-2013, 06:16 AM   #378
Dexky
To save time...Ask Dusty!
 
Dexky's Avatar
 
Join Date: May 2010
Location: Kentucky

My Support Groups:
Hope you're ok Cat! Sounds like a reaction you should maybe ask about before taking the next dose!
__________________
Mark, father of EJ

EJ dx w/ Crohn's 12/09
PSC 3/10

No more 6mp
Currently in the Humira Club
05-26-2013, 10:06 AM   #379
Cat-a-Tonic
Super Moderator
 
Cat-a-Tonic's Avatar
 
Join Date: May 2010
Location: Madison, Wisconsin

My Support Groups:
Thanks Mark. The effect only seemed to last 3-4 hours, then I felt like myself again. The loopy feeling didn't come back when I took my 2nd tablet. I just took my 3rd Cipro tablet and still feel fine, so I guess just a weird initial reaction?

I'm still not quite up to working out though. I took my dog on a short walk, and the guts were cramping like crazy when we got back. I might try yoga this evening, but feeling like this I know I'm not up to lifting weights, and I don't feel brave enough to ride my bike like this for fear of needing a bathroom.
05-26-2013, 01:33 PM   #380
Cat-a-Tonic
Super Moderator
 
Cat-a-Tonic's Avatar
 
Join Date: May 2010
Location: Madison, Wisconsin

My Support Groups:
Okay, so I managed to do a little bit of exercise today and I feel good, this is encouraging. Hubby was on his way out the door to go to work when he reminded me that there is a lot of yard work to do. Ugh, okay. So I did a ton of work in the yard, more than I thought I was up for. I trimmed all the hedges & bushes, and sawed a bunch of branches off my lilac bush (it's a seriously huge lilac bush, more like a lilac monster!). My arms are tired now but I feel good. Depending on how I feel tomorrow, I am tempted to go to the gym.
05-26-2013, 02:04 PM   #381
Ya noy
Senior Member
 
Ya noy's Avatar
Oh Cat! I'm so sorry to hear all that

I ended up having to take Benadryl, and have no energy. I had no choice. Someone checked someone else into the room I've been staying in at the hotel by mistake, and I had to take a different room--where apparently, someone had snuck either a cat or dog into and my eyes swelled up, and I had to take Benadryl to make them go back down. I wish I had just put up with the swollen eyes, because I ended up sleeping for 20 hours solid and it's been 2 days and I still can't even make it through a tv show without falling back asleep. Exercise is out of the question. I can't go back to work because I'm not capable of driving yet.

Joys of meds.
05-26-2013, 03:44 PM   #382
Cat-a-Tonic
Super Moderator
 
Cat-a-Tonic's Avatar
 
Join Date: May 2010
Location: Madison, Wisconsin

My Support Groups:
Ya noy, that sucks! I don't take Benadryl because it makes me like that too. Hope you start to feel more alert soon!

I'm feeling better, but things are still somewhat weird. Yesterday after my first Cipro dose, I got so hungry. I pigged out on pizza, chips, and candy. But today, I'm back to having no appetite again. Not nauseous, no pain, no d - just no appetite. I had an Ensure for breakfast just out of habit, but then I basically forgot to eat until just now. I didn't feel hungry at all the whole day, but around 3 PM my hands started shaking, presumably out of hunger. I made myself eat and the hands aren't shaky anymore. I'm going to have to remind myself to eat until I fully recover!
05-26-2013, 03:47 PM   #383
xX_LittleMissValentine_Xx
Moderator
 
xX_LittleMissValentine_Xx's Avatar
 
Join Date: May 2009
Location: Reading, United Kingdom

My Support Groups:
I get that sometimes when I'm a bit under the weather, where you don't feel hungry but start getting shakey so try and eat something.

Thinking about it, it hasn't happened for a while and could have been when I was on antibiotics for my abscess. I'm not sure if it was cipro because we don't use that name here but it could have been as I know it is used widely for that.
05-26-2013, 06:04 PM   #384
hawkeye
Forum Monitor
 
Join Date: Mar 2011
Location: New Brunswick

My Support Groups:
Okay, so I managed to do a little bit of exercise today and I feel good, this is encouraging. Hubby was on his way out the door to go to work when he reminded me that there is a lot of yard work to do. Ugh, okay. So I did a ton of work in the yard, more than I thought I was up for. I trimmed all the hedges & bushes, and sawed a bunch of branches off my lilac bush (it's a seriously huge lilac bush, more like a lilac monster!). My arms are tired now but I feel good. Depending on how I feel tomorrow, I am tempted to go to the gym.
I miss the lilac we had at our old house Trim a bit more over the next couple of years, apparently the branches won't flower unless the wood is 3 years old
__________________

Diagnosed since 1990
Current Medications: None currently. Was on Imuran (150mg/day) and 5-ASA (3000 mg/day) as maintenance meds prior to surgery
Surgeries: Left hemicolectomy 2014.
05-26-2013, 07:31 PM   #385
Cat-a-Tonic
Super Moderator
 
Cat-a-Tonic's Avatar
 
Join Date: May 2010
Location: Madison, Wisconsin

My Support Groups:
Hawkeye, I try to cut bits off of the lilac bush every year, otherwise it's just too huge. It always flowers, no worries there. It looks & smells nice for about 5 days a year, and the rest of the year it's not flowering.

Uggh, my body is just throwing me for a loop this week! Hubby and I did some grocery shopping and I felt fine. Then we came home and I was sitting on the couch, going over our finances. As I was sitting there, I noticed my foot kind of hurts. Not the achilles tendon area fortunately - I know Cipro can cause tendons, particularly the achilles, to rupture. This is more on the top of my foot. It has been hurting more and more! I don't know why, I didn't hurt it in any way that I can recall and it looks fine from the outside. But it freaking hurts to the point I can barely walk on it! I have ice on it right now which is helping a little bit (it feels swollen/bruised). This is just getting ridiculous though, I stop exercising for a few days and I fall apart completely. No appetite and now can barely walk, that's just great.
05-27-2013, 05:06 AM   #386
xX_LittleMissValentine_Xx
Moderator
 
xX_LittleMissValentine_Xx's Avatar
 
Join Date: May 2009
Location: Reading, United Kingdom

My Support Groups:
My mum had a pain in her foot like that once. It ended up going into a lump and they said it was some kind of tumour thing which she may have to have removed and to walk on it less.
A while later she went to the doctors again, it was feeling better and only then did they do an x-ray. It turned out the first time it was fractured! She didn't even do anything to it. But walking on it less it managed to heal itself! Amazing!
05-27-2013, 08:19 AM   #387
Cat-a-Tonic
Super Moderator
 
Cat-a-Tonic's Avatar
 
Join Date: May 2010
Location: Madison, Wisconsin

My Support Groups:
That's crazy, LMV! I hope mine isn't a tumor nor a break! It feels a bit better today, I can put some weight on it although not my full weight. My hip hurts - it's the left foot that hurts, so I've been limping along putting most of my weight on my right leg, and my right hip is the bad one with arthritis (both of my hips have arthritis, but the right one is far worse in terms of pain). The right hip clearly did not like me putting all my weight on it the few times I tried to walk last night, plus it's raining today, so the hip is aching. Days like this, I feel like a little old lady. And still going to the gym is nowhere in sight...
05-27-2013, 08:58 AM   #388
Ya noy
Senior Member
 
Ya noy's Avatar
I'm glad to hear you're feeling better. The swelling left gigantic bags under my eyes, but I'm going into work regardless. Otherwise someone else would be called in to cover the shift, and I don't want to ruin Memorial Day plans for anyone else.

it's raining here too, but had just enough energy to get my flowers planted first.
05-28-2013, 07:37 AM   #389
mccindy
Senior Member
 
mccindy's Avatar
 
Join Date: Apr 2013
Location: Wisconsin

My Support Groups:
Cat - I've been out of touch for three days and look what happened to you! I'm so sorry to hear you've been having such a hard time. I hope that you are feeling better today and able to eat and get around. Sounds like you had a traumatic weekend. I had one myself, posted about it in the support forum so I won't repeat it here. I just wanted to give you a virtual hug and let you know I'm thinking of you!
05-28-2013, 10:52 AM   #390
Cat-a-Tonic
Super Moderator
 
Cat-a-Tonic's Avatar
 
Join Date: May 2010
Location: Madison, Wisconsin

My Support Groups:
Aw Cindy, I just saw your other thread and responded in there - but that's just horrible! I'm sending you a big hug too! I feel like a wimp complaining about foot pain when you're going through that. I'm sorry. Big hugs!

So, speaking of foot pain. It's getting better - I can walk without my cane now and can put my full weight on it. I still feel sorta run down, the guts aren't back to normal yet, I slept horribly and just feel generally blah. I *so* want to exercise, I think that would help a lot. So I sort of spontaneously decided today, screw it, I'm going to the gym! I'm gonna hit up the little gym on my lunch hour, it might go terribly but I have to try.
Reply

Thread Tools


All times are GMT -5. The time now is 11:13 PM.
Copyright 2006-2017 Crohnsforum.com