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Crohn's Disease Forum » General IBD Discussion » Does anyone have the level of abdominal pain that I do?


02-15-2013, 08:29 AM   #1
CoryW
 
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Does anyone have the level of abdominal pain that I do?

Hello I'm Cory, I've often consulted these forums here but never joined until now. I'm 18 with Crohn's. Simply put my abdominal pain is the worst pain I have ever felt in my life. If someone asked me to put a number on it out of 10, I would say 9 without hesitation. I have a high pain threshold yet it feels like someone is stabbing me in the stomach, or that my intestines are about to explode. Gross. I try and tell my mom the level pain I'm in and she just can't grasp the notion of "simple" diarrhea causing so much pain.


It certainly would be comforting to know someone has experienced this before. Well, not comforting in that way but you know what I mean. thanks.
02-15-2013, 08:41 AM   #2
SarahBear
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Hi, Cory! Welcome to the forum!

Quite simply, yes. Pain rated at 8 or 9 is not all that unusual for me (although it doesn't happen often lately). I'd definitely say it's gotten up to 10 before - and I was sweating, nauseous, and on the verge of passing out just from the pain. I've felt the stabbing pain like you described as well.

I'm sorry you have to go through this! It's so frustrating when people don't understand. How much does she know about Crohn's? There's a lot more to it than just diarrhea (as I'm sure you know).
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02-15-2013, 08:56 AM   #3
Spooky1
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Cory, please correct your mum, the reason for the diarrhoea is because of inflamation in the intestine, not simply diarrhoea. Ask her if she ever had gastroenteritis, or norwalk or food poisoning. She needs to understand that actually the intestine walls are like muscles that send through food at a standard rate. ours doesn't which causes spasms, stricturing, fissures, fistulas, ulcerations and cramping. I also have pain most the time, it wears me down badly. Do you get painful legs and back ache with the abdominal pain. cos i can't stand up at all when that is happening. Its not steroid aches either.

good luck, Cory
02-15-2013, 09:52 AM   #4
StaceyC96
 
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Hi

Oh Yes i would say no lower than 8

i would rather Fracture a bone then have this pain

and i have had over 25 seperate fractures in 30 years

terrible pain

xxxx
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02-15-2013, 12:34 PM   #5
Ihurt
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Hey therre,

Well, I have not been disgnosed yet, but I have been having horrid intestinal pains that are severe at times. I will say this much, I do have a very high tolerance for pain as well. I think I got this way because I have severeal very painful diseases and unfortunately am not able to take many pain meds or anything since I have to many reactions to things. But as far as pain goes, I have had an exploded tubal pregnancy, my fallopian tube ripped completely in half and I had massive internal bleeding. In fact when the ambulance got me to the hospital the doctors did not even really get to worried until they saw how much blood I had lost. I had emergency surgery and afterwards my gyne surgeon came and said she could not believe that I was not withering in agony by the time I got to the hospital.That is why the hospial staff and doctors did not think I was in bad shape. She said I should have been in agony with what had happened to me. she said had I they waited even 20 minutes more to do surgery, I likely would have been dead! with that being said, I honestly say that experience was a walk in the park for me compared to this horrid pain I feel in my guts everyday! I would gladly do the whole exploded tube any day over this pain!
02-15-2013, 01:22 PM   #6
UnXmas
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Cory - how long has your pain been this bad? Is it constant/chronic, or acute episodes?

I am very lucky as pain is not normally an issue for me. I worry sometimes how I would manage with severe pain, because I'm not good at dealing with it. I have in the past had episodes of intense pain from pseudo-obstructions lasting several days along with fever, etc. Those were so painful every movement became difficult. I remember being very hot but not wanting to reach up and open the window because the movement would hurt so much. And I've had severe pain following surgeries, though only what is expected from operations.

I manage the low levels of pain I get some days with codeine, which has been very effective for me. For severe pain, nothing beats morphine - though that's really only for use whilst in hospital or for very extreme cases.

Have you talked to your doctor about the pain and whether there's a specific cause for it? If it's new there may be something going on beyond just the general pain of Crohn's. If you always experience severe pain, have you thought about going to a pain management specialist?
02-15-2013, 03:27 PM   #7
badbelly
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Before my last hospitalization I was in agony, def at level 8 or 9. This was due to infection and inflammation, so yes it can get that bad. I hope you can get some help soon.
02-15-2013, 04:09 PM   #8
kiik
 
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The pain feels horrible to me and I THINK I have a high tolerance but sometimes I'm not sure as I've never broken a bone or given birth or have anything like that to compare it too, so maybe I'm just a wimp!
02-16-2013, 01:05 AM   #9
lola99
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I would rate the pain at a 200. Had two hospital stays one for partial blockage and other severe bout of inflammation. Each times the pain took my breath away. I just got out of the hospital recently and last night I had a bout of diarrhea that made me shake, throw up, sweat, and scream. I literally thought I was going to die on the toilet. Sounds dramatic but I've had kids and this was terrible. I could never fathomed the pain I have now pre- crohns
02-16-2013, 01:48 AM   #10
Laura Dawn
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I'm so sorry! Yes, pain is easily a 10.
It might be a good idea to ask your Mum to try out this website.
If the pain continues at that level you need relief and should be checked out.
02-16-2013, 02:36 AM   #11
annawato
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Hi Cory, welcome to the forum. Unfortunately pain that bad is common with crohn's but you should not have to put up with it indefinitely. Speak to your gastro about the amount of pain you are having. You may need to change the medication you are on or there may be something else going on like a stricture, partial blockage or abscess. Don't just put up with it.
Also its a great idea to get your Mum to have a look at the forum so she can understand more about the disease and what you are going through. There is a parents forum she may be interested in.
All the best,
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02-16-2013, 11:50 AM   #12
Spooky1
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I agree, the pain is bad. i'm having one of those i just can't do much days. Anna, i'm a true cat person, but i could do with a cuddle of that teddy of yours. Can't believe i could cuddle a mut. but hey, he is so temptingly gorgeous. Is he called Teddy? is he a good pain killer?
02-16-2013, 12:40 PM   #13
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I've been pretty much in constant pain since i was told at 21,which is 21 years ago.I know exactly how you feel.Nothing seems to ease the pain apart from the odd toilet helping.I think your mistaking your pain for diarrhea but really it's a crohn's flare up that's causes it.As you said,you can't believe that diarrhea can cause so much pain.The gut wrenching pain isn't the same as the intense burn that we get inside.I hope they mange to help you with the pain.
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02-16-2013, 01:36 PM   #14
Ozboz
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It's 5.30am and I'm up in horrid stabbing burning pain even the tramadol 200mg they gave me isn't really working only thing helping is ibuprofen and thats no good for crohns i have been in more worse pain since starting humira and doc says impossible my pain has been a lot worse since my last shot just so sick of the gut wrenching pain
02-16-2013, 01:49 PM   #15
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Sometimes my pain is so bad I think I'm going to hve a heart attack cos I don't think my body can take anymore! Hope you start feeling better soon, let your gastro know how bad your pain is, maybe they can change your medication. Apparently amytriptaline is good for bowel pain, didn't work for me though- codeine and tramadol are my drugs of choice!
02-16-2013, 06:53 PM   #16
annawato
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Anna, i'm a true cat person, but i could do with a cuddle of that teddy of yours. Can't believe i could cuddle a mut. but hey, he is so temptingly gorgeous. Is he called Teddy? is he a good pain killer?
Spooky he should be called Teddy but his name is Cookie and he is absolutely gorgeous. I've always been a big dog person and hated yappy little white dogs but we wanted something that didn't shed hair and didn't need much exercise with me being sick. He is the best dog I've ever had, Always happy and definitely a good pain reliever. He cuddles up on my stomach when its sore and its like a heat pack. I've got cats too and even they love him. They all play together playing chasey, hide and seek and wrestling. I really should get some video for youtube. He cheers me up without fail.
02-17-2013, 04:42 PM   #17
Spooky1
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Yes, he is entirely gorgeous an yes, you should earn you 1,000s on youtube!!! He does look so cuddly. lucky you
02-18-2013, 11:58 PM   #18
tots
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Hey Cory,

Tell your mom it's way worse than labor. I had three kids piece of cake compared to this.
I didn't use pain meds either.


Lauren
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