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Crohn's Disease Forum » Your Story » Success Stories » Sharing some hope and good news!


02-21-2013, 12:08 PM   #1
Bld
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Join Date: Oct 2011
Sharing some hope and good news!

Earlier this year I was really ill with my Crohn's having severe diarrhoea, which I have had really for the past ten years or so. Passing masses of blood, severe pains etc. Steroids didn't work. Colonoscopy showed severe ulceration and bleeding in the small bowel. Aza made me violently sick, Pentasa didn't work. I was at the end of my tether.

I was originally diagnosed in 1996 and have been under the weather if not very badly affected since then.

Well I am so pleased to say that thanks to support from my GI and here, I now feel better than I have ever felt before! I have no diarrhoea (let me tell you doing a normal poo is still really exciting!) no pain, no bleeding. I really feel like a normal person again. I am on 4g of Pentasa and 1/4 of a 6MP tablet twice a day.

I just wanted to say to everyone at the beginning of their Crohn's journey, there is hope to get back to a normal life.

I know there are no guarantees that this situation will last forever but I am fully intending to make the most of it while I can. My thoughts are with everyone suffering with this horrible disease and I hope and pray you are all able to find something that works for you.
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Diganosed with Crohn's in 1996. Flaring since Sept 2011.

Current meds:

6MP = 50mg/day
Pentasa 4 x 1mg/day
Ferrous Sulfate 3 x 200mg/day
Omaprazole
02-21-2013, 12:18 PM   #2
CrohnsChicago
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Location: Chicago, Illinois

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Thank you for sharing your story and I'm so glad to hear you are doing better!

Sharing success stories definitely gives many of us hope here that we will be able to get through this. I know I look forward to getting to the point of comfort you are in now

All the best!
__________________
Crohn's-Colitis May 2012
Current Meds:
6-MP (100mg) / Asacol (4800mg)
Past Meds:
Prednisone/ Entocort / Flagyl
Current Supplements:
B12 Shot (1cc/mo) / Multivitamin / Vitamin D (1000iu) / Calcium (1200mg) / Omega 3 Fish Oil (4800mg)
Additional Info:
Anemia/Borderline Anemia - whole life
Generalized Anxiety Disorder - 2009 (Cognitive Behavioral Therapy, mindfulness meditation)

02-21-2013, 12:50 PM   #3
Astra
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Kudos Bld, fingers crossed you stay well for a long time to come xxxx
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Joan

Dx Crohn's in TI 2005 symptoms for 15 years prior

BEEN ON -Azathioprine, 6MP, Prednisolone, Pentasa, Budesonide, Metronidazole, Humira, Methotrexate,

NOW ON -Amitriptyline 25mg
21/02/14 Right hemicolectomy surgery




http://www.facebook.com/#!/profile.p...4208290&ref=ts

No-one should make you feel inferior without your consent!

02-21-2013, 01:11 PM   #4
Angrybird
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That's great new hun, long may it continue for you
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Angrybird

DX: Crohns July 2002
Surgery: Ileocecal Resection Sept 2011
Now:Tummy behaving itself and new mummy to baby Nicholas
Current Meds: 6-MP 75mg,B12 injections every 3 months
Previous Meds: Budesonide, Prednisone, Remicade, Pentesa,Hydroxychlorequine,Azathioprine (tried twice) and Methotrexate
02-22-2013, 08:53 AM   #5
Lustforlife
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Location: Georgia
Heyyyy!!! That's great news! Would you mind sharing what you think made the difference for you? Is it the meds you listed, or something more?

Best wishes for a long remission!
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L4L
Dx Gastritis/GERD/maybe IBS - Jan. 2013
02-23-2013, 05:38 AM   #6
Bld
Senior Member
 
Join Date: Oct 2011
It is accepting I have a disease and I will need medication for life. Until now I have always thought I could manage without medication and have coped with chronic diarrhoea for years. This bad flare was the kick I needed to accept this and the feeling of being well is amazing!
02-23-2013, 11:28 AM   #7
Sybil Vane
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Congratulations and thanks for sharing your story!! It's such good news!!
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My real name is Christina and I write about my personal experiences fighting and surviving Crohn's disease on The Diarrhea Diaries at LivingSick.com.

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02-23-2013, 11:22 PM   #8
Teacrumb
 
Join Date: Feb 2013
Location: Dallas, Texas
Oh my gosh!! I am so happy for you. I remember my first pain-free day. I had forgotten what "normal" felt like. I cried it was so wonderful. I hope that you keep getting better and stronger!! God bless.
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