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Crohn's Disease Forum » Treatment » Methotrexate » Starting Methotrexate soon ...


 
02-22-2013, 02:08 PM   #1
parentnj
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Starting Methotrexate soon ...

My 13 yr old son will be starting methotrexate soon. He is taking 20MG of Pred right now and is symptom free after bouncing it back up when the taper failed ... Pentasa didn't keep him in remission. The doctor Px'd Zofran and Folic Acid as well. I'd appreciate any tips or advice or things to watch out for. Thank you all in advance.
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Son Alec 13yrs old - DX 11/2012
Remicade
Methotrexate 12.5 MG Oral & Zofran weekly
Folic Acid Daily
2000 IU Vitamin D Daily
1000 IU B-12 Daily
One A Day for Athletes

Failed - Pentasa
02-22-2013, 02:14 PM   #2
Clash
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We were told to give the MTX(my son takes the pill form) on Friday so if there were any side effects then he would have to weekend to recoup. But as I've previously stated no side effects for us. C takes 10 pills and GI said we could split them 5 in morning then 5 in the evening, we did for awhile but now he doesn't. Good luck, with the MTX, hope it works well for your son!
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C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
02-22-2013, 03:24 PM   #3
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Thanks C ... Remicade will be added if MTX isn't enough.
03-07-2013, 08:11 AM   #4
parentnj
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Started MTX last night (25MG Oral). Alec woke up feeling great this morning ... fingers crossed, knock wood, etc, etc, etc.
03-07-2013, 10:20 AM   #5
Clash
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Glad to hear all went well! I hope it continues!
03-07-2013, 11:38 AM   #6
Jmrogers4
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All Crohn's symptoms went away when Jack was on Methotrexate unfortunately he had a reaction, started coughing that deep barking cough shortly after starting and continued the whole few months he was on it and stopped within 2 weeks of stopping the metho. I guess one of the rare side effects is lung issues.
It worked really well on the Crohn's though. Hope it gets it under control quickly and keeps it under control
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Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
03-10-2013, 01:58 PM   #7
jmckinley
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Glad to hear the methotrexate dose went well. My son also takes it and we do it on the weekends. Be sure he is taking folic acid.
03-10-2013, 07:55 PM   #8
parentnj
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He is taking a daily does of Folic Acid. If his blood work is OK this week, we will continue with the MTX and start tapering the Pred. Fingers crossed, knock wood, etc, etc, etc,
03-13-2013, 08:50 AM   #9
parentnj
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blood work was good, Prednisone tapering begins today along with Alec's second dose of MTX. Fingers crossed, knock wood, etc, etc.
03-13-2013, 09:57 AM   #10
Jmrogers4
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Hope the taper is smooth and easy and MTX is working well by the end.
03-13-2013, 12:12 PM   #11
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I was on injections and ok after a day or two.
Stayed on it for four years until the dose went up and then the cough started and my hair started falling out. Can't say it was any better than Mecaptapurine so swopped back onto that as MTX is a bit of sledgehammer.
Keep up the folic.
03-14-2013, 07:32 AM   #12
parentnj
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Second MTX dose last night. Alec woke up feeling tired but no other side effects. He ate a healthy breakfast and hopes they show a movie in one of his classes so he can take a nap. Knock wood, crossed fingers, etc, etc
03-19-2013, 08:25 PM   #13
parentnj
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severe tapering headache tonight ...
03-19-2013, 08:43 PM   #14
KWalker
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It's also possible that it is caused from the methotrexate. I got awful headaches in the beginning while on Methotrexate
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Diagnosed:
Age 2 (1992)

Previous Meds:
Prednisone
Remicade
Humira
Methotrexate (oral)
Methotrexate (injections)
Cipro
Flagyl

Current Treatment:
200mg Simponi, Psyllium
03-20-2013, 10:15 AM   #15
parentnj
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Thanks KWalker ... Alec's MTX dosing is done Wednesday night (tonight) so his last dose was a week ago. You can never be sure what is causing these effects but his symptoms are the same as when he tried tapering last time. Headache was gone this morning but he has some lingering nausea that is slowly going away. He managed to eat two English muffins and a glass of milk this morning and was able to get his 10MG of Prednisone down (not easy when the stomach is a queasy). Fingers crossed that we are back on track. Waiting for the doctor to review an EKG from yesterday to give us the go ahead for his MTX dose tonight.
03-21-2013, 08:01 PM   #16
parentnj
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Alec took his MTX dose tonight instead of yesterday ... the cardiology computer system was down and they couldn't read his ECG yesterday ... it's always something. He is taking Tylenol as he feels a headache coming on. uh oh. hopefully all will be good in the morning.
03-21-2013, 08:10 PM   #17
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Oh no, I hope the tylenol catches the headache before it gets out of hand and he is feeling good in the morning!
03-21-2013, 09:18 PM   #18
parentnj
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we caught the headache in time ... whew ... Alec went to bed. I keep reminding him to drink lots of water...
03-22-2013, 08:17 AM   #19
parentnj
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Alec felt great this morning ... off to school. yeah. (knock wood, fingers crossed, etc)
03-25-2013, 04:47 PM   #20
parentnj
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so Alec played baseball Sunday ... he got a hit, made a couple of nice plays but missed a sign and botched a pick off and a run scored. He was miserable about it. But all I could think about was how great it was that he could play baseball at all.
03-26-2013, 03:16 PM   #21
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I know what you mean, C used to to be heavily involved in school, rec and travel baseball there wasn't a weekend we weren't at a tournament. The joint pain and CD issues derailed his playing for quite awhile and I think he has missed it. Now, his team has tried to get him to come back out and play but he has his drivers license so baseball hasn't definitely fell off the radar!
03-28-2013, 07:52 PM   #22
Brian'sMom
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Parentnj, My son always had headache with prednisone.
We will be starting Methotrexate soon. I want to do pills, but GI likes injection.
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Kathy, Mom of 14 yr old Brian
symptoms 2005, official dx 6/2010

Praying for Remission
Vedolizumab 8-8-14
Ileostomy 3/22/14
Multivitamin,Iron,Vit D

Total EEN 12-10-13 to:TPN 1-29-14 - 4-2-14
Tried:Azathioprine,Pred,Pentasa,Cimzia Bi weekly & MTX 9/2013 to 8/2014, Humira 1/2011-9/2013, w/oral mtx 5 mos in 2013. Remicade: Had allergic reaction Jan 2011 Built up antibodies by 3rd infusion.
Has done round of Flagyl due to abcess 12/10 and 10-21-13 which helped both heal quickly.
03-30-2013, 03:21 PM   #23
parentnj
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Bummer - Alec strained his shoulder pitching in the cold weather yesterday ... looks like he will be DH'ing for the next couple of weeks. On the bright side the prednisone taper is going well and the MTX seems to be working ... no symptoms right now. (knock wood, fingers crossed, etc, etc)
03-30-2013, 07:51 PM   #24
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OK, first weird side effect ... red rash that is sensitive to the touch on his forearm ... MTX? Prednisone Taper? something else?
03-30-2013, 08:01 PM   #25
parentnj
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Alec just joined the forum ... his Avatar name is Obi Won Chrohnobi.
03-30-2013, 08:31 PM   #26
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Hello! Thanks for everything you all have posted. It is reassuring to see that that there are people with similar conditions that will help me get through the path to remission.
03-30-2013, 10:19 PM   #27
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Sorry parentnj, we haven't dealt with a rash of any sort. Welcome to the forum, Obi Wan Crohnobi!!!
04-02-2013, 08:17 AM   #28
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Skin rash solved ... he iced his arm down after pitching Saturday and the ice pack shoulder/ arm sling caused some minor frost bite! nothing to worry about.
04-02-2013, 08:22 AM   #29
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Ahhh...that is good to know! I hope he continues to do well with the MTX!
04-08-2013, 06:17 AM   #30
parentnj
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The disease is back ... joint pain, nausea (can't eat) and stools are more frequent and softer. Waiting to hear back from the doctor ... no prednisone for a week and we are back to square one.
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