Share Facebook
Crohn's Disease Forum » Surgery » Fistulas, Fissures and Abscesses » Fistulas, Fissures and Abscesses Support Group



 
07-28-2013, 05:34 PM   #271
Essieluv
Senior Member
 
Essieluv's Avatar
Another surgery! You need a break from all this crap soon! I really hope it heals up the area and your problems go away. Sending lots of support.
07-28-2013, 06:03 PM   #272
nogutsnoglory
Moderator
 
nogutsnoglory's Avatar
 
Join Date: Sep 2009
Location: New York

My Support Groups:
Thank you so much. I'm so over it I just want my life back.
07-28-2013, 08:27 PM   #273
Essieluv
Senior Member
 
Essieluv's Avatar
I can imagine. It gets so old being sick all the time. I really hope things clear up for you.
07-29-2013, 06:34 AM   #274
Sailorluna
Forum Monitor
 
Sailorluna's Avatar
 
Join Date: Oct 2010
Location: Coon Rapids, Minnesota

My Support Groups:
My CR surgeon found a fistula during EUA that the mri did not pick up so yes, i believe they have value. I an sorry for your ongoing struggles. I totally relate. It took four surgeries to get my perirectal fistula to stop creating new tracks and abscesses. Good luck.
__________________

Symptoms since 98
Resection and diagnosis June 2010
3 fistulas
abscess drained 6 times (so far...)
currently 2 seton in place 1 since 9/11 the other 4/14
1 strange small air pocket with an 8 cm sinus track leading into the great unknown
methotrexate weekly
folic acid
2 lomotil
2 Welchol
B12 injections (monthly)
Remicade

_____
Goodbye Humira
Goodbye Cimzia
Goodbye Azathiprine
07-30-2013, 08:48 PM   #275
Essieluv
Senior Member
 
Essieluv's Avatar
Ok guys, I have a quick question. I got an abscess drained last Wednesday, and it's been draining pretty constantly ever since, which is good. Tonight, though, the drainage has been slightly bloody. Is this something I should be concerned about, or is it just normal?
07-30-2013, 09:16 PM   #276
nogutsnoglory
Moderator
 
nogutsnoglory's Avatar
 
Join Date: Sep 2009
Location: New York

My Support Groups:
If its just a little bit I wouldn't be concerned. I have a drain in for a few weeks and have a little blood daily. The area is raw and any movement probably cuts around a little causing some blood.
08-02-2013, 12:43 AM   #277
pain
 
Join Date: Jul 2013

My Support Groups:
I had my seton put in 4 days ago. Going ok, some pain\discomfort today.
Stressing about keeping it clean, tricky. Any tips?
08-02-2013, 04:54 AM   #278
Jordinary
 
Join Date: Jul 2013
Location: Melbourne, Victoria, Australia

My Support Groups:
Sitz baths are amazing for keeping setons clean. You could also try wipes instead of/after toilet paper.
__________________
Living with a pesky but slowly healing fistula.

Medications:
Imuran & Remicade
08-02-2013, 09:29 AM   #279
nogutsnoglory
Moderator
 
nogutsnoglory's Avatar
 
Join Date: Sep 2009
Location: New York

My Support Groups:
How hot do you guys keep your sitz baths? Warm water feels too room temp for me but hot water might burn and be counterintuitive?
08-02-2013, 09:51 AM   #280
Sailorluna
Forum Monitor
 
Sailorluna's Avatar
 
Join Date: Oct 2010
Location: Coon Rapids, Minnesota

My Support Groups:
I use hot water.
08-02-2013, 09:59 AM   #281
nogutsnoglory
Moderator
 
nogutsnoglory's Avatar
 
Join Date: Sep 2009
Location: New York

My Support Groups:
Mine is pretty hot. Are you afraid it might burn your soft tissue or damage the rubber seton?
08-02-2013, 11:29 AM   #282
Essieluv
Senior Member
 
Essieluv's Avatar
I use pretty hot water. I do worry about it a little, but I feel like with the cooler water might not promote as much drainage. Lesser of two evils I guess...
08-02-2013, 12:23 PM   #283
nogutsnoglory
Moderator
 
nogutsnoglory's Avatar
 
Join Date: Sep 2009
Location: New York

My Support Groups:
I guess my fear is I read somewhere we aren't as attune to temperature down there and could get actual burns. We certainly don't need anything else being problematic or painful down there.
08-02-2013, 12:50 PM   #284
Essieluv
Senior Member
 
Essieluv's Avatar
NGNG how was your surgery? How are you feeling?
08-02-2013, 05:35 PM   #285
pain
 
Join Date: Jul 2013

My Support Groups:
I'm using very hot water ...skin pink. I just feel like it takes so long to feel completly clean like a few hours.
08-02-2013, 07:25 PM   #286
Rachellea244
 
Rachellea244's Avatar
 
Join Date: Aug 2013
Location: Iowa

My Support Groups:
Hey all, I am new to this group/site. Ive read some of the recent posts and I feel like everyone is speaking my language for a change. Soo...heres a little bit of my story...
I was always a very healthy person....until I was diagnosed with crohns disease 3 years ago. At that time I had chronic stomach pains and such, I was put on several drugs and finally found one that seemed to work. Imuran. Last year I had a perirectal abscess. I had draining tubs put in and things seemed to be getting better...however the abscess came back and I had an additional four surgeries. I then met with a specialist last December and he put setons in. They seem to do the trick and help my situation. I still have that seton in, however it continues to drain. My doctor then put me on Cimzia as well thinking that it would help with the infections and my crohns. I believe it has helped. However in May I had two more surgeries and another couple setons put in. It has now be 7 total surgeries and I still am dealing with the infections flaring up every now and again. I just don't feel like there is an end in site to any of this. I still have the setons and I will probably have them for quite some time. I am also on flagyl to help kick the infection, though I don't necessarily feel like it does, it only makes me feel very ill. I have a wonderful doctor, however I feel as though Im the first patient he has had that has had these abscesses that just wont go away. I do the sitz baths daily, cimzia once a month, flagyl and leviaquin daily....Any other thoughts ideas?! I never thought Id be going through this still a year later...any thoughts and or advice would be greatly appreciated
08-02-2013, 09:41 PM   #287
Essieluv
Senior Member
 
Essieluv's Avatar
Honestly it sounds like you're doing everything right. Although you might want to think about adding Cipro to your antibiotics regimen. It might help you more than Flagyl alone. I really hope you feel better soon!
08-03-2013, 08:33 PM   #288
avierocks88
 
avierocks88's Avatar
 
Join Date: Aug 2013
Location: Orlando, Florida

My Support Groups:
Hoping someone can help me. I am due to have surgery on August 8th, 2013. I have a fistula, abscess, and a stricture. Surgeon is doing a ileocecal resection. I'm afraid of a big scar or an ileostomy. I'm stressing out over this.
08-05-2013, 02:35 AM   #289
sandcastle
 
Join Date: Aug 2013

My Support Groups:
Had 8 surgeries for perianal abscess and high complex fistula since oct 2012. Changed surgeons and have a long term seton in place. Whilst surgeons say I shouldn't need antibiotics I disagree as I clearly need cipro at times. I now recognise the signs as have stomach pain, nausea, extreme tiredness, inflames skin at sight of wound and itchy skin. I have also noticed small abscessed skin where the wound is healing. Has anyone else had this or experienced my symptoms and reinfection with a seton.

I do not have a crohns diagnosis.
08-05-2013, 07:50 AM   #290
Aphrodite_x
Senior Member
 
Join Date: Jun 2013
Location: Scotland, United Kingdom

My Support Groups:
When you stated 'vaginal abscess' were you referring to Bartholin Gland Cyst/Abscess by any chance? I've had them before myself where they would clear up to 'cyst' form and when my cycle was due the cysts would begin to enlarge. Sometimes they turned into an abscess & sometimes they would just remain a cyst (thank god!, lol).
Rose, do you know if there are any connections between bartholin's abscesses and crohns fistulas?

I ask because after I was dx with crohns, probably about 3 years, I developed a bartholin's cyst, which then developed into an abscess. I was on different antibiotics for about a year, but it kept coming back, so it I had it incised and drained.

The incision has never closed over, and remains open now. I'm quite glad, because it stops me getting another abscess (the pain was UNREAL) and it just drains itself whenever it gets infected.

Now I think I may have a rectovaginal fistula? I have a discharge, passing wind through my vagina (very strange feeling) and my bottom is very sore whenever I have BM. Waiting on my GI organising an MRI to confirm this. What would the next course of action be if I do have this fistula?

Sorry to ask you this direct, but you seem very clued up on it all! If anyone else has any info/advice, I'd be very grateful.
__________________
Diagnosed:
April 2010
08-07-2013, 01:08 AM   #291
Bunkermariah
 
Bunkermariah's Avatar
 
Join Date: Aug 2013
Location: Keene, New Hampshire

My Support Groups:
I'm definitely joining this group! Just got diagnosed with Crohn's last week, but have had symptoms since January, and I'm a sufferer of fissures, it's a pain in the caboos!
08-07-2013, 07:37 PM   #292
DJW
Forum Monitor
 
DJW's Avatar
 
Join Date: Jul 2013
Location: Ontario

My Support Groups:
Hoping someone can help me. I am due to have surgery on August 8th, 2013. I have a fistula, abscess, and a stricture. Surgeon is doing a ileocecal resection. I'm afraid of a big scar or an ileostomy. I'm stressing out over this.
Hi. Sorry to hear you need surgery. Personally I found surgery to be a relief. I suffered for years with abscesses and fistulas. I've also had surgery for strictures. Surgery brought releif and healing. I could get on with life. Is the surgeon talking temporary ileostomy? I hope everything goes well. Sending you my support and best wishes.
__________________
Crohn's Disease
DX 1978 (12 yrs old)
Ileostomy at 19

Visit Crohn's and Colitis Canada:
http://www.crohnsandcolitis.ca/site/...tis_Canada.htm

Living in Ontario with no drug benefits?

Trillium Drug Program:
http://www.health.gov.on.ca/en/publi..._trillium.aspx

Dave
08-10-2013, 06:05 AM   #293
pain
 
Join Date: Jul 2013

My Support Groups:
I only have my seton with two weeks, trying to accept it and get on with it...
Will it eventually stop draining? Or at least reduce the volume
08-10-2013, 07:33 AM   #294
Jordinary
 
Join Date: Jul 2013
Location: Melbourne, Victoria, Australia

My Support Groups:
The draining will definitely reduce in volume as the fistula closes and heals. However, the process is often slow, but don't give up! You are doing great and you should reach a point where it doesn't bother you as much and you aren't constantly aware of it.

I have had mine for about 8 months and it is always draining, however it is a very little amount and I wear panty liners to stop leaks.
Best wishes.
08-10-2013, 02:46 PM   #295
pain
 
Join Date: Jul 2013

My Support Groups:
Thanks. Its such a horrible problem to have. I just feel unclean all the time.
08-11-2013, 03:14 AM   #296
deep_hazra
 
deep_hazra's Avatar
 
Join Date: Aug 2013
Location: India

My Support Groups:
I'm queen of fissures count me in.
Hi....

I have recently been Diagnosed with Crohns & have got really bad fissures....Doctor has given me an ointment to apply...

Looking for Any added tips on how to deal with it???
08-11-2013, 04:01 AM   #297
Jordinary
 
Join Date: Jul 2013
Location: Melbourne, Victoria, Australia

My Support Groups:
For the unclean feeling, I found wet wipes can help a lot.

Sorry deep_hazra, no experience in fissures...
08-11-2013, 08:08 AM   #298
deep_hazra
 
deep_hazra's Avatar
 
Join Date: Aug 2013
Location: India

My Support Groups:
No probs...Jordinary
08-12-2013, 09:33 PM   #299
Essieluv
Senior Member
 
Essieluv's Avatar
Hi....

I have recently been Diagnosed with Crohns & have got really bad fissures....Doctor has given me an ointment to apply...

Looking for Any added tips on how to deal with it???
Fissures are such a pain!! When I had my fissure, I had an ointment and did tons of sitz baths. I hope it helps
08-12-2013, 09:53 PM   #300
deep_hazra
 
deep_hazra's Avatar
 
Join Date: Aug 2013
Location: India

My Support Groups:
Thanks for the input....will try the sitz bath
Reply

Crohn's Disease Forum » Surgery » Fistulas, Fissures and Abscesses » Fistulas, Fissures and Abscesses Support Group
Thread Tools


All times are GMT -5. The time now is 05:43 PM.
Copyright 2006-2017 Crohnsforum.com