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07-15-2016, 01:49 AM   #1561
Telkan
 
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I had lift surgey done 1 day ago and i am wondering why gas is still passing through the external opening. External opening is left open for the rubbish to drain. Crs told me external opening will gradually heal but i will expect drainage for few days or so.
07-15-2016, 08:38 AM   #1562
MeLee38
 
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I had lift surgey done 1 day ago and i am wondering why gas is still passing through the external opening. External opening is left open for the rubbish to drain. Crs told me external opening will gradually heal but i will expect drainage for few days or so.
I had the advanced flap repair done in Dec 2015to repair an recto-vaginal fistula. The fistula opening is still there. It leaked fecal matter and fluids for a couple weeks following surgery. Now 7 months later it is still passing gas/air but I am thankful it stopped the infection and the draining fecal matter. I am due to have surgery for a second fistula, hopefully sometime soon. Best of luck!!
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Surgeries/History:
- Bartholin Cysts, Acid Reflux, Hemoirrhoids&Bowel issues, skin rashes, fatigue, joint pain
- Anal Abscess Removed (cut through sphincter muscle) Dec 2014
- Formation of Recto-Vaginal Fistula Jan2015
- Hemorroidectomy & Advanced Flap Repair Dec 2015
- Colonoscopy May2016
- Removal of peri-anal cyst Sept 2016
- MRI July 2017
- Anal abscess Aug 2017
07-17-2016, 01:30 PM   #1563
dudah84
 
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Anyone here have experience with FiLAC?
07-17-2016, 01:32 PM   #1564
ronroush7
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I had the advanced flap repair done in Dec 2015to repair an recto-vaginal fistula. The fistula opening is still there. It leaked fecal matter and fluids for a couple weeks following surgery. Now 7 months later it is still passing gas/air but I am thankful it stopped the infection and the draining fecal matter. I am due to have surgery for a second fistula, hopefully sometime soon. Best of luck!!
I wish you the best

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Diagnosed in 1990. On Humira, Imuran, Gabapentin, Colestipol, Synthroid, Lialda. Resection in April of 2010. Allergic to Remicade, Penicillin, Flagyl, Doxycycline. Thyroid issues and psoriasis and neuropathy and mild cerebral palsy. Mild arthritis in my lower back.
07-21-2016, 09:22 PM   #1565
dave13
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O.k.. I hope this brings a smile. My colorectal specialist left and I had to find a new one(not the smile part).I was fortunate to find someone,granted he is an hour away.His name is Thomas Brady,get it? Tom Brady.
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"It does not do to dwell on dreams and forget to live."
08-05-2016, 02:30 PM   #1566
GABoy
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Hi everyone,

Finally scheduled for my mucosal advancement flap on 8/12. CRS says about a week of pretty severe pain. I read on here at one point that a week is pretty optimistic. Anyone have a rough time line on recovery. I understand it will be different for everyone, but your experiences will be greatly appreciated.
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Diagnosed with perianal Crohn's Disease: 12/2013

Surgeries:
Abscess Drainage 10/2013
Seton Placement 11/2013
Abscess Drainage + Seton Placement 4/22/2015
Abscess Drainage 10/28/2015
Seton placement 2/11/2016
Abscess Drainage 2/26/2016
Mucosal Advancement Flap 8/12/2016


Prior Medications:
Cipro, Flagyl, Prednisone, Humira, Entyvio

Current Medications:
Remicaid 6MP and Allopurinol
08-05-2016, 05:07 PM   #1567
MeLee38
 
Join Date: Mar 2016
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Hi everyone,

Finally scheduled for my mucosal advancement flap on 8/12. CRS says about a week of pretty severe pain. I read on here at one point that a week is pretty optimistic. Anyone have a rough time line on recovery. I understand it will be different for everyone, but your experiences will be greatly appreciated.
I had the advanced flap repair done for my recto-vaginal fistula and a hemorroidectomy was done at the same time (hemorrhoid was in the way when they got in there to do the flap repair). I was on pain meds for over 4 weeks and was down and out for almost 6 weeks, but doc said that was probably due more so to the hemorroidectomy, which is a very painful surgery, then the flap repair. Wish you the best of luck!
08-05-2016, 08:34 PM   #1568
GABoy
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Thanks MeLee38. Hoping I'm not out that long.


08-06-2016, 05:13 AM   #1569
kelly1
 
Join Date: Dec 2014
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Hi GABoy,
I too am on the list to have the advancement flap surgery! Everyone is different but I have a friend that had the surgery and was in alot of pain after and on meds for 4 weeks and just over 6 weeks recovery time. Good luck for your surgery!
08-06-2016, 08:58 AM   #1570
GABoy
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Kelly1,

What is the wait time like in the UK? I waited until 8/12 rather than having it in July because of travel, etc. I guess I could've had it right after I was cleared by GI.
08-06-2016, 02:04 PM   #1571
kelly1
 
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GABoy!

They say procedures to be done within 18weeks here. My surgeon has gone part time so im guessing I may have to wait a bit longer which im ok with.
How many surgeries have you had for your fistula?
08-06-2016, 03:59 PM   #1572
GABoy
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GABoy!



They say procedures to be done within 18weeks here. My surgeon has gone part time so im guessing I may have to wait a bit longer which im ok with.

How many surgeries have you had for your fistula?

I guess that depends what you consider surgery! I've had three different seton placement surgeries where I was under anesthesia. If you consider incision and drainage of abscesses as surgery, I've had that done four times. Nothing but a local on those, so not sure what to consider it!


08-10-2016, 03:25 PM   #1573
Holly44
 
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Hello everybody. I just wanted to say that I had surgery on my fistula on January 21st and it hasnt returned yet.
If you don mind me asking what type of surgery did they do? Both my specialist Lutheran hospital in ft Wayne and Cleveland clinic said that you can't do surgery on fistulas. Thanks!!
08-10-2016, 05:41 PM   #1574
MeLee38
 
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If you don mind me asking what type of surgery did they do? Both my specialist Lutheran hospital in ft Wayne and Cleveland clinic said that you can't do surgery on fistulas. Thanks!!
There are actually a few different surgeries they can do depending on the type of fistula and location. They can do a fistulotomy, a plug or glue injection, or an advanced flap repair (which I had to fix my recto-vaginal fistula). Also, recently developed was the LIFT procedure. The following link provides some good info on available treatments.

https://www.fascrs.org/patients/dise...ed-information
08-11-2016, 05:52 AM   #1575
GABoy
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Hi guys... Positive thoughts and prayers, if you've got some good history with the man upstairs... Advancement Flap tomorrow morning, 9 am at Mt. Sinai in NYC... I'll post on how I'm feeling once I'm up to it. Not nervous yet. I'm just ready for it to be over with. Thanks everyone.


08-11-2016, 07:11 AM   #1576
lgpcarter
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Thinking about you, GABoy.
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Diagnosed in with Crohn's in large and small bowel in 2000.

Seton placement (2) and fistulotomy December 2013. Setons removed July 2014.

Laparoscopic Right Hemicolectomy July 2016, 25 cms removed

Current meds: Entyvio every 8 weeks, Imuran 50 mg, Flagyl and Cipro 500 mg twice a day
Previously: Remicade, Humira, Simponi, Pentasa, Sulphasalazine, Entocort, Stelara, Methotrexate, Prednisone
08-11-2016, 10:13 AM   #1577
kelly1
 
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Goodluck for tomorrow GABoy x
08-11-2016, 10:14 AM   #1578
ronroush7
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Goodluck for tomorrow GABoy x
Agree

08-11-2016, 09:16 PM   #1579
dave13
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Yes,I hope all goes well GABoy.
08-12-2016, 08:22 PM   #1580
GABoy
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Well, I'm told it went well. Didn't have a ton of pain coming home because of iv and oral pain meds. Pain has really started in the past hour or so. It is bearable, but I am keeping medicine close by. Thank you all for the kind thoughts and I'll continue to fill y'all in. I just want to make sure there is a contemporaneous record for anyone contemplating the procedure on a later date.


08-12-2016, 08:24 PM   #1581
ronroush7
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Well, I'm told it went well. Didn't have a ton of pain coming home because of iv and oral pain meds. Pain has really started in the past hour or so. It is bearable, but I am keeping medicine close by. Thank you all for the kind thoughts and I'll continue to fill y'all in. I just want to make sure there is a contemporaneous record for anyone contemplating the procedure on a later date.
Hoping the best.

08-13-2016, 07:38 AM   #1582
GABoy
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Last night was tough. I was having difficulty evacuating my bladder. The pain was pretty bad.

I woke up this morning and decided to shower. I removed the packing and that has helped me evacuate my bladder. I feel okay right now. Pain is a 4-5, and I'm due for meds in about an hour.

Thanks again everyone.
08-13-2016, 11:38 AM   #1583
MeLee38
 
Join Date: Mar 2016
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Last night was tough. I was having difficulty evacuating my bladder. The pain was pretty bad.

I woke up this morning and decided to shower. I removed the packing and that has helped me evacuate my bladder. I feel okay right now. Pain is a 4-5, and I'm due for meds in about an hour.

Thanks again everyone.
After my flap repair they kept me in the hospital for 3 days until I could comfortably use the bathroom, and the packing was removed by the nurse before I went home. However, once I got home, I started having difficulty peeing. The nurse said it was probably due to swelling in the area. I soaked in the bathtub a lot, found it helped me relax and kept things clean. Also, as gross as it sounds, based on a recommendation from the nurse, I found it easier to pee while lying in the tub of warm water. Wish you the best of luck, and hope the surgery was successful for you.
08-13-2016, 05:18 PM   #1584
christina57
I am having a fistulotomy on Sept 2nd praying no incontinence from it they always have to tell you the gory news.
08-13-2016, 07:57 PM   #1585
GABoy
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After my flap repair they kept me in the hospital for 3 days until I could comfortably use the bathroom, and the packing was removed by the nurse before I went home. However, once I got home, I started having difficulty peeing. The nurse said it was probably due to swelling in the area. I soaked in the bathtub a lot, found it helped me relax and kept things clean. Also, as gross as it sounds, based on a recommendation from the nurse, I found it easier to pee while lying in the tub of warm water. Wish you the best of luck, and hope the surgery was successful for you.


They did mine in a surgery center and I was home within 4 hours of the surgery. I think the recto-vaginal procedure is more complex. Removing the packing was okay, I was just shocked as to how much there was. I do have a complex fistula so it is way up there. Going to bathroom is getting easier and easier. I've also been doing sitz baths which help a lot.
08-16-2016, 06:32 AM   #1586
GABoy
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Yesterday was tough. I feel like 2nd and 3rd day post surgery have been awful. I woke up this morning in pain. I still have not defecated. I'm tired and frustrated. I want to be back at work, but there is no way I could sit. I'm trying to wean off of pain meds, but every time I try to stretch an extra hour out of a dose, I'm just in more and more pain. This sucks.


08-16-2016, 07:18 AM   #1587
MeLee38
 
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Yesterday was tough. I feel like 2nd and 3rd day post surgery have been awful. I woke up this morning in pain. I still have not defecated. I'm tired and frustrated. I want to be back at work, but there is no way I could sit. I'm trying to wean off of pain meds, but every time I try to stretch an extra hour out of a dose, I'm just in more and more pain. This sucks.
I did the same thing trying to wean myself off the pain meds too early, unfortunately I just ended up suffering. I landed back in the ER as the pain became unbearable (as a point of reference - I have a huge pain threshold, went through 40 hours of labour without any pain meds!). I would maintain the meds for at least the first 7-10 days, before attempting to wean off them. I learned my lesson the hard way, doctor told me I was too stubborn and to take the pain meds, or I would keep suffering unnecessarily. Best of luck. i know the pain sucks, but try to think of the final outcome, no fistula!
08-16-2016, 07:24 AM   #1588
dudah84
 
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Going in for my 7th operation this Friday. They're going to add the FOURTH seton. This one will go from my anus all the way to the middle of my buttock where I have a DEEP (4-5in straight in) fistula.
Been getting worse. Puss just keeps coming, smelling worse every day. So bad now that my fiance can no longer take it while changing my dressings, so I have to do it myself with a mirror and some flexing - thank you childhood gymnastics!
It's been 13 months since this whole thing started, and the end is nowhere in sight.
08-19-2016, 06:37 AM   #1589
GABoy
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Looks like no one has any positive news lately. I wish I did. I finally defecated on Tuesday. The pain has increased since that time. My doctor called in more pain meds yesterday. I'm nowhere close to getting back to work. I'm trying to keep a positive attitude, but it is so hard to do right now.

Dudah84, keep your head up. I was there not that long ago. While I'm complaining right now, the surgery I just had should close my fistula. It's what keeps me going. I'm thinking about no more discharge; no more open wound. Good luck to you.


08-19-2016, 06:39 AM   #1590
ronroush7
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Looks like no one has any positive news lately. I wish I did. I finally defecated on Tuesday. The pain has increased since that time. My doctor called in more pain meds yesterday. I'm nowhere close to getting back to work. I'm trying to keep a positive attitude, but it is so hard to do right now.

Dudah84, keep your head up. I was there not that long ago. While I'm complaining right now, the surgery I just had should close my fistula. It's what keeps me going. I'm thinking about no more discharge; no more open wound. Good luck to you.
Hang in there

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