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05-08-2014, 10:22 AM   #541
theOcean
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Strongly considering making my own thread now that I'm back to it this week! And to keep me motivated to exercise more.
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Diagnosis: Fistulizing Crohn's, 2011 (originally Dx as Ulcerative Pancolitis)
Past Medication: Pentasa, Remicade, Prednisone, Imuran
Current Medication: Humira (biweekly), 100mg 6mp
Unrelated Medication: 36mg Concerta, 75mg Pregabalin
Currently: In remission!
05-08-2014, 10:40 AM   #542
Jmrogers4
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Can I join the club? Jack really wants to start working out and I want to be a good example. His goal is to build muscle and stamina in order to make the high school baseball team next year. After not being able to do sports for most of this year he is really struggling. And since he is finally growing and putting on weight he wants it to be muscle weight.
I want to be a good example and get him in the habit of being healthy and exercising (plus get healthy myself) I could definitely loose quite a few pounds but mainly just want to be healthy.
Wish us luck.
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Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
05-08-2014, 11:15 AM   #543
Cookie
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Hi. I am just now catching up with this thread and did not read the whole thing but want to join too. I am an avid exerciser...running, strength training, yoga and anything physical. I do all of these things mainly to keep myself feeling in control of my body and my situation. Right now I am at a pretty big low. I am in the midst of a really bad flare. I try to exercise daily, but I feel like this thing is winning. My energy levels are low. I have lost large amounts of weight and friends and family question weather I should be doing anything physical at all. I am trying to taper off of prednisone and it is not going well.

It's a hard pill to swallow sometimes. This time last year I was feeling on top of the world after completing my first full marathon. Now I am unable to run due to a stress fracture in my foot, likely due to extended use of prednisone. I have been cycling and strength training, but, like I said, those things are even becoming a challenge. Oh, how far I have fallen. Yesterday, for the first time in forever, I left work at 10 AM due to how bad I was feeling and spent the rest of the day in bed. This made me feel even worse about things. Almost like giving up.

But today I made a vow to myself not to let Crohn's get the best of me. I know from past experience that I do better when I keep pushing. Physical activity does so much for both my physical and mental well being. Looking forward to giving and getting support from fellow crohnies!
05-08-2014, 12:42 PM   #544
Cat-a-Tonic
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TheOcean, go for it! Whatever helps keep you motivated is a good thing!

Jacqui, that's great that you're looking to make exercise a family venture. And wanting to be healthy, that's the kind of goal that will make you stick to it. I read a study awhile back that said that people who work out to lose weight, look good, etc - basically any superficial goal like that - people with that kind of goal are far less likely to stick to it than people who set goals about improving their health and taking care of their body. So I'm sure you'll do great! Do you have anything in mind as for how to start - are you thinking more cardio, or more strength-training? Do you belong to a gym or do you plan to exercise at home/outdoors?

Cookie, don't push yourself too hard - in a flare particularly, you really need to listen to your body and give it rest when it needs it. I know, it's frustrating to have to hold yourself back like that - I feel the same way when I have to take a rest day due to my body not cooperating with me. Work out when you are able to, but recognize that your body needs rest to heal, too. Try not to get too discouraged. Once you get the flare more under control, hopefully you can then work back up to your previous level of fitness.
05-08-2014, 12:54 PM   #545
Jmrogers4
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I was thinking more cardio for me although I do need to do some strength training but Jack really wants to do strength training, I think he needs to do both but try convincing a teenage boy of that. I've done a 4 mile hike in the foothills the last 3 weekends and I've convinced Jack to go with me on Sunday (since it's mother's day) I think I should be able to convince him he needs to do cardio as well after that. The first part of the hike is straight up hill for about a 1/2 mile and then just a gradual rise for the next mile and then another 1/2 mile up on steep switch backs. I had to stop about 6 times the first time I did it and only had to stop twice last weekend.
We did join a gym but with baseball practice/games for him the last couple of months we really haven't gone. Unfortunately baseball is just not steady exercise. But he has to be there an hour before the game so I usually try and walk before the game starts. There are tons of outdoor stuff to do around here maybe if I can get him doing cardio outside and weight lifting at the gym it would make it more fun?
05-08-2014, 01:16 PM   #546
Cat-a-Tonic
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Jacqui, that sounds like a good plan to me - during the warmer months I like doing cardio outside and weights in the gym too. (During the winter I walk my dog outside but that's it, I do cardio on a machine indoors as it just gets too cold here to do much outside.) If you have bicycles, going for a ride can be really fun. Depending on how well his Crohn's is doing or how he's feeling on any given day, you may want to do bike rides through more urban areas so that bathrooms would be more easily accessable, and I'd also suggest that you bring extra water/sports drinks with in case he gets a bit dehydrated. Hiking sounds like a good plan too, although again think about stuff like keeping hydrated and knowing where the bathrooms are (or if it's a situation where he'd have to go in the woods, bring TP or wet wipes with).

I guess the key to exercise, for me anyway, is to have fun. I'm fortunate in that I love lifting weights! It makes me feel really strong and healthy and awesome, I can be the opposite of sick girl for an hour or two in the gym when I'm lifting. But anyway, if your son doesn't find hiking particularly fun, try to find something active that is more fun. Tennis, frisbee, kayaking or canoeing, even something like hula hooping can burn a lot of calories and be a good source of cardio! And if you live near a lake or river, sometimes you can rent a kayak or canoe, so you don't necessarily need to spend a bunch of money and buy one (full disclosure, I own a kayak and I love it). I'm rambling again but try to see what cardio-type activities seem to get your son motivated.

I suppose I should also say, for both you and your son - start slowly and don't overdo it at first. Not just for IBD'ers but for everyone, it's not a good idea to suddenly throw yourself into a hardcore exercise regime. Start slowly, maybe short weightlifting sessions with light weights, bike rides around the neighborhood, half-hour canoe rentals, etc until you build yourself up. Tell your son, he should listen to his body, and if something hurts then he should stop doing it. I'm not sure if he has any EIMs, but for me I have arthritis and GERD, so I have to limit my abdominal exercises or my GERD will get angry, and I can't jog or my hip arthritis will give me terrible pains. But I can ride my bike, do the elliptical at the gym, I can walk my dog just fine including on hilly hiking paths (sometimes walking hurts but jogging is far worse), I can kayak and I can lift heavy weights so long as I mostly avoid the abdominals machines. So he should listen to his body, but once he knows what he can handle, it'll be okay to push himself a little bit too.

Yikes, sorry that was so long! I hope that helps a bit.
05-08-2014, 04:24 PM   #547
Cookie
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TheOcean, go for it!
Cookie, don't push yourself too hard - in a flare particularly, you really need to listen to your body and give it rest when it needs it. I know, it's frustrating to have to hold yourself back like that - I feel the same way when I have to take a rest day due to my body not cooperating with me. Work out when you are able to, but recognize that your body needs rest to heal, too. Try not to get too discouraged. Once you get the flare more under control, hopefully you can then work back up to your previous level of fitness.
I know. No worries. Just having one of those "screw Crohn's" kind of days. I know my limitations well. Yesterday was a major downer because my limitation was "zero", as in, I was able to do absolutely nothing. I needed to refresh my attitude...maybe I sounded a bit over zealous. I do appreciate your caring!
05-08-2014, 09:04 PM   #548
dave13
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My update goes along with these recent posts.

I just started working with free weights.I worked with a trainer for two separate one hour sessions.I had been using the nautilus equipment and going to free weights is almost like starting over again.I like the difference.

I like the program the trainer developed for me.She did a good job with my limitations considered.I had to omit one exercise because I need to wait a few more weeks,according to my surgeons nurse.It did cause me discomfort.

I guess it is up to me to do it on my own now.I am happy I am enjoying going to the gym.I was never a gym person...CD gives me extra motivation I guess.I feel the psychological benefits are equal to the actual physical benefits.

I'm taking it slow and doing what I can.I'm fortunate to go at a time when the gym isn't too busy,that helps motivate me.

I would recommend getting physical to any crohnie.I would urge being mindful of your limitations and start slow.It is something we can do to fight CD,but it should also be enjoyable.
05-08-2014, 09:14 PM   #549
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What supplements do you guys use?
05-10-2014, 03:33 AM   #550
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Thought I'd share what I've been doing on the exercise front since being diagnosed in December last year.

Before getting the 'gastro bug' that turned out to be Crohn's I was right into martial arts, pole dancing and walking. I had 10 days in hospital and as I didn't respond that well with prednisone, my GI put me onto infliximab. I stopped exercising until mid-January (just after my 2nd infusion) when I felt I have recovered enough to try martial arts again - I was really nervous starting but got back into the swing of things pretty quickly.

In mid-February I joined a gym with people I work with and have been able to make it there 3 times a week on average. Exercising at lunchtime is the best option for me - I find I'm way too tired when I get home from work. I haven't been a gym member for years, but am really enjoying getting into the classes they offer. I started off slowly and have now started to increase what I'm doing. I've been able to pick up a lot of the core workout classes and also the Les Mills brand of classes (CX Works and Pump seem to suit me really well). I've found that the more cardio-based classes are a lot more of a challenge for me and I'm not that keen on doing burpees!

About 10 weeks ago I got back into the pole dancing and am almost back at the level that I was when I had to stop last year.

I find exercise is a great way for me to reduce my stress and am now getting much better at listening to my body - if I'm feeling tired I'll either have a day off or just do a light walk on the treadmill. I've also found that I don't have the energy for exercise in the few days after my infusion - I tend to catch up with friends for lunch on those days.

I had a bio-scan done on Friday which I'll get done every 2-3 months. I was really surprised and happy with the results - my BMI was in the normal range, my body fat percentage was quite low and my 'fitness score' was quite high.

My goals for the year are to keep my BMI and body fat where they are and see if I can increase my fitness score, to progress to the advanced level in pole dancing, to continue my martial arts training through winter (which is already proving to be a challenge with some of the frosty mornings) and to increase my cardio workouts.
05-10-2014, 12:44 PM   #551
kel
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I was thinking more cardio for me although I do need to do some strength training but Jack really wants to do strength training, I think he needs to do both but try convincing a teenage boy of that. I've done a 4 mile hike in the foothills the last 3 weekends and I've convinced Jack to go with me on Sunday (since it's mother's day) I think I should be able to convince him he needs to do cardio as well after that. The first part of the hike is straight up hill for about a 1/2 mile and then just a gradual rise for the next mile and then another 1/2 mile up on steep switch backs. I had to stop about 6 times the first time I did it and only had to stop twice last weekend.
We did join a gym but with baseball practice/games for him the last couple of months we really haven't gone. Unfortunately baseball is just not steady exercise. But he has to be there an hour before the game so I usually try and walk before the game starts. There are tons of outdoor stuff to do around here maybe if I can get him doing cardio outside and weight lifting at the gym it would make it more fun?
Unless he is morbidly obese I would strongly suggest you let him focus on the strength training.
05-10-2014, 10:39 PM   #552
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I agree.
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05-26-2014, 04:36 PM   #553
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I started swimming again a couple of weeks ago when I was on 30 mg of prednisone. I thought it would help with the insomnia. Haha. It was going well. I'd swim and take a recovery nap and be fine. Now I've dropped my way down to 20 mg and I'm back to not having any energy to swim. I started slow with only 30 mins of light swimming and/or just playing around in the water, but today I did 20 mins and I've been wiped for the whole day. I'm so tired of not doing anything active. I feel like there's something else behind this exercise fatigue. Does anyone have ideas for things that might need checking? My iron is low, but the doctor won't give me anymore infusions because my body just ignores it (anemia of chronic illness). I do take a multivitamin, vitamin d and sublingual B12 (which is a lifesaver), and I try to have milk or a good protein substance after my swims. I have the motivation right now of visiting the Grand Canyon in...oh wow..next month...that I want to get a bit into shape for, so I don't want to give up.
05-26-2014, 05:36 PM   #554
Lam123
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How much sleep do u get at night? I find my sleep all messed up till I'm fully off of prednisone.
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Crohns for 26 years
Previous meds: Pentasa, Imuran
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Humira weekly
- multi vitamin and vitamin D
- B12 shots monthly
Mother of one beautiful boy and a puppy! 👪🐶Happily married to an amazing and patient man, that I call my best friend❤️I'm just living life one day at a time and trying to figure out this crazy disease! 🍀🌞⭐️
05-28-2014, 05:46 AM   #555
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I find exercising 5 days a week manageable. 20 minutes of cardio every day essential to regulate all organs. I did a bit of research to Australia national physical activity guidelines and 150 minutes a week helps me regulate everything. I do 6 hours roughly of weekly weights training which helps keep my muscles strong and fluid. Check a bit more about me here https://www.myanytimechallenge.com/p...f#.U3MCmBYazCQ willing to give training advice to any of y'all who need it
05-28-2014, 05:47 AM   #556
Tjbandek
 
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Lam did u slowly go off pred?
05-28-2014, 10:43 AM   #557
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Yes, sleep has been weird, but I seem to be getting enough of it on my non-workout days. I am dropping the prednisone 5mg every 5 days, which doesn't seem too fast. I'm just going to try to do what I can when I exercise and of course check in with my doctor about this on Friday.
05-28-2014, 12:09 PM   #558
Lam123
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Tomorrow is my first day lowering the dose and slowly tapering off. I have been keeping a journal inorder to find out what foods are affecting me. So far, definitely onions. So I a slowly feeling better with the prednisone, extra sleep, and very careful with my diet.
05-28-2014, 12:11 PM   #559
Lam123
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I am lowering prednisone by 5 mg every 7 days. I have been doing swimming and find it really helps. Hopefully in another week I ca get back to the gym. My knees are acting up as they usually do during a flare.
05-29-2014, 02:05 AM   #560
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Hi, sorry if this has already been discussed. I had anal 3 setons placed in January since then they have been healing (and if this sounds right) getting tucked into there new home! Does anyone have these (lovely ha!) And find a way to exercise without pulling or snagging them or them rubbing, digging in or the wound to sweep more. I tried swimming I was kinda told not to but from what I read on this forum people said they had, so I gave it a go it was very sore!! I walk a lot and if it's a warm day it especially get sore. I don't wanna waste money signing up to a contract to a gym if I can't ho or make my self poorly..

any advice wud b great.
I carry a lot of weight round my tum thighs n bum, so as u can understand it's difficult to try work those areas out!

Thanks in advance.xxx
06-14-2014, 06:20 PM   #561
hawkeye
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Now that surgery is behind me I am trying to get out and walk for at least 30 minutes a day, sometimes 60 if the weather is good, working back up to doing a 5K in August .
Doing a 3K walk tomorrow that is being held virtually http://www.cbc.ca/news/canada/new-br...rest-1.2673190
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Current Medications: None currently. Was on Imuran (150mg/day) and 5-ASA (3000 mg/day) as maintenance meds prior to surgery
Surgeries: Left hemicolectomy 2014.
08-18-2014, 01:54 PM   #562
idlebrain
 
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@Carrie171087: Sorry to hear about the issues you are going through. There are lots of people, unfortunately, with similar concerns and grievances.

Try calmoseptine (or something similar) ointment before you walk or exercise to reduce some of the discomfort and potential damage due to skin chafing.

Exercise in whichever form works for you (doesn't have to be always cardio) will be beneficial in more ways than one. So don't give up on it just yet. Gym is a good option as you will have access to different types of equipment and you can hopefully learn and find out about ones you can tolerate and sustain.
08-25-2014, 03:58 PM   #563
fastlane25
 
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I'm 18 years old just graduated high school and with a lot of hard work and a little luck I got a baseball scholarship to go play college ball. Very excited I leave on the 29th! But I am worried to be living four hours away from home and with a dealing with a lot more stress from both school work and training for baseball. Never had to deal with my crohns all by myself. I was just wondering if there were any college athletes on here that might have a few tips or anything?
08-26-2014, 04:42 AM   #564
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fastlane25,

Hi and congrats on your success!!!
I'm not a college athlete but I used to be a world cup alpine coach and still coach while I go back to university. Crohn's on the road really means to prep and watch the diet for me. I can't let my athletes down on the road so I'm very vigilant and don't experiment with food. My recoveries are slower when I'm flying a lot (especially over to Europe) so I let my colleagues know and hydrate a ton for flights.
For you I would be very open with your coaches, your health is their priority and should be yours as well. Most will have no idea about the disease and there's a lot of bias and misunderstanding in Crohn's so assure them that you got to that level with the disease, so therefore, you can definitely continue to perform and surpass your level with their support. Even my colleagues had to have me spell that out for them occasionally .

Best of luck!!!
10-04-2014, 12:50 PM   #565
fastlane25
 
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I am currently trying to play college baseball while dealing with my crohns. Only been in school for a month and already had 2 flares! it makes it really hard because I have a coach who doesn't really care and a whole team of guys who just don't understand what I am going through. It has always been my dream to play college baseball, but this isn't how I imagined it. I have worked so hard to just get here I don't know how I can just give it up, but I cant keep going on this same path. it just doesn't seem worth it anymore. I don't know how to bring this up to my parents, but I needed to talk with someone about this. What do you guys think I should do?
06-01-2015, 01:54 AM   #566
anmonk
 
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Hi guys I am 23 years old. I was diagnosed with crohn's in 2012 subsequently I underwent intestinal resection surgery since the condition couldn't be controlled. I was normal until 2014 after which my systems started showing up, mostly I suffer from stricturing and obstruction. I was on remicade treatment which went considerable good. Now again I am having an horrible flare up with stricturing of descending colon, I underwent balloon dilation last week the doctor says this would give me relief for a while , due to this reason I had to defer an year from post graduation (biotechnology). I thought this is high time I must concentrate on my health before things go worse.
Has anyone had intestinal stricturing or obstruction? ? Can anyone suggest me tips by which you can avoid obstruction? ? Lately , I have started cycling my energy level is good, but I am scared with the obstruction cause without reason it all starts and I must get hospitalised, I have already been in and out of hospital 3 times in last 2 weeks which is annoying! !
06-01-2015, 04:59 AM   #567
zoeythecat
 
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It is damaging inflammation that causes the strictures, which are scar tissue left behind after flair ups, so in order to avoid accumulating too much of this scar tissue you have to keep the inflammation in check as much as possible. If you are still having flair ups and/or inflammation that sometimes occurs with little or no symptoms in spite of trying different meds you may want to check into using some herbal remedies along with your meds as there are some that do reduce inflammation quite well. Of course you want to check with your doctor about the possibilities of drug interaction with your meds, and as a precaution use the herbal supplements several hours before or after taking any prescription meds to reduce the possibility of any adverse interaction between the two and because it may be unknown if one thing may interfere with the absorption of another. I have recently been diagnosed with Crohn's after having problems most of my life (I am 47 yrs. old and for years was told I had IBS or "bad nerves" with no testing or diagnostic procedures whatsoever, even though I have a family history and was experiencing all the classic symptoms), and I have been using herbal remedies for quite some time because I knew I was not being properly diagnosed and really had no choice but to take matters into my own hands and do a lot of research to educate myself. Some of the things that help me are boswellia serrata, aloe ( but be careful here.... it can cause diahrea), omega 3's, and vitamin D. I have also used medical marijuana (ingesting, not smoking) as it has anti-inflammatory properties and is an immunosuppressant. Although my new doctor has told me it is very obvious by the amount of damage that I have that I have had my condition for at least 30 years and there is extensive damage, these things have helped enough to at least enable me to remain productive and work on a regular basis. However, These things alone are not the answer to treating any IBD, but can be helpful in addition to traditional meds... just remember to talk to your doctor and do not discontinue any of the meds he/she prescribes without first discussing it. I wish you well and hope this helps... Also, exercise is really helpful... I notice a very negative change if I go even a day being inactive, so keep up the cycling
06-01-2015, 08:45 AM   #568
anmonk
 
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Yeah zoeythecat, as you mentioned in your post my last CT scan showed severe inflammation of my desending colon and colonoscopy confirmed the stricturing in the same location. I have consulted a well known ayruvedic doctor lately who has suggested some medication's, though I was a bit skeptical about ayruveda I thought I'll give it a shot this time!! It's been over one month but there is no any evident change In my health, even my blood test inflammatory markers are elevated. My doctor says ayruveda takes time to show it's effect. I am anyways continuing my cycling regime at least I feel good for cycling. I am a bit concerned though because stricturing is very painful and if it goes worse I may have to undergo a surgery again!! Does alternative medicine really take a long time to show it's effect ??
06-02-2015, 03:03 AM   #569
zoeythecat
 
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I would imagine that it would depend on the individual and the types of herbs or alternative medicine being used. I went undiagnosed for most of my life... I had digestive issues starting around 5 or 6 yrs old and everyone said I was faking it because I didn't want to go to school and I couldn't possibly be sick because I didn't have a fever, then as I got older the doctors kept saying I must just have IBS and kept giving me meds that didn't work. Some also blamed it on "bad nerves" and said I needed to calm down ( I am the most laid back person ever. ridiculous.) Or they blamed it on female hormones (ignorant) even though I had a family history of both crohn's and colitis... and no diagnostic testing was ever done. They said they felt it wasn't necessary. I finally got a doctor who listened to me (just a couple of months ago) and he was shocked by the colonoscopy and said he has never seen so much damage and does not understand how I have been living like this for so long as there is at least 30 years of damage done! From March of 2009 -November 2011 I had an uncontrollable flair up so bad that I was going to the toilet every 45 minutes, more than 20x/day, passing huge amounts of blood and mucus, ended up in ER and was told it was just my gall bladder and if I had it out then I would be back to normal. I didn't buy that and didn't have my gall bladder out. I researched natural cures/remedies for gall bladder disease, and made dietary changes, which resulted in very slow, but worthy changes and after about 2yrs I no longer was having gall bladder attacks. Ultrasounds confirmed incredible improvements, but they were slow. As for the crohn's symptoms.. I knew beyond a shadow of a doubt that I had either crohn's or UC long before diagnosis... I just knew... don't ask how. Intuition I guess.. but left without a formal diagnosis I could not get proper treatment from a doctor so I had no choice but to take matters into my own hands and here is something shocking... The first thing I tried (because a family member talked me into it) was medical marijuana. I tried an edible form, and did it before bed when everyone else was asleep because I didn't know how it would affect me. I fell asleep and woke up 12-14 hrs later ( I hadn't had more that 30 minutes of strait sleep in 2yrs because of running to the bathroom), then when I woke up and saw daylight I panicked and checked to see if I had an embarrassing accident in my sleep, which I did not. I ran to the bathroom and had the first solid bowl movement in 2yrs, with very little blood or mucus at all. That day I had about 6 bowl movements instead of over 20. After about a week I was down to 4 bowl movements/day, very little if any blood and no visible mucus. The pain slowly got better over about a month's time and it has worked wonders, however there was one potentially dangerous downfall... I finally got a doctor to agree to a colonoscopy back in 2013 and afterwards he told me "You have obviously had some type of colitis, but it is gone now. There is no inflammation, but lots of strictures which are causing your symptoms" (the only symptom at that point was gas and bloating) and he sent me on my way feeling I didn't need treatment ( I didn't tell him I was using medical MJ because of the negative feelings so many have about it) so again I went without necessary treatment, probably because it worked so well to reduce inflammation. When I discontinue its use it takes anywhere from2 weeks to a month before I seriously flair up and am right back to running to the bathroom every 30-40 minutes, not sleeping, not being able to work or leave my home, even trying to sleep on the floor next to the bathroom. As far as dietary changes, they worked immediately to alleviate symptoms like gas, pain, and bloat, but I would not recommend my diet to anyone with these conditions because for some reason the things that help me hurt others and the diet that others typically follow for crohn's or colitis would practically kill me ( am a vegetarian, eat lots of raw fruit and veggies, and never get sick from them but meats, dairy and rice really do a number on me!). As far as other herbs like the turmeric, Boswellia Serrata, vitamin D, and aloe... I have just started these things recently so I can not offer much feedback there as far as how long until they take effect, and have yet to figure out how much of each is necessary. Since each person is so different in regards to triggers and response to different treatments I would imagine the outcome is very different for each individual. I believe that any one thing alone probably will have limited benefits, but a combination of prescription meds complimented by herbal remedies and lifestyle changes offers the best hope, and also being as active as possible is beneficial, as being physically active does help digestion in general and has been shown to reduce colon cancer risk. Trying out various alternative treatments and natural healing is something that they haven't studied much, so I consider it rather experimental at this point, but I am willing to experiment because after 37 years of suffering and not getting answers I figure I have nothing to lose but my colon... and it looks like that is gonna have to go sooner or later anyway, which could have been avoided had I been properly diagnosed and properly treated long ago before so much damage has been done. Although the situation I am in sucks I consider it a learning experience, and therefor am willing to try things to see if they work at all simply out of curiosity and because I have basically lost faith and trust in doctors after what I have been through. I just hope and wish these things may someday help others to avoid needless suffering, be more productive, and have a decent quality of life. I am sorry I cant really answer your question about how long different forms of alternative medicine takes to work, but it is definitely something to consider. Although there is huge individual differenced in the way each person responds to different treatments, I will keep those who are interested or curious informed about the outcome of the various alternatives I am trying (and since my doctor is still doing some diagnostic testing I have yet to start any prescription drugs/treatment, so any positive changes would have to come from the alternatives I am trying)... but keep in mind, I am not a doctor and these things shouldn't replace the treatment your doctor is recommending. Discuss them with your doctor as a complimentary treatment along with the traditional meds that you are being prescribed
Also, I have recently discontinues the medical MJ use because of the cost so we will see if all of the other things I have started doing will keep the typical full blown flair-ups I experience without it at bay.
06-02-2015, 04:00 AM   #570
anmonk
 
Join Date: Apr 2015
Location: bangalore, India

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hi zoeythecat,
thank you for sharing your experience. Really sorry to hear all that you had to go through without no mistake of yours. I wonder even after advances in medical field why diagnosis of crohn's is still a major concern. I suffered with stomach aliments for 4 years till 2012 when finally i was diagnosed with crohn's and right away underwent intestinal surgery. I was having a feel that i am the one who was diagnosed after a long period of suffering, but after reading your experience i feel i have been diagnosed early before much damage to my colon.
I definitely agree that every individual has his own symptoms and experiences. though the medical terminology for the disease is same, the kind of tolerance to food and medication is very different. Actually its surprising to know that you are able to tolerate raw vegetables which is very good to maintain your nutrient levels, I cannot tolerate them at all. I tolerate rice,boiled vegetables,meat broth well.
I have deferred a year from academics which gives me a lot of time to concentrate on my health. i am patiently taking alternative medications along with my regular meds after consulting my GI i hope the results shows my soon. Just hoping for the best.
Once again thank you very much for sharing your experience it was really helpful. I wish you get the right medical support
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