I started LDN almost exactly one year ago, and it has changed my life. :ybiggrin:
I originally heard about LDN on this website and it sounded like it was worth a try, especsially because i had previously tried quite a few treatments with little or no sucess. So after lots of research, i went to my doctor with studies and information on it, and even though he seemed apprehensive about it working, he agreeded to let me try it. I started taking 4.5 mg every night, right before bedtime. I know some people start out with 1.5 mg and work their way up, but i didn't notice any problems starting out at 4.5 mg, although i'm sure it varies from person to person. The only side effects i've noticed are constipation (which happened during the first month of taking it, and lasted for around two weeks, but hasn't happened again since), occaisinal vived dreams, and grogginess when i wake up. these are quite mild compared to other drugs used to treat this disease, like when i was on remicade i pretty much always had a cold, and i got various infections quite often. something i've noticed sice beginning LDN is that it seems to have strengthed my immune system, since starting this medication i haven't gotten a cold or the flu once, even this past january when my entire family got the flu, i somehow managed to not get it!
After around 1-2 months of being on LDN i started to see improvments. I started gaining weight, feeling a lot more energized, and all my symptoms were diminishing. At 3 months nearly all my symptoms were gone. (I should note that i'm diagnosed with moderate to severe crohns disease, with a very large amount of ulcers on the lining of my intestines, so my disease isn't easily treated.) i got blood tests 3 months after starting LDN and my SED rate was 21, which was a dramatic drecrese from the last time i had had blood tests, which i think were around a month before starting LDN when my SED rate was at 50!
I think i should mention i'm not on any other medications, the only other thing i'm on is a gluten free diet, because i have a mild gluten allery. Before LDN i have tried quite a few treatments: remicade (didn't work), pentasa (didn't work), prednisone (allergic), the elemental diet (i did see some improvments with it, but it wasn't helping with all my symptoms), and flagyl (gave me very bad D, and made some symptoms worse). I was looking for a way to treat my disease with the smallest amount of side effects as possible, and it turns out this drug is the solution i was despretely searching for.
Today, i'm at a healthy weight, i'm very active, and i eat pretty much whatever i want, which is amazing, especially after being on the elemental diet for a very long period of time. I honestely never thought i would be this healthy again, i feel very lucky to have found the drug that works for me. :ybiggrin:
I originally heard about LDN on this website and it sounded like it was worth a try, especsially because i had previously tried quite a few treatments with little or no sucess. So after lots of research, i went to my doctor with studies and information on it, and even though he seemed apprehensive about it working, he agreeded to let me try it. I started taking 4.5 mg every night, right before bedtime. I know some people start out with 1.5 mg and work their way up, but i didn't notice any problems starting out at 4.5 mg, although i'm sure it varies from person to person. The only side effects i've noticed are constipation (which happened during the first month of taking it, and lasted for around two weeks, but hasn't happened again since), occaisinal vived dreams, and grogginess when i wake up. these are quite mild compared to other drugs used to treat this disease, like when i was on remicade i pretty much always had a cold, and i got various infections quite often. something i've noticed sice beginning LDN is that it seems to have strengthed my immune system, since starting this medication i haven't gotten a cold or the flu once, even this past january when my entire family got the flu, i somehow managed to not get it!
After around 1-2 months of being on LDN i started to see improvments. I started gaining weight, feeling a lot more energized, and all my symptoms were diminishing. At 3 months nearly all my symptoms were gone. (I should note that i'm diagnosed with moderate to severe crohns disease, with a very large amount of ulcers on the lining of my intestines, so my disease isn't easily treated.) i got blood tests 3 months after starting LDN and my SED rate was 21, which was a dramatic drecrese from the last time i had had blood tests, which i think were around a month before starting LDN when my SED rate was at 50!
I think i should mention i'm not on any other medications, the only other thing i'm on is a gluten free diet, because i have a mild gluten allery. Before LDN i have tried quite a few treatments: remicade (didn't work), pentasa (didn't work), prednisone (allergic), the elemental diet (i did see some improvments with it, but it wasn't helping with all my symptoms), and flagyl (gave me very bad D, and made some symptoms worse). I was looking for a way to treat my disease with the smallest amount of side effects as possible, and it turns out this drug is the solution i was despretely searching for.
Today, i'm at a healthy weight, i'm very active, and i eat pretty much whatever i want, which is amazing, especially after being on the elemental diet for a very long period of time. I honestely never thought i would be this healthy again, i feel very lucky to have found the drug that works for me. :ybiggrin: