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Crohn's Disease Forum » Parents of Kids with IBD » CT scan - some thickening of proximal duodenum?


 
09-28-2013, 09:53 PM   #1501
Catherine
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It long time since by middle daughter had kidney infection. She symptoms were vomiting, sleeping all the time and lastly fever. She didn't appear to have any pain. She was hospitalise for 3 days. The er doctor decided she was very sick, when she didnot cry when they put the IV in.
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09-29-2013, 02:08 AM   #1502
CarolinAlaska
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Poor Jaime. I hope the antibiotics help. Can she keep them down?
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09-29-2013, 03:37 AM   #1503
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She doubled up on anti-biotics yesterday so that she had whole dose for the day. Still bloody urine but she says she feels a little better!

She did keep the anti-biotics down yesterday, thank goodness.

Really hope it is just a urine infection.
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09-29-2013, 05:05 AM   #1504
Catherine
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Make sure you get urine culture done once she of antibiotics.
09-30-2013, 07:05 AM   #1505
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How are things going Niks?

Dusty. xxx
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09-30-2013, 10:11 AM   #1506
ChampsMom
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They gave her an antibiotic prescript over the phone?! With everything that has gone on in her conflicted body!?! I'm numb with shock...
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09-30-2013, 10:12 AM   #1507
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Think of you both
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09-30-2013, 03:32 PM   #1508
Niks
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Yesterday her pain in right lower abdo and back were severe. Probably not as bad as some of her previous abdo pain, but she put it at an 8 out of 10. After ringing out of hours again, we ended up in Surgical Assessment. They scanned her, as urine showing blood, but not infection and announced she DID NOT have kidney stones. Did she want to stay in for pain relief? Errrr No - thank you. If no kidney stones she'll live with it like every other time.

This morning THIS is ONE of the 20 or so stones that she passed!!!


FFS - poor bugger. What is the matter with these people. They pretty much made out that there was nothing wrong with her. She is getting a follow up urology appointment. But my god that must have been painful, and only an 8 out of 10! That stone was HUGE
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09-30-2013, 03:33 PM   #1509
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OMgoodness! Didn't mean for that pic to be so big!! lol.

Do you think that her severe dehydration is the cause of this??
09-30-2013, 03:50 PM   #1510
DustyKat
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Good golly Miss Molly! Poor Jaime!

Dehydration is definitely a cause for kidney stones Niks and is probably the most common cause in an otherwise healthy person. Be sure to have it sent off for analysis to see exactly what sort of stone it is...may give clues as to other underlying issues.

Thinking of you both!

Dusty. xxx
09-30-2013, 03:55 PM   #1511
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You'd think she'd think that was an obvious thing to do wouldn't you!? I asked her if she took them in already, she looked at me horrified and said that she threw them away! Great. I have told her if she has anymore to keep them!! GRRRRRR.
09-30-2013, 04:13 PM   #1512
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Given that 20 stones of that size were missed by the surgery dept...I think I'd be heading to London No one should live with the kind of pain that Jamie endures, without some kind of an idea of what is going on. Be sure to keep the sample and bring it with you. Don't forget to email to all of her docs too. Perhaps retake with a ruler for sizing perspective.

Best wishes to you both.
09-30-2013, 04:21 PM   #1513
Niks
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How could they have missed this?? She threw the stone away!!! She is still vomiting lots, so dehydration is going to crop up again. Is there anything she can do to avoid getting them again? x
09-30-2013, 05:03 PM   #1514
Kimberly27
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It makes me sad that that was only an 8 out of 10 on her pain scale. No words...

Poor baby.

Kimberly
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09-30-2013, 07:14 PM   #1515
CarolinAlaska
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Yesterday her pain in right lower abdo and back were severe. Probably not as bad as some of her previous abdo pain, but she put it at an 8 out of 10. After ringing out of hours again, we ended up in Surgical Assessment. They scanned her, as urine showing blood, but not infection and announced she DID NOT have kidney stones. Did she want to stay in for pain relief? Errrr No - thank you. If no kidney stones she'll live with it like every other time.

This morning THIS is ONE of the 20 or so stones that she passed!!!


FFS - poor bugger. What is the matter with these people. They pretty much made out that there was nothing wrong with her. She is getting a follow up urology appointment. But my god that must have been painful, and only an 8 out of 10! That stone was HUGE
How big is that thing? Ultrasound isn't the best test for stones and often misses them. Hopefully the urologist can help figure out what is going on. Makes me wonder how much the vomiting is related to kidney issues...
09-30-2013, 07:16 PM   #1516
Kimberly27
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Are kidney stones a side effect of any of the medications she's been on?

Kimberly
09-30-2013, 09:27 PM   #1517
vtfamily
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How could they have missed this?? She threw the stone away!!! She is still vomiting lots, so dehydration is going to crop up again. Is there anything she can do to avoid getting them again? x
The short answer is...they should not have missed it! Time for mamma bear to show some serious teeth!!
09-30-2013, 09:39 PM   #1518
my little penguin
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I have seen it happen before with kidney stones.
Hope the urologist has answers
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09-30-2013, 10:17 PM   #1519
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I guess they wouldn't be able to see that just from urine sample MLP? x
Hi Niks
So sorry to hear this saga continues unabated for you both---just what is happening to medical care these days?.
The crystals which may form stones are often microscopically observable in a urine specimen, so a urinalysis with microscopy is worth doing and crystals specifically requested by the attending physician..
Too bad these days with dipsticks being used in the wrong places the microscopy gets overlooked.
Any formed stones should be saved for analysis since different substances cause different stone formation.
Feel better soon
Hugs and best wishes
Trysha
10-01-2013, 02:15 AM   #1520
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Niks, has she let the refering dr know that she passed these stones and she needs urgent referal otherwise they will refere her as routine. She needs a second opinion yes the vomiting could be linked to her stones but it does not explain her blood in her stools or the vomiting blood, what is her latest ESR and CRP will indicate how much inflmation she has going on also she must go to GP and insist on Faecal Calpotectin being done this specifically shows up level of inflmation in gut simple test but very accurate and gastro DRs dont egnore. this whole sorry saga makes me utterly ashamed for the NHS what the hell are your local hospitals doing. Mail that pic to her DRs in Oxford and update them they need the whole picture. Katie
10-01-2013, 02:55 AM   #1521
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Poor thing! I agree - email that picture to the docs "treating" Jaime and let them know what's happening. Shocked they managed to miss so many stones!! Ridiculous.
After the way they have left your poor girl, I would write and complain to the NHS complaints line. Sure they have done some tests, but she is so poorly they should really be keeping her in until her pain, nausea and weight have stabalized! If they don't know what it is they should be emailing other countries/doctors, etc until someone knows something. I have noticed one of their greatest failings in this country is the willingness to admit they don't know something and then ask other doctors in other cities/countries, etc for help!
10-01-2013, 03:09 AM   #1522
Niks
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I am reeling from it all. She's in more of the same pain today so going to GP and will show him pic. She knows to save any more!!!

Will get her to e-mail later. They take no notice from me! X
10-01-2013, 05:15 AM   #1523
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I've never experienced kidney or bladder stones, but could ALL of her problems be attributed to them or is everyone thinking they are more a symptom than the problem?
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10-01-2013, 05:16 AM   #1524
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Oh Niks, Poor love Your kidneys are so precious they are not to be messed with do hope her GP is pro active and will support her the trouble is when you have an condition that goes undiagnosed for along time drs tend to glaze over when you start telling your history, its so wrong of them seen it happen time and time again but if they have the whole picture its so much easier to piece the diagnosis together. I would have thought its simple, she is obstructing following imflamation in her gut ?CD ?IC causing her to bleed and vomit ect just because she has not had positive biopsy they discard it, does her gastro con in oxford have specalist nurse if yes contact her they can work wonders. you need a good nurse on your side!!
Best of luck
Katie
10-01-2013, 05:28 AM   #1525
Catherine
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Pictures of kidney stones

http://www.herringlab.com/photos/
10-01-2013, 11:49 AM   #1526
Niks
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Wow Catherine!! I guess the nearest is Struvite stones. It's amazing how many different types there are!

Her GP laughed when he saw the pic of stone and asked how on earth the hospital could have missed them! He is calling Oxford to let them know and liaise with them as to what to do.

He is also pushing the urologist appointment.
10-01-2013, 11:56 AM   #1527
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It's about time! Good luck!
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10-01-2013, 12:11 PM   #1528
Mylittlesunshine
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OMG niks I can't belive they missed this niks
Actually niks I probably can belive they did.
I'm so sorry for all poor Jamie is going though
I really hope you manage to get to the bottom of the
Cause of all her problems.
It really breaks your heart for all that Jamie
Has gone through and is gon going through now.
Hugs to you both x x
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10-02-2013, 02:31 AM   #1529
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This is unbelievable, there are no words for how negligent this is!

How did she manage to pass that without passing out? :O

She is one brave girl.
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10-02-2013, 02:53 AM   #1530
Catherine
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Niks, glad your finally going to see a different type of specialist.
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