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Crohn's Disease Forum » Parents of Kids with IBD » CT scan - some thickening of proximal duodenum?


 
03-15-2013, 06:10 PM   #241
kimmidwife
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Niks,
Just found a link to an article which mentions that tethering can be caused by adhesions
http://www.medscape.com/viewarticle/464849_3
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Crohn's Dx'ed Sept 08
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Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.

Last edited by kimmidwife; 03-15-2013 at 06:11 PM. Reason: Spelling
03-15-2013, 07:17 PM   #242
Tesscorm
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I was thinking the exact same thing Kim... that if her problems started after having her appendix removed, it could be adhesions causing some of her current pain. Jamie may have had reason (pain) to remove her appendix but the issues that have followed may be related to adhesions.
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03-15-2013, 11:46 PM   #243
CarolinAlaska
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Hi Niks,

I am glad that they are finding these things in all the previous tests and you are not being sent home with more anti-sickness meds. I'd want my daughter to stay and be thier top priority until you find answers. Going home means standing in line again to get their attention! Remind Jamie of that! I know the hospital isn't fun, but it is so important for her right now!
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03-16-2013, 01:12 AM   #244
vtfamily
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Niks, My first question was tethered to what? I tried to help do some searching for you too. Found something called Clinical Imaging of the Small Intestine. It's a PDF file. There is a good description of tethering of folds on page 542. It also talks about strictures and adhesions and has a few images too. Hope it is helpful: http://books.google.com/books?id=sOr...0bowel&f=false

Tell Jamie to try to be patient (While she's a patient...LOL). It's not fun to spend so much time in the hospital, however leaving and then bouncing back into the hospital right away isn't any fun either. It's much better to have your questions answered and allow the doctors to do a full investigation the first time.

Cheryl
03-16-2013, 03:29 AM   #245
Niks
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She had her appendix removed through key hole, it was healthy and at the time didn't make any difference to the pain and sickness (although no where near as bad as she has recently had). It just seemed to disappear, and came back from time to time for a month or two each time. This time however it just hasn't gone!

I agree she needs to stay, and she is really happy that she is allowed out today for 5 whole hours!! We are going to go and spend some time at her aunt's house who lives locally.

Thank you all for the links, suggestions and support! It is worth checking out whether her previous op has anything to do with all of this too!

vtfamily - I got the impression that her bowel is tethered to itself, but will certainly check that. It is just a shock when your GI tells you her CT scan is normal when someone else looks at it, it really isn't!
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03-16-2013, 03:57 AM   #246
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Enjoy the free time! The outside world seems so much better when you've been in hospital
03-16-2013, 05:38 AM   #247
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Hey Niks...

My goodness, what a ride you have had!

I well understand Jamie's desire to be out of there, even a few hours will make the world of difference, believe you me!

Just putting it out there...inflammation of the bowel also has the potential to cause tethering of bowel loops either to each other and/or to surrounding structures. The inflammatory process literally causes them to stick together (tethering).

Good luck with the MRE! I hope you both get the answers you need...

Dusty. xxx
03-16-2013, 08:04 AM   #248
dannysmom
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Wow ... I am so glad you are getting answers. Good luck with the testing. I hope she enjoys her 5 hours out!
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03-16-2013, 08:42 AM   #249
Tesscorm
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Glad she stayed in for the weekend! Enjoy your time out!! Even only a few hours will make a huge difference!

03-16-2013, 09:12 AM   #250
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Enjoy your time away from hosp
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03-16-2013, 05:44 PM   #251
Niks
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Jaime enjoyed going out today but was equally glad to get back for pain relief. She vomited once and had bad abdo pain!

She felf better when I left, but keeps feeling really hot, even when it is really not very warm!! She was stood by the window a lot to try and cool off. The nurse checked her temperature 35.2!! That seems really low? Looking at all of her recorded temperatures they are all really low. The highest is 36.4. It is odd that she feels so hot and odd that her body temperature is so low.
03-16-2013, 06:13 PM   #252
CarolinAlaska
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Hugs to Jaime. I'm glad she got out, but also glad she's back in good hands while this gets sorted out... Wierd about her temps.
03-16-2013, 07:50 PM   #253
kimmidwife
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Glad she got to go out for a little bit but sorry she started feeling poorly again. Low body temperature can be caused by hypothyroidism. Has she had her thyroid checked? It can also be caused by low blood sugar which may make sense if she is vomiting and not keeping any food down she certainly may have low blood sugars.
03-16-2013, 08:44 PM   #254
DustyKat
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So good to hear that Jamie had a good time out.

Sorry I am out of sync with all this Niks but is Jamie still on Pred? If so it can mask a temperature and signs of infection.

Thinking of you,
Dusty. xxx
03-17-2013, 01:21 AM   #255
Niks
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Dusty, they are reducing Pred. She is on 20mg at the moment. Nursing staff don't seem concerned about temperature though.. Maybe that's just her?

Kim, her vomiting is so much better, when she first was admitted her blood sugars were really low. 2.3.. I think they got that under control and not checking it now.

xx
03-17-2013, 01:22 AM   #256
vtfamily
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Niks,

You've done an AMAZING job with all of this! Probably the best take away, is to know that when the doctors give you dumb answers in the future (and they will), trust your instincts and keep pushing for answers.

It seems like this disease always comes with news you never expected. This week we were informed that my son has bile reflux. Similar to acid reflux, but the bile isn't draining from the stomach or jejunum properly. So now we have to determine if the bile reflux is a symptom or a cause. Either way, it is not helping the Crohn's inflammation or ulcers at all!

We will continue to pray for you and Jamie...and the doctor's too.
Cheryl
03-17-2013, 07:44 AM   #257
dannysmom
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Hi Niks -
Danny's temp is typically low and he is always hotter than others- even as an infant he always kicked off his blanket. And when he was at his sickest, he was the hottest. He went a few years with only wearing shorts. I have no idea what it means.
03-17-2013, 09:44 AM   #258
QueenGothel
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Just chiming in, trying to get caught up on this thread. Niks sounds obstructive yes. I see they scheduled her for a MRE. Has she had a fluoroscopy done for upper GI and small bowel follow through. This is usually the test that shows better that there is an obstruction and exactly where it is. I hope you get this figured out soon. I read the last portion of this. Rowan had a very large obstruction and unfortunately this test (she had 4, 2 barium swallow and 2 enemas) were all inconclusive for her and it wasn't until they went in and explored that they found 3 obstructions. Hopefully they can avoid this. Adhesions can really be a bugger to deal with. But I see she has had previous surgeries so I am thinking it could be very possible.

Hugs to you both.
03-17-2013, 04:21 PM   #259
Sascot
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Just wanted to wish you luck for tomorrow's test!
03-17-2013, 04:25 PM   #260
Niks
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Thank you! xx
03-17-2013, 08:00 PM   #261
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I hope all goes well and will pray that answers will be found.
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03-18-2013, 01:17 AM   #262
CarolinAlaska
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I hope there are no more delays for her tests! Praying for all to go as planned!
03-18-2013, 04:26 AM   #263
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Thinking of you both today and hope you get some answers xx
03-18-2013, 05:03 AM   #264
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What time are the scopes, Nik? Good luck!!
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03-18-2013, 05:20 AM   #265
Mylittlesunshine
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Niks, tell Jamie good luck for today
Will be thinking of you both x x
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03-18-2013, 05:39 AM   #266
Niks
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Thank you everyone!! MRE booked for midday xx
03-18-2013, 07:04 AM   #267
QueenGothel
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I hope all goes well and you get some much needed answers today!
03-18-2013, 10:53 AM   #268
Jmrogers4
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Thinking of you both, hope all goes well today
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03-18-2013, 11:04 AM   #269
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Hope all goes well today and you get some answers, sending Hugs and support!
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03-18-2013, 11:55 AM   #270
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Thinking of you hope all goes smoothly.
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Crohn's Disease Forum » Parents of Kids with IBD » CT scan - some thickening of proximal duodenum?
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