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Crohn's Disease Forum » Pregnancy, Trying to Conceive & Breast Feeding with IBD » After taking azathioprine is pregnancy is possible?


 
03-01-2013, 05:06 AM   #1
shilpi saha
 
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After taking azathioprine is pregnancy is possible?

i am shilpi saha 4m kolkata i was diagnosed in march 2011 as a small bowel crohns disease. but my symptoms shows from 2004.

From march 2011 i am on pentsa and steroids, and probiotics .but my problem is most of the time my hemoglobin level goes down to 6 to 6.8.now my doc said to me that i have to start imuran and also he said to me that after taking this medicine i cant be pregnent due to medicine side effect is it true????

Also i want to know how long pentasa can control those symptoms. i have stricturing and lots of ulcer in my intestine.what can i do now please suggest me should i start the medicine??

i have one more question any body give me any information about good gi(crohns specialist) located at kolkata,india.have you any idea about ayurveda or yoga treatment

Last edited by rygon; 03-01-2013 at 05:39 AM. Reason: Added paragraphs for easier reading
03-04-2013, 01:57 PM   #2
SarahBear
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Hi, shilpi saha!

Are you asking if you can be pregnant after taking Imuran, or while taking Imuran?

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Diagnosed with Crohn's disease 12/6/08.
Have taken: Prednisone, 6mp, methotrexate, Pentasa.
Currently waiting for a new medication!

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03-04-2013, 04:12 PM   #3
Angrybird
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Hello and welcome to the forum.

Just to confirm do you know whether the stricturing is down to inflammation or scar tissue? I myself was on Imuran's 'sister' drug 6-mp during my pregnancy and did not have any issues, my GI doc has experience treating women with both of these during pregnancy which I think is key. I would advise that the tum be completely settled for a while before trying to conceive as you are then much less likely to flare during the pregnancy.

AB
xx
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DX: Crohns July 2002
Surgery: Ileocecal Resection Sept 2011
Now:Tummy behaving itself and new mummy to baby Nicholas
Current Meds: 6-MP 75mg,B12 injections every 3 months
Previous Meds: Budesonide, Prednisone, Remicade, Pentesa,Hydroxychlorequine,Azathioprine (tried twice) and Methotrexate
03-05-2013, 03:41 AM   #4
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hi shilpi

I feel your main question has been answered by AB and others.

I also searched for IBD specialist but there are none, especially so in India as there are very few patients here to start with. So you have to look for very good/famous gastroentelogists. I know a few names here in Mumbai and visit some of them, but I don't know the names in Kolkata. There was a very famous GI in CMC Vellore B.Ramkrishna whose main area of research was IBD, and I tried to get an appointment with him, only to be told that he has retired in Oct 2012. However, I am planning to visit CMC Vellore anyway as they have a large colorectal surgery group as well, so will meet their GI group also that time.

You can definitely try ayurveda or yoga, but in the last two years I met atleast 50 patients of IBD in hospitals and support groups, many tried, nobody told they gained by trying with homeopathy or ayurveda.

Cheers,

Dinesh
03-07-2013, 06:07 AM   #5
shilpi saha
 
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hi shilpi

I feel your main question has been answered by AB and others.

I also searched for IBD specialist but there are none, especially so in India as there are very few patients here to start with. So you have to look for very good/famous gastroentelogists. I know a few names here in Mumbai and visit some of them, but I don't know the names in Kolkata. There was a very famous GI in CMC Vellore B.Ramkrishna whose main area of research was IBD, and I tried to get an appointment with him, only to be told that he has retired in Oct 2012. However, I am planning to visit CMC Vellore anyway as they have a large colorectal surgery group as well, so will meet their GI group also that time.

You can definitely try ayurveda or yoga, but in the last two years I met atleast 50 patients of IBD in hospitals and support groups, many tried, nobody told they gained by trying with homeopathy or ayurveda.

Cheers,

Dinesh
with doc bs ramakrishna i have an apointmnt on 22/11/11 but aftter reaching cmc vellore they told me doc was out of india and i have to vsit jnr doc but am nt stisfied wth jrdoc advise ,at that time my treatment alredy going on at chennai apollo.if you got any information about doc bs ramakrishna thn kindly infrm me
03-07-2013, 06:13 AM   #6
shilpi saha
 
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Hi, shilpi saha!

Are you asking if you can be pregnant after taking Imuran, or while taking Imuran?

doc told me to start imuran .but we r planning for our baby, now doc told me that i have to start imuran immediately and also said that after taking this medicine i cant concive due to med side effect
03-07-2013, 06:56 AM   #7
Aussie
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Hi Shilpi, much more dangerous to foetus for Mum to have a flare of Crohns while pregnant rather than any medication for Crohns (with the exception of thalidomide and methotrexate). If you aren't in remission when you conceive, then there is two thirds chance that you will stay active (ie. not in remission) during your pregnancy which is bad for baby.

Imuran takes about 3 months to start working, would suggest starting ASAP and holding off on getting pregnant until you are in remission. Imuran very safe in pregnancy, lots of recent evidence to back that up. Your doc is using old information.

Best wishes.
03-07-2013, 11:27 PM   #8
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with doc bs ramakrishna i have an apointmnt on 22/11/11 but aftter reaching cmc vellore they told me doc was out of india and i have to vsit jnr doc but am nt stisfied wth jrdoc advise ,at that time my treatment alredy going on at chennai apollo.if you got any information about doc bs ramakrishna thn kindly infrm me

Hi

I have been taking treatment from cmc velore for the past one year. I was consulting Dr. Ramakrishna till sep 2012 before his retirement. I heard that he has plans to settle down in cheenai and practice in srm hospital. I will let u know if I get any more info.
03-08-2013, 07:00 AM   #9
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with doc bs ramakrishna i have an apointmnt on 22/11/11 but aftter reaching cmc vellore they told me doc was out of india and i have to vsit jnr doc but am nt stisfied wth jrdoc advise ,at that time my treatment alredy going on at chennai apollo.if you got any information about doc bs ramakrishna thn kindly infrm me
Hi Shilpi

Do you remember which doctor you had met at CMC Vellore? Because I am planning to visit them this information will be helpful. How satisfied you were with Chennai Apollo treatment? I heard of GI Dr. Rajkumar there who it seems has left the hospital and started his own clinic in Chennai.
03-08-2013, 07:12 AM   #10
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Hi

I have been taking treatment from cmc velore for the past one year. I was consulting Dr. Ramakrishna till sep 2012 before his retirement. I heard that he has plans to settle down in cheenai and practice in srm hospital. I will let u know if I get any more info.
Hi Shalinico

Could you tell us how satisfied you were with Dr. Ramkrishna? Also since you have visited CMC vellore so many times, whom else you can meet for Crohns'? How are Dr. A.J.Joseph/Dr. Ebby George Simon? What is your general impression about CMC - do they conduct too many tests etc. or refer to many other doctors - how many days you should keep in hand when you visit? Have you visited Dr. Rajkumar in Chennai or Dr. Palnivel in Coimbatore?

Last edited by DD2020; 03-08-2013 at 12:02 PM.
03-08-2013, 12:03 PM   #11
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Is there anybody else who has visited CMC Vellore? Then please answer the same questions
03-11-2013, 10:50 AM   #12
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Talk to you doctor before you get pregnent I am on azoram the doc before putting me on azoram strongly adviced me againt fathering any more children. and also please understand your child will have a higher risk of crohns so you will have to be mentally prepared for that. I have a daughter it scare me knowing that there is a crohns gene somewhere in her which may make her life misserable.
03-12-2013, 01:52 AM   #13
shilpi saha
 
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Hi Shilpi

Do you remember which doctor you had met at CMC Vellore? Because I am planning to visit them this information will be helpful. How satisfied you were with Chennai Apollo treatment? I heard of GI Dr. Rajkumar there who it seems has left the hospital and started his own clinic in Chennai.
i had an appointment with doc bs ramakrishna but after reaching there from gastro dpet they told me all senior doc going for conference so i have to visit jr doc they all r student and that jr doc told me they r not sure that i have crohns disease and tey want to done all the test wich already done in chennai apollo( ct scan, capsule endoscopy) and told me it takes more than 2 wk. but when i take appointment via creditcard they told me it needs only 1wk. and i take only 1wk leave frm my ofice.i think they only want to do experiment on me because bfore going at cmc vellore i visit more than five doc from kolata and bangalore(all r dm in gastro) they all confirmed me that i have crohns disease in small intestine.

in chennai apollo dr m hariharan diogonised my disease, but each n evry mnth i have to go 4r chkup which is not posible 4r me to continue.
bfr diogonised my disease i was admit in hospital more than seven times in very reputed hospital(kolkata apollo, kolkata fortis) but they dont diogonised any thng, all same test done in kolkata apollo .
03-12-2013, 09:23 AM   #14
shalinico
 
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Hi Shalinico

Could you tell us how satisfied you were with Dr. Ramkrishna? Also since you have visited CMC vellore so many times, whom else you can meet for Crohns'? How are Dr. A.J.Joseph/Dr. Ebby George Simon? What is your general impression about CMC - do they conduct too many tests etc. or refer to many other doctors - how many days you should keep in hand when you visit? Have you visited Dr. Rajkumar in Chennai or Dr. Palnivel in Coimbatore?
After visiting many hospitals in chennai and coimbatore for the first time I felt am in safe hands when I consulted with Dr. Ramakrishna, he is very knowledgeable and a down to earth person, he answers all our queries with utmost patience.....After his retirement I am now consulting with Dr. Ebby who is also good, I know Dr. Joseph as well who is also equally good....there are currently more than 600 IBD patients taking treatment in CMC.....Also the surgical unit headed by Dr. Sukria Nayak have seen so many IBD cases and well experienced in this matter.....

For the first time, we have to book the appointment by phone, and from then on you can book it online....if you are going only for consultation one day is enuf and if you want to undergo any test then it may take a couple of days....You specifically ask for Dr. Ebby or Dr. Joseph, otherwise you will have to meet junior doctors. Dr. Unnikrishnan is a junior doctor who is also good...

For my surgeries, CMC took only few blood tests and an xray and they said all the test reports which I took from global hospital chennai (they referred me to CMC) would suffice.....

I have been to Gem hospital coimbatore and consulted with Dr. Khan who did a colonoscopy but was not able to diagnose my disease. Dr. Palanivel is an expert in laproscopic surgeries. I dont have much idea abt Dr. Rajkumar

Overall, I would recommend CMC Vellore storngly for anyone with IBD in India (both medical gastro and surgical gastro). It is very economical also.

Dr. Ramakrishna is available in SRM hospital, vadapalani, chennai.....I called up the reception and planning to meet him next week.....More after meeting him....

Let me know if you need any more details.
03-13-2013, 02:16 AM   #15
shilpi saha
 
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After visiting many hospitals in chennai and coimbatore for the first time I felt am in safe hands when I consulted with Dr. Ramakrishna, he is very knowledgeable and a down to earth person, he answers all our queries with utmost patience.....After his retirement I am now consulting with Dr. Ebby who is also good, I know Dr. Joseph as well who is also equally good....there are currently more than 600 IBD patients taking treatment in CMC.....Also the surgical unit headed by Dr. Sukria Nayak have seen so many IBD cases and well experienced in this matter.....

For the first time, we have to book the appointment by phone, and from then on you can book it online....if you are going only for consultation one day is enuf and if you want to undergo any test then it may take a couple of days....You specifically ask for Dr. Ebby or Dr. Joseph, otherwise you will have to meet junior doctors. Dr. Unnikrishnan is a junior doctor who is also good...

For my surgeries, CMC took only few blood tests and an xray and they said all the test reports which I took from global hospital chennai (they referred me to CMC) would suffice.....

I have been to Gem hospital coimbatore and consulted with Dr. Khan who did a colonoscopy but was not able to diagnose my disease. Dr. Palanivel is an expert in laproscopic surgeries. I dont have much idea abt Dr. Rajkumar

Overall, I would recommend CMC Vellore storngly for anyone with IBD in India (both medical gastro and surgical gastro). It is very economical also.

Dr. Ramakrishna is available in SRM hospital, vadapalani, chennai.....I called up the reception and planning to meet him next week.....More after meeting him....

Let me know if you need any more details.
hiiii
u r rite that bs ramakrishna one of the best ibd specialist in india . i read his all journal and paper which is written on crohns disease and thtswhy i want to visit him but my bad luck that at that time he was not present in india.kindly if u give me any phone no of srm hospital.suddenly my condition detoriate and i want to visit him in any cost
03-13-2013, 03:01 AM   #16
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hiiii
u r rite that bs ramakrishna one of the best ibd specialist in india . i read his all journal and paper which is written on crohns disease and thtswhy i want to visit him but my bad luck that at that time he was not present in india.kindly if u give me any phone no of srm hospital.suddenly my condition detoriate and i want to visit him in any cost
Am sorry to hear abt ur condition, this is the number of SRM hospital(vadapalani), 044-49211455, call up the reception and bk an appt.......gud luck....
03-14-2013, 01:31 AM   #17
shilpi saha
 
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Am sorry to hear abt ur condition, this is the number of SRM hospital(vadapalani), 044-49211455, call up the reception and bk an appt.......gud luck....
many many many thanks from my heart , i have got appointment on 25th march. i stay in kolkata (westbengal) can u give me one more information that how to reach srm hospital from chennai airpot

please chek the aderess which one right adress?????
SRM HOSPITALS
68,Thambiah Road,
Westmambalam,
Chennai - 600 033.

Address: No.1, Jawaharlal Nehru Road, (100 feet Road, Near Vadapalani Signal), Vadapalani, Chennai 600026

Last edited by shilpi saha; 03-14-2013 at 02:01 AM.
03-14-2013, 02:17 AM   #18
shalinico
 
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many many many thanks from my heart , i have got appointment on 25th march. i stay in kolkata (westbengal) can u give me one more information that how to reach srm hospital from chennai airpot

please chek the aderess which one right adress?????
SRM HOSPITALS
68,Thambiah Road,
Westmambalam,
Chennai - 600 033.

Address: No.1, Jawaharlal Nehru Road, (100 feet Road, Near Vadapalani Signal), Vadapalani, Chennai 600026
You are most welcome and happy to know that u r going to meet up with Dr. BRS soon....He is consulting in vadapalani office only, but he visits katankulathur SRM hospital frequently, u beter call up the number which I gave before two days of ur appt and confirm in which location Dr. Ramakrishna will be available on 25th march.....I tried to get Dr's direct number yesterday but cudnt. Wherever he is u bk a call taxi from chennai airport and reach his location...all the best....
03-14-2013, 12:16 PM   #19
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Seeing all the enthusiasm I am also changing my travel plans. I was initially planning for a week at CMC in the 1st or 2nd week of April, now I think I will try mumbai to chennai, meet Dr. Ramakrishna, then to vellore (just 3 hr by bus) and meet doctors from both gastro and colorectal surgery groups, back to mumbai. If I get all three appointments in a single week shd not still take more than 6/7 days

So my request to both of you, keep posting the developments, especially the feedback after meeting him.
03-14-2013, 01:14 PM   #20
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hi shalinico

thanks a ton for all the info, u seem to understand all the questions we might have. I just now saw your previous posts, our case is nearly similar, I just had an year of remission after detection which you did not get. I found that you tried homeopathy and ayurveda, did you make any serious effort finally with ayurveda? If yes how was the experience?
03-14-2013, 01:41 PM   #21
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Also the surgical unit headed by Dr. Sukria Nayak have seen so many IBD cases and well experienced in this matter.....

You specifically ask for Dr. Ebby or Dr. Joseph

Let me know if you need any more details.
I am planning to take an app with Dr. Ebby then, he is also the only one who had replied to one of the many mails I had sent to their gastro and surgical groups.

About surgery I am in bit of doubt, basically what I understood from the net is they have so big a gastro surgery group that they have divided it in three parts - "upper GI surgery" group (stomach/liver/pancreas - none of our concern), "abdominal wall and intestine surgery" group, which is headed by your Dr. Sukria Nayak, and "colorectal surgery" headed by Dr. Benjamin Perakath. Ideally your operation should have been done by the colorectal surgery group, as they should remove colon, form J pouch etc.

Since you seem to have done your homework well let me ask, do you know about the skills of Dr. Benjamin Perakath or Dr. Mark Ranjan Jessudasan or any others name in the colorectal surgery group? Had Dr. BSR suggested Dr. Sukriya Nayak? Ofcourse I understand that there is no clear difference between the area of work of these two groups.
03-14-2013, 07:54 PM   #22
shalinico
 
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many many many thanks from my heart , i have got appointment on 25th march. i stay in kolkata (westbengal) can u give me one more information that how to reach srm hospital from chennai airpot

please chek the aderess which one right adress?????
SRM HOSPITALS
68,Thambiah Road,
Westmambalam,
Chennai - 600 033.

Address: No.1, Jawaharlal Nehru Road, (100 feet Road, Near Vadapalani Signal), Vadapalani, Chennai 600026
Hey shilpi, as u r coming only for consultation, u carry all ur test reports when u come for ur appt
03-14-2013, 11:25 PM   #23
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I am planning to take an app with Dr. Ebby then, he is also the only one who had replied to one of the many mails I had sent to their gastro and surgical groups.

About surgery I am in bit of doubt, basically what I understood from the net is they have so big a gastro surgery group that they have divided it in three parts - "upper GI surgery" group (stomach/liver/pancreas - none of our concern), "abdominal wall and intestine surgery" group, which is headed by your Dr. Sukria Nayak, and "colorectal surgery" headed by Dr. Benjamin Perakath. Ideally your operation should have been done by the colorectal surgery group, as they should remove colon, form J pouch etc.

Since you seem to have done your homework well let me ask, do you know about the skills of Dr. Benjamin Perakath or Dr. Mark Ranjan Jessudasan or any others name in the colorectal surgery group? Had Dr. BSR suggested Dr. Sukriya Nayak? Ofcourse I understand that there is no clear difference between the area of work of these two groups.
Sounds like a good plan......And rgding the two surgical groups, I don't have much idea abt colorectal surgery doctors. .....Dr. BRS tried conservative method for thee days as I didn't show any improvement, surgery was planned, and I was shifted from gastro ward to surgical ward....and Dr. Sukria Nayak and team took over, as far as I know Dr. Nayak's team handles IBD surgical cases......you can double check with CMC when u bk an appt...

Monday afternoon and Thursday morning - Surgical gastro OPD
Tuesday morning and Friday morning (this will go till evening) - medical gastro OPD
Wednesday - theatre day
03-14-2013, 11:33 PM   #24
shalinico
 
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d p
hi shalinico

thanks a ton for all the info, u seem to understand all the questions we might have. I just now saw your previous posts, our case is nearly similar, I just had an year of remission after detection which you did not get. I found that you tried homeopathy and ayurveda, did you make any serious effort finally with ayurveda? If yes how was the experience?
Actually I tried ayurveda and even siddha even before I was diagnosed with crohn's disease with just some symptoms, I think it worsened my condition with no improvement. In gem hospital my first colonoscopy was done and khan diagnosed it as active colitis....as I didn't respond to those medicines, I tried homeopathy and failed again....in gem hospital reports only part of my descending colon had problems, but just within 8 monyths I underwent ileostomy as my colon was distended and even my transverse and ascending colon was out as I had psedupolyps
03-15-2013, 03:07 AM   #25
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d p

Actually I tried ayurveda and even siddha even before I was diagnosed with crohn's disease with just some symptoms, I think it worsened my condition with no improvement. In gem hospital my first colonoscopy was done and khan diagnosed it as active colitis....as I didn't respond to those medicines, I tried homeopathy and failed again....in gem hospital reports only part of my descending colon had problems, but just within 8 monyths I underwent ileostomy as my colon was distended and even my transverse and ascending colon was out as I had psedupolyps
So do you have a J pouch now? If yes how is the experience? I am asking this because removing colon is one thing but J pouch needs better skill and the ones who have done it with a reputed surgeon have reported better results. For me both options are still open but doctors are saying maybe we should not go for the J pouch as it is better to avoid it for patients of fistulating CD. But then, my fistula is not the naturally formed perianal ones, it is enterocutaneous and it formed because there was already a defect in the abdominal wall because of a previous surgery. Therefore I want to consult the surgeons also at CMC.
03-15-2013, 04:00 AM   #26
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So do you have a J pouch now? If yes how is the experience? I am asking this because removing colon is one thing but J pouch needs better skill and the ones who have done it with a reputed surgeon have reported better results. For me both options are still open but doctors are saying maybe we should not go for the J pouch as it is better to avoid it for patients of fistulating CD. But then, my fistula is not the naturally formed perianal ones, it is enterocutaneous and it formed because there was already a defect in the abdominal wall because of a previous surgery. Therefore I want to consult the surgeons also at CMC.
During my ileostomy surgery, doctors removed my ascending, transverse and part of my descending colon, i still have my sigmoid and part of descending colon, I was having a stoma for 3 months, got it reversed 5 months back. Better you book an appt with the CMC surgeons as well and discuss with them....they will be giving you the right directions....
03-16-2013, 01:44 AM   #27
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hiii shalinico and DD2020
i thik both of u have crohns at large intestine but my case is difrnt, my crohns at small intestine(jejunal ).many days i have to intake only liquid food due to my stricturing in jejunal.living with crohns really horrible no one understand what i am feling each n evry day.
any one of u taking fish oil or omega 3 supliment .after visiting bs ramakrishna i want to visit patanjali (ramdev baba) bcause i start to take alovera juice in evry morning it realy help me to improve my digesion power
03-16-2013, 03:28 AM   #28
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hiii shalinico and DD2020
i thik both of u have crohns at large intestine but my case is difrnt, my crohns at small intestine(jejunal ).many days i have to intake only liquid food due to my stricturing in jejunal.living with crohns really horrible no one understand what i am feling each n evry day.
any one of u taking fish oil or omega 3 supliment .after visiting bs ramakrishna i want to visit patanjali (ramdev baba) bcause i start to take alovera juice in evry morning it realy help me to improve my digesion power
Hmmmm......even I had strictures and I was throwing up even liquid, that is y I had back to back surgeries.......I was only on IV for more than a week as my albumin was too low thwt I was nt the right candidate for even surgery.....


Have soft foods like egg, rice and drink some protein drink like peptamin......even if u take spinach, cook it and blend nicely b4 consumption....

Yes I take seacod tablets daily along with probiotic yakhult....
03-20-2013, 07:40 AM   #29
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So shalinico did u meet Dr. Ramakrishna and how did it go?
03-21-2013, 11:19 AM   #30
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So shalinico did u meet Dr. Ramakrishna and how did it go?
Hi DD2020 and Shilpi,

Yes.....I met Dr. BRS today and as always he answered all my queries with utmost patience ...our discussion went on for one hour...he reviewed my latest blood test report and asked me to continue the same medicines....I told him abt our crohns forum and informed him that u guys will b visiting him shortly.....

I asked him abt Dr. Benjamin, he said when I underwent my first emergency surgery Dr. Benjamin wud have been out of station and that's y Dr. Nayak took over, also he said Dr. Nayak acts very fast whichwas needed in my case
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