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03-01-2013, 07:15 PM   #1
Farmwife
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Parents- How do you relax?

As we all know...stress is a killer.

We as parents need to remember to relax and enjoy life when we can.
I know this is hard at the early am hours and your child is crying in pain or in the middle of a hospital stay during your child's bowel surgery or putting miles on your car running to different location because your child needs labs and test done.

I want this thread to be a place of ideas, advice and encouragement for us parents to take time and relax.


Please let us know what you do to relax?
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
03-01-2013, 07:18 PM   #2
Farmwife
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I love to hand quilt. I thought about having a bag with some sewing project like baby doll clothes I could sew while at the hospital.

Of course the classic of reading while waiting for test is always a fav. Now I take a book Grace and I love.

At home I cook! Love it.
03-01-2013, 08:18 PM   #3
izzi'smom
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I work out.
I like to do weight training the best, but in the summer months I run. I have a 5k to benefit the Heart Association tomorrow, a 5k obstacle course next month, a 15k in July, and a triathalon in August.
I also like to take a night every 4-6 months and go out with my girlfriends. We indulge in dinner and too much wine and get a cab home.
I love photography, but never get a chance to shoot anymore.

I also sort of lost myself when I first had my kids/Izz got sick.
Now I make a bucket list each year of things I'd like to do, plus a long term one.

2013 for us includes a trip to the Bronx Zoo/Statue of Liberty, a tethered hot air balloon ride, an indoor waterpark, and a large childrens museum 2 hours away. My personal bucket list items include the triathalon, ziplining down a nearby mountain, and starting a few college classes.

I also have a long term list with items like a Disney vacation, completing a marathon, and a 100 mike bike ride.
Would love to hear everyone elses coping!
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Angie, mom to Izzi,10 Crohn's Colitis 1/11 prednisone, entyvio since 2015 Tried: Tacrolimus, Bactrim, simponi, Levsin, Prevacid, Prednisilone, Humira, Remicade, EN via ng, vancomycin, Pentasa, carafate, Sulfasalazine, Cortifoam enemas, dietary changes, fish oil, VSL#3.
03-01-2013, 08:43 PM   #4
AZMOM
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Right now.....Im not!!!

I've got to start taking better care of me.

J.
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Julie

Mom to Claire - 11 going on 17

Dx JRA age 3, Crohn's age 6
Acute transverse myelitis at age 5

Started IVIG September 2016
Started Tacrolimus October 2016
Neurontin 100mg twice daily
Folic Acid
Calcium/D supplement
Daily Vitamin
Daily Probiotic

No more Enbrel, Stelara, Methotrexate, Allopurinal or 6MP
03-01-2013, 09:36 PM   #5
Hope345
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What a great thread.

We have to take care of ourselves so we can take care of them

I usually start going for long walks, find myself working out in the yard, keep a journal, come to this forum , pray a lot, and I cherish my sleep time.


Best to all of you
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Daughter (age 17) diagnosed with Crohns Colitis/UC 1/2012 Mod/severe changed to U.C.: 11/7/2014 anemia:blood transfusion current: Flare, weaning from Prednisone, still bloating: Meds ,Pentesa: 2000mg twice daily, Vegan diet, mesalamine enemas .Previous: mercaptopurine, Remicade (13 treatments), Imuran, prednisone ), Flagyl, iron infusions, cortifoam,
Continue to be hopeful
Daughter: age 21, undiagnosed: GI issues
03-02-2013, 12:45 AM   #6
ChampsMom
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Gosh what a great idea for a thread... I'm a single Mom with 3 boys - eldest with Crohn's, youngest on the Autism Spectrum (PDD-NOS) - started to worry about son number 2 having Crohn's this winter, but appears he had a tummy virus that he couldn't kick (at least praying that's all it was... all lab work looking "normal" at this point...)

Busy doesn't even start to describe life - stressful? oh yeah...

My most relaxing time is spent preparing Sunday School lessons, but I know I also need to find a balance to take care of myself physically - but when? how? (tired from typing this...laughs...)

HUMOR helps!!
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Mom of Champ (Alex)
Dx: CD April 2010
Meds: 04/25/13 switched back to Pentasa 3,500mg/day - Lialda brought lower abdominal cramps & exhaustion); 04/05/13 switched to Lialda 1.2GM 3 pills/day verse Pentasa 3,500mg/day, prevasaid 15 mg x 1/day, elemental iron, daily vitamin, calcium w/mag D, 50,000 mg Vitamin D/week, B12, B6 supplements, Cetrizine (for sinus issues)
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03-02-2013, 04:18 AM   #7
Sascot
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Good thread! I love reading so tend to have my book or kindle where ever I go. Had to get the kindle because I read quickly and kept running out of books at the hospitals!
This year I am determined to have fun both by myself and with the family. I love the cinema and try go once a week if both kids are well, so hubby can just get them ready for bed without any stress,
We are going to Benidorm (Spain) with the family in April, I am going to a show in May, a wedding in June and we are going for a cruise in July.
I have also started going to the gym to try get my health better.
03-02-2013, 07:26 AM   #8
Farmwife
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All great ideas!

My future plans.....

A massive garden that is growing in scale by the day. 150ish by 100ish ft.
Now my twin who lives in the city want a garden. So now our plan is to make mine bigger and her and the kids will come over once a week and help me take care of it. Will see if this happens. It depends on Grace's health.

Also I need to lose at least 60 lbs because of my stress eating. I plan on biking and doing exercises videos to make this happen.
03-02-2013, 09:07 AM   #9
Crohn's Mom
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Therapy !
once a week for the last 6 months !
yeah, that...and wine !
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and Austin (18)
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03-02-2013, 03:16 PM   #10
izzi'smom
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Therapy !
once a week for the last 6 months !
yeah, that...and wine !
Wait...there's a different kind of therapy??





ETA I am a firm believer in therapy...I went through three before finding one that worked well for me but she was worth her weight in gold!! Isabelle did therapy as well for a bit-just saying I'm not mocking either type lol!

Last edited by izzi'smom; 03-02-2013 at 04:09 PM.
03-02-2013, 04:08 PM   #11
CarolinAlaska
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I spend too much time on the computer, but it is relaxing for me. I like to read to my kids (whoever is willing - right now we've started the Harry Potter books with my 6 and 8 year olds). Believe it or not, I find housework relaxing, and I love to enjoy a clean house, but I don't do enough housework each week to ever get to enjoy a clean house, which adds to my stress! lol). I blog, but haven't been much in the mood since Jae was diagnosed . Her illness pretty much has taken over my life. I do Bible study and enjoy listening to worship music and singing. I enjoy canoeing, kayaking and hiking in the summer. I love the bucket list idea, Angie. Your personal choices are great too.
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J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), taking pred only. NG feedings nightly.
Osteoporosis/osteopenia, Scoliosis, EDS, Asthma, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety, postural tachycardia/POTS and multiple food allergies.
03-02-2013, 04:12 PM   #12
Mylittlesunshine
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Farmwife this is a great thread
After the last months experience I've had
Gona have to try some of these ideas x
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03-02-2013, 04:19 PM   #13
my little penguin
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Hand therapy balls - very squishy and work like stress balls
Read trashy novels .
Read every possible Ibd article related to DS ( did the same thing for FA for the first year or two - don't think about those very often any more :lol)
Music
Forums
Baking bread by hand -pounding out things really helps
Work - enjoy being busy - no time for crohn's thoughts
Favorite tv shows - where everything is always way worse than real life so comical .
Enjoying normal each and everyday .
Swinging out on the porch
Listening to the birds and nothing else
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03-02-2013, 07:31 PM   #14
izzi'smom
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^^
Great point...the forum kept me sane for the first year at least. It's hard to discuss these things with family that isn't familiar with IBD...and hard to gauge in the earlier days if symptoms are problematic enough to "bother" the doc with.

I also researched until my brain was fried before. I don't do it much anymore, as our treatment is working...I am almost afraid to lol!

Going back to work helped me as well.
03-02-2013, 08:04 PM   #15
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I'm a single mom, and my kiddo doesn't have IBD but she has very complex medical issues. There isn't much time for relaxing, but I'm a big fan of humor! I also knit when my hands don't hurt too much.
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03-02-2013, 09:10 PM   #16
Jmrogers4
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Like MLP red trashy novels or pretty much anything I can get my hands on.
Glass of wine or something stronger (depends on the level of stress) with the neighbor (we call it driveway time) and can bitch and moan and vent about whatever.
Computer time - playing hidden object games or on here
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Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
03-02-2013, 09:44 PM   #17
CarolinAlaska
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I see a few of you like trashy novels. I like to read novels for kids like Harry Potter, Hobbit, and other things. These books usually have a good story line and I can trust they won't take my emotions for a whirl like many adult themed novels. I used to read adult novels but found myself bawling with the characters too much! NOT relaxing!
03-03-2013, 06:00 PM   #18
jmckinley
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I don't have as much spare time(it's a shame that "me" time has to come in spare time, but when I do I garden (alot)...pulling weeds and "dead-heading" are relaxing. I have been known to get out and work for hours! I also love blog, but it came to a screeching halt last summer when Ryan got sick. When I need to blog the most, I clam up! I need to start back! I do read alot of blogs. Taking photos is something I love to do too! When I am super stressed, I bake ....and unfortunately, I like to eat what I bake!

I love the list idea! I will have to start that. I'd like to put one of the CCFA Team Challenge 1/2 marathons on that list! There's a women only one in Nashville this fall. I am doing a mud run this weekend...wish me luck!
03-03-2013, 06:30 PM   #19
izzi'smom
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jmckinley Good luck with your mud run! Have you done one? The obstacle 5k I am doing next week is similar...I hate getting dirty but I have heard its a blast. We are going to dress up, too...I am thrilled. (Although my gf's are teasing me about being a princess...I can only imagine what they will come up with!)
how does team challenge work? There are none near me but the site says you get expenses paid for a destination run?? Hello Kona half marathon!! I am guessing you have to raise a lot...but I may be up for the challenge!!
03-03-2013, 06:55 PM   #20
jmckinley
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jmckinley Good luck with your mud run! Have you done one? The obstacle 5k I am doing next week is similar...I hate getting dirty but I have heard its a blast.

I have never done one before, but it looks like so much fun! This is the Dirty Girl Run (5K obstacle course). We are dressing up (some). I've seen a friend of mine post pics several years, so when it came here, I just had to try! I did the Color Run back in October and it was a blast!

On the Team Challenge thing...I don't have a team near me either, but you can join the national team and get on line encouragement. It's not quite the same motivation. From what I understand, you join and then create a fundraising page that you share with your friends/family. There are several different levels of fundraising. If you reach the highest one your trip is paid for, if not, you get certain aspects (like registration fees, hotel) paid for based on funds raised. The great thing is there's no pressure to run it fast doing it this way. I'd certainly waht to give it my best shot, but running in honor of someone takes the pressure off. I think the one in Nashville would be a "dress up and have fun" race. Although I'd much rather run the wine country run! I wonder what beverages they'd have at the stops!!

Don't know if I will do it, running seems like such a better idea in my head
03-03-2013, 08:41 PM   #21
Tesscorm
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FW, love this thread!! It's a great reminder that 'we' are important too!!! And need to give ourselves a bit of TLC once in a while!

Reading a light, trashy book is great - my brain candy!

I would die without my relaxing baths! I love to have long soaks with some sort of bubble bath or scented salts and read a book (or play games on my blackberry ); if I want to make it really special, I light candles, play spa music (I keep CDs and a cheap player in the bathroom) and have a glass of cold wine or flavoured water!

Love a good movie, especially comedies (hmmm... a tv with netflix in front of the bathtub!!! )

Not as often, I try to have a girls' weekend once or twice a year (just came back from one! ) and/or a massage at a spa (either as part of the girls' weekend or just something for an afternoon). Even if I am only going for a one hour massage, I find that the whole ambiance of having it done at a spa is more relaxing than just going to a massage clinic.

I've been attending hot yoga classes a bit more often - wouldn't quite call them 'relaxing' yet but, hopefully, I'll get to that point!

jmckinley - good luck on your run!!!
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Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
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03-04-2013, 04:40 AM   #22
DustyKat
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I relax with my best friend...

We go walking together. We knit together (shut the feck up Dexky). We scrapbook together. We drive together with friends. We BBQ together and drink wine. We read the forum together. We play angry birds together. We do loads together and it is fab!...



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03-04-2013, 04:43 AM   #23
DustyKat
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Oh and I love Harry Potter, so does my best friend.
03-04-2013, 07:57 PM   #24
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I read trashy novels (Hunger Games, Twilight, etc) and binge watch trashy TV (7 seasons of How I Met Your Mother in about 1 month). I also run with a friend which helps immensely. I find the trashy TV and books help to turn my mind off which allows for an escape and the running actually lifts my mood.

Of course a nice big glass of wine, or if it is summertime a Pimms, also works well.
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Son (age 13) diagnosed with Crohn's Feb. 2012.
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Also taking: TuZen probiotic and following a low FODMAP diet (not very strictly).

Past Treatments: Prednisone, Flagyl, Cipro, Pentasa, exclusive EN via NG tube (6 weeks), Prevacid, Iberogast (20 drops twice a day) and high doses of vitamin B2.
03-05-2013, 12:07 AM   #25
izzi'smom
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I have never done one before, but it looks like so much fun! This is the Dirty Girl Run (5K obstacle course). We are dressing up (some). I've seen a friend of mine post pics several years, so when it came here, I just had to try! I did the Color Run back in October and it was a blast!

On the Team Challenge thing...I don't have a team near me either, but you can join the national team and get on line encouragement. It's not quite the same motivation. From what I understand, you join and then create a fundraising page that you share with your friends/family. There are several different levels of fundraising. If you reach the highest one your trip is paid for, if not, you get certain aspects (like registration fees, hotel) paid for based on funds raised. The great thing is there's no pressure to run it fast doing it this way. I'd certainly waht to give it my best shot, but running in honor of someone takes the pressure off. I think the one in Nashville would be a "dress up and have fun" race. Although I'd much rather run the wine country run! I wonder what beverages they'd have at the stops!!

Don't know if I will do it, running seems like such a better idea in my head
Talked to the regional director for the Napa run...$4700 in donations gets you a spot (which . I would attempt) but only 75 percent goes to ccfa. I'D rather fundraise for the take steps walk...they get the entire amount raised.
03-05-2013, 12:47 AM   #26
poppets mum
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I was thinking of starting the same thread a while ago. Looks like ya beat me to it Farmwife. Someone told me we it is very important that us parents take time for ourselves so we can be better parents for our children. So true. Anyhow I started doing Yoga in summer and found it to be a great thing to help unwind. Apart from anything else I have to concentrate really hard not to fall over so at this time there is no room for the usual worries. Everybody apart from me ( said with fingers crossed) seems to be succumbing to Norovirus in this house so once we all get through it I will definitely be looking for ways to relax
03-10-2013, 09:09 PM   #27
jmckinley
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Angie, the 5K was a blast! If the Dirty Girl Run ever comes your way, definitely do it! I am looking for the next adventure...as soon as I recover from this one LOL

How was your run? What was it called? We have the Warrior Dash coming here in fall. Wondering if it is over my head!

**I added a pic to my photos, I have no idea how to put one on here!
03-10-2013, 09:26 PM   #28
DanceMom
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Nothing better after a long day than sitting on the couch with hubby and watching mindless TV. On the weekends I love to lounge by the pool or take a trip to the beach. Life just seems so simple at the beach.
03-11-2013, 07:19 AM   #29
izzi'smom
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I'm so glad!I am doing the warrior run next month (just ordered shirts/socks for the 're as m yesterday)...but a group of coworkers did the dash and said it was amazing...go for it!!
03-11-2013, 07:34 AM   #30
Kinsey
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I do spend too much time on the computer, though it helps to past the time.

I have a stress coach that calls once a week or more, its through my insurance company, she's a trained professional couselor, she's the best.

It seems I'm calm until we get some news or Brad get real sick. The mess up last week with the fecal transplant being postponed was a low, but then I got some good news lately that took the edge of. Brad has been having some formed bowel movements for a couple of weeks, crazy, though may it be, it was music to my hears.

Doing something that needs to be done helps me to move forward, but their are times when I just don't want to face all the paperwork and such.

I do feel like when I am giving back I feel better about all the taking I'm doing, i.e, using the forum to take and feel I need to give back.
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