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Crohn's Disease Forum » Surgery » Stoma Subforum » Oh how I appreciate those with ileos!!


03-09-2013, 12:36 PM   #1
Nyx
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Oh how I appreciate those with ileos!!

So I haven't been around for a few days. I had a touch of the flu...ick! Well, as we all know, the lovely Big D comes with such an event, and for me this is a rare occasion. So, when it got really bad and liquid (I've never had pure liquid before!) I channeled all you fine folks! I thank God for this forum or I wouldn't have known what to do. I leaked through 4 appliances in 1 day! Then I remembered the free stuff I had - some strip paste that I had no idea how to use...lol I just kinda winged it and slapped the paste around my stoma and hoped for the best. It actually worked!! It didn't make my belly feel better, but it did keep my stuff in place.

So, for those of you that have to deal with the liquid from hell every day, I salute you. I panicked, then I remembered all your good advice to everyone and made it through
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Cindy

Crohn's Diagnosis: May 2006
Current meds: none
Surgeries: Colostomy, December 2009

"Never trust a fart." Jack Nicholson, The Bucket List

Oscar is awesome! Loving my life with my stoma (with a hint of poo)!!

03-09-2013, 01:41 PM   #2
2thFairy
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YaY!! Glad you found something that worked! Are you feeling better?
(I *LOVE* strip paste!)
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Ulcerative colitis

Total colectomy with ileostomy featuring Sideshow Bob since January 2012

"The colon seems an unlikely candidate for dramatic effect, but now and then it serves that purpose well." The Associated Press Guide to Punctuation
03-09-2013, 03:10 PM   #3
Nyx
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I feel much, much better thanks I haven't pooped for 2 days...lol I think I emptied my entire system out this week...it was kinda gross...lol
03-10-2013, 03:00 AM   #4
Terriernut
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Glad you are feeling a bit better Cindy! I have that liquid poo thing frequently and I appreciate all the ileosta's too! Is that a word...well, yes a new one.
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Misty
DX Crohns Feb 2011, symtoms 1997, 2009 and then WHAM! Emergency surgery for perforated sigmoid, fistula through fallopian tube, septic and near dead: Colostomy-Stan was born 22/12/10. Another parastomal hernia, his name is Ollie and he is MONSTER size!
4gm Pentasa
6MP 50mg
03-10-2013, 11:43 PM   #5
annawato
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Ileosta's. Yep its now a word. As is colosta's.
Glad you are feeling better Cindy and very glad all the ileosta's trials and tribulations were of use to you.
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Anna

you name it, i've tried and failed it! currently on- waiting to see whats new and reducing pred
temp. ileostomy reversed feb 2011, new ileostomy, nov 2012
4 resections plus removal of adhesions etc, recurrent intestinal abscesses
lyme disease, depression, sacroileitis, chronic pain and......Crohn's..........
03-12-2013, 09:19 AM   #6
Susan2
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An "Ileosta" sounds like a Spanish dancer - with castanets and clicking of fingers!
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Crohn's Disease - symptoms since c1955, diagnosed early 1970s. On Prednisolone until...
Total Proctocolectomy in 2000.
Ileostomy that behaves most of the time
Currently on no medications, but under constant gaze of very caring GP, with annual blood and other tests.
03-12-2013, 09:34 AM   #7
2thFairy
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An "Ileosta" sounds like a Spanish dancer - with castanets and clicking of fingers!
Excellent!!
03-13-2013, 06:50 PM   #8
annawato
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Ileosta, ileosta, da da da da da da da da............
03-14-2013, 04:19 AM   #9
maria
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mine was like water everyday especially towards my takedown. sucked glad yours is better.
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Ileostomy from UC but doctors are now thinking crohns. Since Feb 14, 2011


I want to find a friend here in vancouver, washington with a stoma... I feel lonely.
Trying to stay gluten free.
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