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03-10-2013, 10:50 PM   #1
Marah
 
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Join Date: Mar 2013
Location: Kansas
Back Pain?!

Has anyone else experienced bad back pain with Imuran? I'm experiencing it in my lower back and middle back. Feels like extreme period cramp pains in my back. Is this normal?
03-11-2013, 07:10 PM   #2
Grumbletum
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Hi Marah and welcome to the forum :-) How long have you been on the Imuran for and did you have any back pain before you went on it? Back pain, especially lower back pain is very common in Crohn's sufferers. It was one of my more debilitating symptoms.
Is the Imuran helping with other things?
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Dx Crohn's terminal ileum April 2011
Ileocaecal resection & partial cystectomy Sept 2012
3.5 years happy remission, in mild flare since Feb 2016 with related Portal Vein Thrombosis

Previous: Prednisolone, Mesren, Omeprazole, Infliximab, Azathioprine
Current: Pentasa, Librax, Warfarin
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03-12-2013, 06:03 PM   #3
nitty
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Not specifically back pain, but my period pains are MUCH worse since starting Aza, and my periods are heavier. Nothing about it in the literature or on the web, but it started when I started the Aza.

Not fun!
03-26-2013, 05:10 PM   #4
bsv
 
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yep, I got back pain but unsure if Imuran or just crohn's itself that causes it. Hot bath and heating pad help also get tylenol muscle aches and body if you need pill form of help (no I did not ask my GI dr if it was okay to take but it works well for hours)
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Give me soft TP or give me death.

I see how Doctor's expect us to eat more, give us tons of different drugs that can not be combined and need to be taken with food.
03-27-2013, 07:28 AM   #5
hawkeye
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Never had the back pain with Imuran. Had back pain when first diagnosed though.
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Diagnosed since 1990
Current Medications: None currently. Was on Imuran (150mg/day) and 5-ASA (3000 mg/day) as maintenance meds prior to surgery
Surgeries: Left hemicolectomy 2014.
05-02-2013, 09:04 PM   #6
Cozmo
 
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I've experienced progressive lower and middle back pain from my crohns over the past year or so. I've only just started on Aza so still awaiting any possible side effects from the drug itself. Co0Dydramol helps with my back pain.
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Diagnosed Crohns Nov 15th 2012
Prednisolone 30mg a day (6x 5mg)
Pentasa/Mesalazine 2 x 500mg 4 x a day
Azathpioprine 2 x 50mg a day(stopped after bad reaction)
Alendronic Acid 1 x weekly
Calceos 2 x a day
Diagnosed Gastronitis 2004
Lansaprazole 15mg a day
Diagnosed Aneamic 2011
B12 Injection every 3 months
Iron Tablets 3 x a day
Co-Dydramol
multivitamin
Vitamin C Disolvable Effervessent 1000-2000mg a day
Questran
Diagnosed Aortitis May 23rd 2013
Ertapenam IV Antibiotic
05-08-2013, 02:14 PM   #7
kat-y
 
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I've had constant lower & middle back pain since before I was diagnosed and can't seem to find anything that shifts it. Not sure if it relates to Aza or to do with the surgery and how things have healed up. I use hot baths & hot water bottles daily, fortunately it's mostly cold in Scotland so that works for me but am waiting for colonoscopy to find out if inflammation is back which may account for increase pain. Hard to know what is causing what !
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Crohn's dx 2010
Resection 2010
Tried : Pentasa,Prednisolone,Cipro Flaxyl
Now on Azathioprine, VitD, B12
05-08-2013, 02:41 PM   #8
Cozmo
 
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I've started to wonder whether my back pain maybe kidney or digestive related, or whether it is just the crohns. I tend to suffer with it mostly in the mornings and less so as the day progresses. But yep, it is hard to know what's causing it.
05-09-2013, 09:59 AM   #9
LindaS
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I've been on mercaptopurine for about a year. I've had some pretty severe back pain since October. My PCP ordered an MRI about 2 months ago, showing arthritic changes in my lumber spine. I don't know if it is due to the medication, the crohn's or just getting older, but it is seriously affecting my life. And due to the Crohn's, I can't take Advil or other NSAIDs.
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05-09-2013, 02:15 PM   #10
Cozmo
 
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My MRI scan showed a degenerative disc in my lower back, the specialist said it was due to my crohns and wanted me to focus on getting my crohns sorted primarily as he didn't view this as a separate issue.
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