- Location
- Midwest
Our last few GI visits have been bothersome. She seems to threaten Methotrexate but never prescribes it. My son's inflammation markers are creeping up. 2 Months ago SED was 19 and CRP 1.0. Last month SED 24 and CRP 1.3 Today was 31 and 1.6 She brought up Metho again. I asked if it was oral since he was on Humira injections. She said no. It'd be injections and he'd have 2 days of nausea and flu like symptoms and body aches. She said "So do it on Friday so he'll be sick on weekends". I asked if she diagnoses medicine on just lab work alone (We haven't had a scope in 3 years). My husband wanted her to be sure before she changes meds (Let me add he's been feeling great and has gained weight and height- not a lot, but in the past if he is flaring he loses weight fast). She really upset me today because she acted like she's never seen Brian...and we've been going to her for over 2 years! I had to remind her of everything. And she was doom and gloom doc. Lately she seems like a doctor whose had way too much caffeine!! Today she was spurting out everything that entered her mind to the point that my son began to cry. ('We need to do an MRE, a colonoscopy, add methotrexate injections...on and on...') I looked right at her and said "You are overwhelming him...all of us...please stop!" I asked about EN and she would only discuss total EEN and then said 'If you ever stop all symptoms return" It was constant negativity.
What are the benefits of Methotrexate? (All GI dr told us was how sick he'd feel). Is the injection better than the pill form? I know the pill doesn't have the sick side effects...I think. I said, why can't we just go back to weekly Humira...she said she didn't want to do that because he was getting sick often in Nov and Dec and it ended with first case of C Diff.
FYI we have colonoscopy on this upcoming Tuesday. WHY O WHY can't we get into remission?????? I'm so afraid she's just going to look for some grim thing to tell us. I used to love her...last few months I don't know what has gotten into her. Sorry this is so choppy!!
What are the benefits of Methotrexate? (All GI dr told us was how sick he'd feel). Is the injection better than the pill form? I know the pill doesn't have the sick side effects...I think. I said, why can't we just go back to weekly Humira...she said she didn't want to do that because he was getting sick often in Nov and Dec and it ended with first case of C Diff.
FYI we have colonoscopy on this upcoming Tuesday. WHY O WHY can't we get into remission?????? I'm so afraid she's just going to look for some grim thing to tell us. I used to love her...last few months I don't know what has gotten into her. Sorry this is so choppy!!