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Crohn's Disease Forum » Parents of Kids with IBD » Rowasa and sulfite free Rowasa


03-20-2013, 08:34 AM   #1
dawn89
 
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Rowasa and sulfite free Rowasa

Has Rowasa helped your child or did the SF Rowasa work better? We know that sulfur foods cause more problems with IBD and can inhibit good bacteria growth in the colon. Why would they put it in the enema?
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Dx Nov 2011 Colitis/Crohns - March 2013 major inflammation in the sigmoid, descending
colon & rectum (lower left sided)
Currently Prednisone & Apriso, Multi, fish oil, iron, vitC, B12, VSL3, Intestnew
No gluten, red meat, corn, cow milk, or msg
03-21-2013, 04:12 PM   #2
CarolinAlaska
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Good question. Don't have an answer.
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J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), controlled with 6MP.
Osteoporosis, Scoliosis, EDS, Asthma, Lymphedema, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety postural tachycardia/POTS and multiple food allergies.
03-21-2013, 04:59 PM   #3
upsetmom
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Put this in the treatment section...you might get some responses.
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Daughter dx CD March2012...
(aged 14)

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600mg Calcium


Dx Premature Ovarian Failure 2014
On Estrogen and Provera


03-21-2013, 05:48 PM   #4
dawn89
 
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The doc gave me the sulfur free Rowasa! The pharmacist had to call the company- only took one day! So, why didn't the doc prescribe it in the first place, not sure he even knew about it!
03-21-2013, 06:25 PM   #5
Farmwife
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I'm glad you got it. How is he today?
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
03-21-2013, 06:56 PM   #6
dawn89
 
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He has been good for 2 wks now since they started 8 wks of Prednisone and gaining weight after a year or more. Hoping Rowasa speeds up the healing of his lower major inflammation. Thanks for asking. We start mtx in a week also.
03-21-2013, 07:04 PM   #7
Farmwife
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Ya pred will do that. Grace has to drink 6 cartons of EN a day. Normally she drinks three and I'm happy that and put the rest in her tube at night but on pred I had to say slow down it's only 2:00 and your almost done.
03-21-2013, 07:59 PM   #8
dawn89
 
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It's good to see them hungry and thriving though! Which EN do u use?
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Crohn's Disease Forum » Parents of Kids with IBD » Rowasa and sulfite free Rowasa
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