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04-07-2013, 11:52 AM   #31
Jen
 
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Hi all!
I have diabetes type 1 and Crohn's desease.
I was diagnosed with diabetes when I was 16 and my life was pretty good until I was diagnosed with Crohn's at 24 (in 2010).
After that all my body started to ruin.

Though my Crohn's is rather mild, I started experiencing lots of health issues that came together with the first signs of Crohn's: fatique, food allergies, skin rashes, loss of smell, easy to catch colds and what's the wosrt is the constant back pain. Mostly it's an upper back pain but it may migrate to the lower back. Docs said it'd due to scoliosis but I've never had any sign of back problems until the Crohn's appeared.

I beleive that most of my health problems can be solved by the proper diet (like all organic, non-processed and no gluten) but I'm too lazy for that

I love my job, it allows me to forget how sick I am and normally I feel much better when I'm at work.
The diabetes itself is just a regime for me and it brings much less probelms comparing to the back pains and Crohn's side effects.

I'm glad to find people here who understand the problems of having both tough diseases.
Having Crohn's and diabetes separately is already a daily challenge for many, but imagine that you have both.
04-08-2013, 04:30 PM   #32
lizbeth
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Hi everyone, hope you've had a great day.

I had a small bowel serious today, the prep yesterday didn't go well, the picolax didn't work until 11pm so I spent most of the night on the loo. My bgs were really elevated so I dose adjusted and got it down...but too low so I halved my levemir. I was first on list at 9am and finished by 11. I felt really sick and was so glad to get home to bed. I didn't expect to feel so ill, is this normal? My bgs are still high Sorry for moaning, it's been one of those times when diabetes and crohns have clashed again.

Hi Jen, thanks for your post. It really is a challenge living with both conditions, I'm happy that your diabetes is working out for you. what job do you do? What medications do you manage your conditions with?

I'm going to bed now wishing you all a peaceful day or sleep depending where you are. Take care.
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04-08-2013, 04:53 PM   #33
ron50
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Hi Lynda,
Since ca I have had a colonoscopy most years around 13 so far. The first few ,afterwards I felt great. Then I had one during chemo. I thought I would die. In recent times they have tried me on colo-caps for the prep . They don't clean me out and my gi started whinging so last two have been done in hospital the first with colocaps ,still didn't clear and the last one with the old pico prep . She made them give me nearly seven and a half litres of the stuff. I was not a happy camper. They checked my bs regularly and it was low but still safe.It took days to get over it so hugs to you I hope you come down to normal soon. It is like walking a tightrope ,if you fall or get pushed off ,it is so hard to get back on and get your balance again...Ron.
04-09-2013, 03:41 PM   #34
grandmajese
 
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Nice to know that I'm not the only one, this combo really does suck. I've been sick a long time, took forever to get a confirmed diagnosis. I can't get treated till they know what's wrong right? The meds are scary though, Imuran 50 mg 3 x a day. On the bright side the nausea should help me lose weight!
04-10-2013, 04:01 AM   #35
lizbeth
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Thanks Ron, I'm still feeling a bit unwell but nothing like I did on Monday, my BGs are still high though. 7 1/2 litres, did you not feel like you were going to pop?

Hello grandmajese, welcome to the group How is your diabetes medicated? I thought I would lose weight especially after the barium breakfast, but no I'm still heavy, others think I've lost but I think they need their eyes tested lol. My GI is considering imuran for me next possibly? I take it the meds are making you sick? Have you had any other side effects?

How is everyone today? Hope you all have a great day.

Last edited by lizbeth; 04-10-2013 at 04:18 AM.
04-10-2013, 04:36 PM   #36
Jen
 
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Hi Lynda!
I'm taking Salofalk for Crohn's and my insulins are Novorapid and Protophane.
I've recently returned to insulin pens after 4 years of wearing insulin pump.
It is weird but I have better compensation on shots than on pump.

For CD I'm trying to avoid a lot of meds while it is possible. 1 gramm of Salofalk keeps me more or less in shape. I've also noticed that gluten worsens many symptoms for me: not only bowel-related but also back pain, headaches and general mood. So I try to avoid gluten as much as I can.

I'm working as a software analyst in the medical area (software for planning knee and hip replacements, etc.).
Work really keeps me alive as I have no time to think about health!
Of course I measure BG many times a day and etc. but this is more a routine and it is not disappointing.
I also try not to spend much time on the health forums, this one is great though and I cannot help watching it from time to time
04-11-2013, 12:24 AM   #37
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I'm not on the imuran yet, I'm stalling.the side effects really scare me. I'm on glucaphage for the diabetes. still around 200. barium is disgusting!
04-11-2013, 07:10 AM   #38
Karen
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Welcome grandmajese ... Good to see someone new join in !! I too am on Glucophage for my diabetes ... and so I remember when my hubby was on imuran and so he is no longer on any of his meds for his Crohn's so that is a good thing. I do recall him saying that the barium was awful tasting so ... I do not miss those days of going with him for some of his check ups !!! So, take care and stay strong !!!
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04-11-2013, 10:52 AM   #39
lizbeth
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Hello everyone, ho have you all been? I'm feeling much better just very tired but that's not unusual. I agree...barium is yuck!! and it's hat happens when it goes through you! Oh my goodness I wasn't expecting that lol.

Hope you 'll have a great day, k care.
04-15-2013, 03:37 AM   #40
lizbeth
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Good morning everyone, how are you all today?

I'm going to a physio appt later on when I hope to be given something that will help get my joints under control, been having a rough time lately with my back and wrist especially. Still having difficulty too controlling my BGs, they're a bit all over the place these days?

On the up side , it's a beautiful day the sun is shining hope you're all okay, best wishes.
04-15-2013, 06:51 AM   #41
ron50
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I'm going thru my weekly cycle,Inject mtx on Sunday night ,feel like crap on monday and tuesday then gradually feel better until sunday when it all starts again. Don't know what is happening with my left hand. I have neuropathy in both feet and legs and in my left hand. Mid last week the lower half of my hand went from numb and tingly to almost totally dead and has stayed that way. Neuropathy seems to be the thing that doctors completely ignore yet its the thing that bothers me the most. Ages ago I tried lyrica ,neurontin and endep. They did not work at doses I could afford and at doses I couldn't they turn me into a zombie. I have been doing a lot of reading on neuropathy in particular a fact sheet from the National Institute for Neurological disorders and stroke. In the paper it says that neuropathy can cause irregular heartbeats and breathing problems. I am starting to get some really bad vibes on where I am heading....Ron.
04-15-2013, 07:14 AM   #42
Karen
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Hello Ron ... I will be praying for you to find the answers that your looking for and also to find the HEALING that your needing too !!! Stay strong and keep your head up !!!
04-15-2013, 12:21 PM   #43
lizbeth
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Yikes Ron I can see we're you're going with that thought.....try not to worry but you should have a chat with you gp (and about your hand) to put your mind at rest.

I knew nothing about diabetes when my sister was diagnosed 4 months before me so I got a book about it......well I couldn't read it coz it scared me!! I recently read somewhere that the eyes are an indicator if what's going on inside so as I've had 2 laser treatments on my right eye I began to panic a bit. I don't know if what I read was correct and I should have taken more notice of the source.

What is endep.? I'm not familiar with it.

Keep your chin up
04-15-2013, 12:28 PM   #44
grandmajese
 
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ciroflaxacin, metronidazole. sound familiar? they are anitboticts, my doc started me on them friday and I've been REALLY sick all weekend. I could barely stand sunday. I'm going to try taking one and not the other to see which one is making me so sick.
04-15-2013, 12:38 PM   #45
lizbeth
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Have you tried taking them either with or without food? I know it sounds obvious and I don't intend to be disrespectful. Sorry you're feeling rough
04-15-2013, 04:43 PM   #46
ron50
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Endep is one of the tri-cyclic anti-depressants that also acts as a neurological analgesic. Was only on it for a week and I was off with the pixies. I may have lived thru the sixties but I'm not into substances that are mind altering,they scare me. When I had my ca removed I could not take morphine,same deal.. Ron.
04-17-2013, 12:29 PM   #47
lizbeth
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Gee Ron you do have your difficulties, big hug coming your way
04-18-2013, 08:19 PM   #48
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Hello All,

Am new to the forum. Question, please. I see that some of you here are taking Humira. My new gastro doctor wants me to begin taking it. (If and when my insurance company decides to cover the cost.) How long before there are signs that it helps the pain and the multitude of bm's every day? Any info is most appreciated. Thank you.
04-19-2013, 07:16 AM   #49
lizbeth
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Welcome Denisejean 1953, Thanks for joining us. From what I understand you may feel a little better after the first injection but it could take up to 3 monthes to feel the full effect, I put in a link below that may give you some info, hope it helps.

http://www.nacc.org.uk/downloads/fac...Adalimumab.pdf

How is everyone today?
04-20-2013, 03:42 PM   #50
grandmajese
 
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Have you tried taking them either with or without food? I know it sounds obvious and I don't intend to be disrespectful. Sorry you're feeling rough
yes, they both say on the label to take with food. didn't help. my regular doc told me not to take them. I have ulcers in my colen and it was making the bleeding worse. the specialist that i see for my guts isn't very sympathetic to my intolerance for most meds. My regular doc told me to research alternatives to the imuran. she doesn't want me to take it. she's really cool. it's saturday and she just called me to see if the new med to help me sleep worked. she's great!
04-21-2013, 06:24 AM   #51
lizbeth
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Well that's great that you have someone in your corner. So what's the next step for you regarding medication?


How is everyone today? Thinking about you all.
04-24-2013, 06:59 AM   #52
Karen
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Have a great Wednesday !!! I wanted to tell you all that I went in and had my BLOOD WORK and for those here in the US I am sure that those who are DIABETIC know what a A1C is ... well mine had not changed so I am sitting at 6.9 and so for the next 4 months I am needing to be GOOD and to watch what I am eating !!! So, stay strong and I shall see you all soon !!
04-24-2013, 09:47 AM   #53
lizbeth
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Well done Karen I would love mine to be that level, keep up the good work

Happy Wednesday to you too.....

It's my wedding anniversary today...24 years, so I'm doing a special dinner and I'm going to have a treat of pudding hope I don't regret it the morning...
04-24-2013, 03:09 PM   #54
Karen
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many more to you and your hubby
04-25-2013, 05:11 AM   #55
lizbeth
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Thank you

Tum ok so far and skipped pudding so BG was grand too
05-07-2013, 01:48 AM   #56
Jennifer
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Alright, I need some help for my mom. She doesn't have Crohn's but is a diabetic.

She was diagnosed with type 2 diabetes about 2 years ago yet I'm pretty sure she was dealing with it for many years before as she would often vomit in the mornings for no reason. Since she started treatment, the morning vomiting stopped. She's 56 years old and her blood sugar was over 400 when she was finally diagnosed. Now her blood sugar fluctuates between 110 (rarely that low) to over 200.

She takes Metformin but I don't know the dose. She's been taking just that since her diagnosis but since her blood sugar doesn't seem stable after all this time, I don't see it as the best treatment plan for her (the dose has been tweaked at least once, honestly I think her diabetes doctor is a dip). She's already changed her diet and checks her blood sugar regularly and exercises everyday. She's lost a lot of weight fairly quickly since her diagnosis and now she's at a normal weight (she was never obese, just overweight).

Her father also has type 2 diabetes and takes Metformin and insulin (one as needed, I think NovoLog and the other is once every morning and is supposed to last all day, I forget the name). I don't understand why my mom isn't on insulin as well when his blood sugar is and has always been much lower than her's.

She also has heart problems and takes medication for that. The main problem now is that her triglycerides are over 800 and have been for a while. Diet and exercise aren't helping in that department. I read that poorly controlled diabetes can cause your triglycerides to be high. I'm really hoping that someone on the forum will have some information on how to get the triglycerides down or control the diabetes if its that. The diet for lowering triglycerides is very similar to a diabetic diet (except she can't add a lot of fruits because of the diabetes) and she did use fish oil in the past to try and lower it but she didn't see any improvement from that either. She's going to try it again but I still think it may be related to the diabetes.

Any help is appreciate.
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Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 50mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel, Tylenol 3, Omeprazole 20mg 2/day, Klonopin 1mg 2/day (anxiety), Restoril 15mg (insomnia), Claritin 20mg
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 17 years and counting.
05-07-2013, 03:33 AM   #57
Aura
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Hi, I take metformin 850 x 3 times per day. I have type 2, like my mother, nana and grannie did. I also have crohns, my diabetes is well controlled on this amount of metformin and on my current diet which is basically eating what works for my body and trying not to be too naughty. Find out her dose, and is she taking them when she needs to.
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Meds: 2.5mg Plendil ER. Azathioprine 100mg; Inhibace+ 12.5mg; gastrosoothe 60mg; Simvastatin 40mg; Loratadine 20mg; Fluoxetine 40mg; Provera 10mg; Metformin 2.55g; Cal d forte; 1.25mg, Humira; Panadol 4g; Pred 3mg
05-07-2013, 04:25 AM   #58
Jennifer
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I'll find out the dose tomorrow. I know she takes all her meds on time though.
05-07-2013, 10:05 AM   #59
Beach
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If your mom is going to try taking fish oil again, an area I've seen others become confused on is the amount of fish oil to take. From what I've read, most therapeutic doses begin with taking 2000mgs of the active ingredient EPA/DHA a day. A typical fish oil capsule contains 300mgs of EPA/DHA, so around 7 capsules a day is wanted to reach that amount of EPA/DHA. If that isn't helping enough, then upping the dosage of fish oil might get the job done.

Another area that can cause confusion with triglyceride numbers is weight loss. If when your mom was first taking fish oil and also was loosing weight at the same time, chances are instead of her triglyceride levels dropping they rose higher. Weight loss can cause triglyceride, and lipid levels overall, to go hay wired for awhile.

A cardiologist's blog that I follow has written some about this:

"What is this wacky thing called “weight loss”?"

http://blog.trackyourplaque.com/2011...ight-loss.html

&

"Getting your dose of fish oil right"

http://blog.trackyourplaque.com/2008...oil-right.html
05-07-2013, 10:41 AM   #60
lizbeth
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Hi Jennifer,

http://www.webmd.com/cholesterol-man...-levels?page=2

Found this on internet and wondered if it could help your mum, although I think from what you've said she is doing all those things ? Reducing the amount of carbohydrate would help in 2 ways, 1-less carbs to process into blood glucose in body, thus metformin has less BG to work on which should lower the overall sugar levels and 2-less carbs will help reduce levels of triglycerides. I have always found if I put on weight it's harder to control my BG and when I lose weight it's easier. I had previously reduced my carb intake and it was much easier to control my BG.

Armed with the info you have about your Grandfathers diabetic treatment, I think it would be perfectly reasonable to speak to your mums Dr to discuss a more effective treatment plan, maybe going onto insulin, a combination of metformin and insulin or a change to a different oral medication? And if your mum isn't happy with the outcome of that discussion maybe consider a change of Dr?. I hope she gets something a bit more satisfying and her levels begin to reduce, good luck.
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