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05-14-2013, 02:12 PM   #61
grandmajese
 
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I have decided that my doctors are stupid. This is my life and they don't seem to realize that. I am NOT taking a medicine that makes me so sick that I can't function. I just started the "Eat Right 4 Your Type" diet, has anyone else tried this? When I did an elimination diet I "eliminated" most of the stuff that the book says I shouldn't eat. so far so good. I do feel better and the bleeding ( my colon) has slowed down. I have noticed that when I don't sleep well, which is most of the time, my blood sugar is higher by at least 40 points. the nurse told me that is normal. of course the only answer the doc has is more pills. doctor suck
05-14-2013, 03:43 PM   #62
lizbeth
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Grandmajese do you ever do your BGs through the night? Reason I ask is I was thinking about nocturnal hypos, before I realize I'm having a hypo at night I toss and turn and can't sleep, if I do get to sleep then most often my BG will be high in the morning. Oh it's such fun!......NOT! Which medication is it that you're not going to take? Sorry I don't know anything about the diets you mentioned, my elimination diet is just me cutting out things I know I can't eat, I do find it's very restrictive trying to manage both diseases . I do need to look into diet management more.

Karen ......how did your surgery go?

Jennifer...........what about your mum, how is she getting on?

How is everyone else doing these days?
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05-15-2013, 12:51 AM   #63
Aura
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My bloods came back great for my hbca1 stuff I forget what its called
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05-15-2013, 08:14 AM   #64
lizbeth
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That's great news, I love it when that happens but sadly for me it's not very often lol, I am finding it difficult to control my BGs at the minute.

Question for everyone.....do you find that your body reacts differently even if you were to eat the same foods regularly? I'm finding that even if I eat the same foods everyday that my BGs won't necessarily be the same and I need to adjust my insulin all the time.
05-15-2013, 02:12 PM   #65
grandmajese
 
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check my blood sugar when I wake up and can't go back to sleep? I could do that, great now I'm curious! lol
05-16-2013, 12:55 AM   #66
Aura
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If I'm stressed or sick they play up
05-16-2013, 05:12 AM   #67
lizbeth
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http://www.diabetes.co.uk/nocturnal-hypoglycemia.html

This is a link about nocturnal hypos that you might find helpful. I have quite a few hypos during the night, although I do generally wake up I also suspect that I've slept through some as well. It also explains why I might have higher than expected BMs in the mornings.

My blood glucose readings would be effected by stress and sickness too, but I have occasionally found that instead of going up they drop and I even ended up in hospital once because of it.

Last edited by lizbeth; 09-03-2013 at 06:00 AM.
07-16-2013, 04:26 PM   #68
ron50
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I saw a neurologist a few months back. I gave him my full medical history including being dxed with type 2 diabetes after being on 75 mg daily of prednisone for 18 mos. He scheduled nerve conductivity tests and yesterday I finally got in for my tests. I had some done years ago and I remember thinking that they were no big deal. Yesterday I felt like I was in an electric chair being operated by a sadist, Halfway thru the tests the technician called the neurologist in and he re-did several of the procedures.
When I first saw the doctor I told him that I thought I had severe peripheral neuropathy. My question was ,What was causing it and how did I limit or reverse the damage. At the end of the tests yesterday he told me I had severe peripheral neuropathy in both feet and legs. He did not know what caused it and he could not help me. Those words of wisdom cost me close to $600.00 for the two visits.
I have had several long glucose tests over the past thirty years. They have shown me to be close to but not in the diabetic range. One doctor asked for a glucose test with insulin levels. At two hours insulin levels were supposed to be back to under 20 mml per litre , mine were 292 mml per litre. It is starting to look like insulin resistance over many years have destroyed my peripheral nerves. Unfortunately in the past six months I have developed an ectopic heart beat. Both my nephrologist and gp claim it is a benign condition , some days when I take my pulse every second beat is missing. I asked the neurologist if it could be neuropathy related . He just said ,get it checked NOW. Unfortunately that seems to illustrate my history with doctors...Little care and even less responsibility. I really don't think I am going to get much further down the path of life I just wish it were quick and clean ,not so drawn out and painful. Ron.
07-20-2013, 02:48 PM   #69
DLTooley
My diabetes was diet controlled, but after the onset of my IBD symptoms (something besides Crohns) it returned. I'm reading that metformin does have digestive side effects, but those weren't an issue for me when I first took it, a few years ago. Can Metformin contribute to a flare or make particular types of IBD worse?
07-28-2013, 11:09 AM   #70
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Just diagnosed with crohns, have had diabetes since my first pregnancy 23 years ago. Have been on insulin for about 15 years. Have struggled for a long time. Things were going really well in January 2012 when I got into a program at a local gym called Give it back, get it back. Something like the biggest loser. I was in a fantastic supportive group of 8 ladies and the most amazing trainer. Have never felt so good.. Lost 30 lbs diabetes fantastic and then last June things went backwards. Thought it was depression but was a flare up. Sugars went all to hell, had to take more insulin which resulted in weight gain. Since then has been so hard to get the weight off. High sugars and lots of insulin. Dr since put me on metformin and victoza. Has helped but it is so expensive. I think my meds without the Humira are running at $500 a month. Thank goodness for BC Fair Pharmacare. Since my recent crohns diagnosis it has been quite a ride but thankful that knowing what I have really explains a lot and now I can move forward to get back to well being and doing some of the things that I have grown to love like getting back to the gym and joining my fitness buddies.
07-28-2013, 02:21 PM   #71
lblair
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Welcome Karen!!!!
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Randitine 150 mg twice a day!!!!
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Cymbalta 60mg everyday
HZTC 25mg/12.5mg-high blood pressure
Glipizide 5mg before breakfast and dinner
Calcium-
Vitamin
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Gabapetin-300mg three times a day!!!
Fish oil

Meds that have not worked:
Humara
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Bowel resection on 3/24/2014
08-27-2013, 01:42 AM   #72
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Hello I have pre diabetes and I have been like this for months but lately for about a month or so my readings have been getting out of hand I have had some that have been 160 and higher and others that have been around 125 to the 130's so I have set up an appointment with my doctor to discuss this and get some blood work done I am hoping it is at worse type 2 and not type 1 like my father had. I also have not been able to get officially diagnosed with Crohn's yet because I have not been able to afford the colonoscopy, MRI, or a catscan. I finally got some insurance now and I hope I can at least get an MRI done because my out-of-pocket is still $1900 for the colonoscopy. My gastrologist says that he can still diagnose me with an MRI just not be able to make any biopsies. Hopefully I can wait till January 14, 2014 to do the colonoscopy when with the Obamacare there will not be a deductible. Well this is my story so far I will write again.
08-28-2013, 09:02 AM   #73
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Hi riclow, I find when I'm in an active flare my blood sugars are higher due to the fact my body is fighting. I have to up my insulin at that point to get better control. So sorry you can't get your tests yet. In 2011 I had to visit a dr. In Maui and had to pay $300 for the visit while not a lot here in our province a Dr. Would get approx $40 for the same visit. Crazy the difference. Well hopefully things change and you get a better healthcare system. Doesn't seem right that you can't get proper healthcare just because you don't have the money.
08-31-2013, 10:53 AM   #74
riclow
 
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I have a question for anyone. I have not been diagnosed with neither Crohn's or diabetes. I thought I was going to get some new insurance but then I found out I still cannot afford it. I was going to use the insurance to finally get tested for Crohn's because both me and my gastrologist thinks I have Crohn's in my ileium area. Also, because I am leaking out infection and pus from my anus and I look like I am pregnant and I am a man . I am going to my doctor in October to get blood tests done to see if I have gone from being a pre-diabetic to either a type 1 or type 2 diabetic; my dad was a type 1. My readings I have done over the past two months I have been very high with the lowest being in the 130's and the highest being 200 or higher. Alright I have read from another diabetic forum they have been taking a medication that starts like this Met-- and I can't remember the whole name but it tears their digestive system up and I read that they have diarrhea quite a bit and other problems. Finally my question is this is there a medication that is better for people with both Crohn's and diabetes that does not tear up the digestion system so bad?
09-02-2013, 02:11 PM   #75
riclow
 
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Hello members. Just a quick reminder the last post I gave is very important to me because I am very concerned about it. Can someone please give me some kind of reply to it. Thanks.
09-02-2013, 03:50 PM   #76
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The medication that is like metformin is called glumetza. I use it and it doesn't seem to irritate mt gut like metformin. It is a slow release med and I only take it once a day.
09-03-2013, 03:21 AM   #77
Aura
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I take 4 x 850 mg metformin a day, I'm type 2, like my mum, nana and grannie. But it doesn't impact on my guts. It also helps my poly cystic ovary syndrome as well.
09-03-2013, 06:36 AM   #78
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Hello everybody and welcome to all the new members. Sorry I haven't been present for a while, I haven't been having such a good time due to joint and back pains, I saw my GP who has changed my pain relief regime and I started taking morphine and now also acupan. It has slightly dulled the joint pain etc but for the first time in ten months my crohns pain is munch easier, yay!! Then I was told I don't have crohns that it's IBS!! I don't believe it is, not after the experience of living with `crohns` for all this time. So I'm absolutely shattered.

My diabetes is all over the place and My Dr thinks there is an issue with carb absorption and that I could eat and do the same thing everyday but my sugars would never be the same.......and he's right, I have to dose adjust every injection. He started me on a new long acting insulin called Tresiba, it apparently can keep working for up to 42 hours and can reduce the amount of hypos, I have up to 7 a week.

Does anyone else have trouble controlling their blood sugars?

Riclow I'm so sorry that you can't have your tests, I can't begin to imagine how frustrating that must be. I was wondering why you were worried about having type 1 diabetes, is it that your dad had a bad time with type 1 diabetes and thats why you're worried about it? Please try not to worry. Whatever your concerns are please feel free to ask us anything. I'm sorry I can't answer your question about the medication, I did try metformin and it didn't agree with me but I know that it works well for a lot of people so try not to dismiss it. It might be that it would work well for you too. I wish you well.

Last edited by lizbeth; 09-03-2013 at 06:56 AM.
09-04-2013, 01:54 AM   #79
ron50
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I am on 500gms of metformin morning and night. I have been notorious since chemo therapy for getting bad reactions to most drugs. I'm happy to say it has been no worries with metformin . I don't test every day ,usually every second week and get an average. The week before last it was 5.8 which is perfect. This week I have had a couple of 7.2 but it never gets to 7.5. In the words of my gp I am well controlled. My heart is still doing weird things. They thought I was suffering from a few to many premature ventricular ectopic beats ,so they put a monitor on me for 24 hrs. They said up to a few hundred is ok. I recorded over ten thousand so I see the cardiac specialist in two weeks
09-04-2013, 05:09 AM   #80
lizbeth
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I am on 500gms of metformin morning and night. I have been notorious since chemo therapy for getting bad reactions to most drugs. I'm happy to say it has been no worries with metformin . I don't test every day ,usually every second week and get an average. The week before last it was 5.8 which is perfect. This week I have had a couple of 7.2 but it never gets to 7.5. In the words of my gp I am well controlled. My heart is still doing weird things. They thought I was suffering from a few to many premature ventricular ectopic beats ,so they put a monitor on me for 24 hrs. They said up to a few hundred is ok. I recorded over ten thousand so I see the cardiac specialist in two weeks
Ron your blood sugars are fantastic, mine swing all over the place, they can range from 2.0 up to 25.6 and I find it really hard to get them under control. I take sitaglipten which is the tablet form of victosa, it seems to have helped with my overall HbA1c which was 8.0 the last time. I'm sorry to hear about your heart trouble, it seems that you never get a quiet time with your health, I do hope the appointment with the cardiologist goes well.
09-11-2013, 12:13 AM   #81
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Well, about a year ago I was diagnosed as a insulin dependent type 2 diabetic after being hospitalized from it. Yesterday, I was diagnosed with Crohn's.

I find it kind of ironic. If I had known I had Crohn's EARLIER, I may have started eating better and avoided becoming diabetic! But who knows.
09-11-2013, 09:43 AM   #82
lizbeth
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HavNoFear.....Welcome to the forum and this support group though I am sorry that you've had to join us. Yes it does seem a bit unfair in life, as you say if crohns had come first then maybe diabetes wouldn't have come along.....who knows? How are you finding managing the two? Please feel free to ask us anything and I'm sure someone might be able to help.

How is everyone else doing?
09-12-2013, 01:46 AM   #83
ron50
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Had a funny feeling so I rang my gastro. She has changed practices and had been trying to get in touch with me. I'm booked in for a scope in October. I don't go too well taking the prep so they put me in hospital for the duration..no escape possible!!! Blood sugars will definitely take a dive that week. Cheers ron.
10-01-2013, 06:31 PM   #84
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Had a funny feeling so I rang my gastro. She has changed practices and had been trying to get in touch with me. I'm booked in for a scope in October. I don't go too well taking the prep so they put me in hospital for the duration..no escape possible!!! Blood sugars will definitely take a dive that week. Cheers ron.

Hi everyone, just wondering how you are all doing? Has anyone been prescribed any new medications or do you have any grumbles you want to get off your chest . Would love to hear how you all are.

What date is your score Ron?
10-03-2013, 01:38 AM   #85
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I go in on the 29 th. It is first time I have been out to three yearly scopes since I had colon cancer. I am a bit nervous as I have had polyps with pre cancerous changes at twelve months. If it is clear I will be very relieved. Ron.
10-03-2013, 07:06 AM   #86
lizbeth
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I go in on the 29 th. It is first time I have been out to three yearly scopes since I had colon cancer. I am a bit nervous as I have had polyps with pre cancerous changes at twelve months. If it is clear I will be very relieved. Ron.
I will keep my fingers crossed that it works out ok .
10-11-2013, 06:07 PM   #87
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Scope may not happen . I have developed a flu ,they think it is type A . I went to my gp he is very thorough. He gave me three anti-biots but he also sent me for a chest x-ray and bloods. I have been in hospital for most of the week , got out yesterday. The bloods came back positive for troponin which indicates a heart attack or heart muscle damage. I spent most of my time in the medical assessment ward. They have dxed me with serious chronic asthma , standard environmentally triggered , bronchial from the flu and cardiac asthma which is a pseudo asthma where the effects of congestive heart failure mimic the same symptoms as asthma. They seem to have forgotten about the flu and I fear I am heading toward pneumonia. I have been put on a preventive and emergency inhaler. Both have steroids so my sugars are also mis-behaving. My scope is only a few weeks away so I doubt if they will go ahead. They are going to do follow ups to assess my level of congestive heart failure and if there are obvious areas of damage to my heart muscle. So tired of dying an inch at a time , if I was a dog they would have used the big green needle. Ron.
10-12-2013, 01:45 AM   #88
grandmajese
 
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I REALLY hope you get better. Having Crohns and Diabeties sucks. Being on more meds than I can remember sucks. Being on 2 immune suppressors is scary. Steroids too! oh hell no! Be sure to harass the nurses. They get paid good, they should at least be entertaining.
10-12-2013, 02:03 AM   #89
grandmajese
 
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Any suggestions for something to replace the metformin? they lowered my dose and put me on time released and that helped but if things don't get better I'm going to have to take Humira every week. I'd rather not. I am also on amaryl but I'm not sure if that would make it better or worse. Back to Web MD I guess. I get more info there than at the doctors office. thanks, Jese
10-12-2013, 10:21 AM   #90
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I couldn't do the metformin so I take glumetza once a day. As well I take victoza which has really helped with my blood sugars. I hear you on the amount if meds. Having both crohns and diabetes is so hard. My doctor says no way to steroids. It may take longer together to remission but it will get there.
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