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Crohn's Disease Forum » Parents of Kids with IBD » Some good news 1year after diagnosis


03-22-2013, 12:33 AM   #1
Dearie
 
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Location: Virginia Beacj, Virginia

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Some good news 1year after diagnosis

Hello to everyone! Just providing an update on my son since I haven't been up here in a long time. It has been a year since diagnosis and we just had a repeat scope done last week just to see if things have improved and so happy to say that his scope appeared markedly improved since last year!! Inflammatory markers are very low and iron levels are good!
...But his liver enzymes are slightly elevated and still showed some gastritis, which his doc says both may be attributed to a stomach virus that he and my other kids had the weekend before the scope?? Will recheck liver enzymes next week. Also I'm a little concerned that he's been on the Prilosec for a year but she is not concerned about that.
Anyway thanks to all of the support and knowledge I've received from this site! And thanks for reading my update.
03-22-2013, 06:10 AM   #2
upsetmom
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Thanks for the update . I'm glad everything's going good..
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Daughter dx CD March2012...
(aged 14)

Currently on:
40mg Humira
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Dx Premature Ovarian Failure 2014



03-22-2013, 06:19 AM   #3
AZMOM
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Great news is so welcome!!!!!!

J.
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Julie

Mom to Claire - 11 going on 17

Dx JRA age 3, Crohn's age 6
Acute transverse myelitis at age 5

Started IVIG September 2016
Started Tacrolimus October 2016
Neurontin 100mg twice daily
Folic Acid
Calcium/D supplement
Daily Vitamin
Daily Probiotic

No more Enbrel, Stelara, Methotrexate, Allopurinal or 6MP
03-22-2013, 11:08 AM   #4
Jmrogers4
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Glad he is doing well Thank you for updating
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Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
03-22-2013, 01:01 PM   #5
Farmwife
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Glad to hear some good news.
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
03-23-2013, 04:14 AM   #6
DustyKat
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Location: New South Wales, Australia
Thanks so much for the update Dearie.

It is wonderful to read that your lad has improved and I hope that all remains okay with his liver function levels. Good luck!

Dusty.
03-23-2013, 09:47 AM   #7
momoftwinboys
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Love to hear good news! H is happy to hear your son is doing well too!
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Son (age 13) dx Crohn's October 2011 (age 10)
Azathioprine 10/2011-11/2012
Remicade October 2012
krill oil, multivitamin, liquid Vitamin D/Calcium/Magnesium, zinc, pro-thera complete probiotic.

"The decision to have a child is to accept that your heart will forever walk about outside of your body" Katherine Hadley
03-25-2013, 09:40 AM   #8
Dearie
 
Join Date: Apr 2012
Location: Virginia Beacj, Virginia

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Thanks to everyone!
My son just had his liver enzymes redrawn & we are now waiting for results.
To momoftwinboys tell H we said thanks & hope to see you again this summer!

~Dearie
03-25-2013, 09:56 AM   #9
kimmidwife
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Dearie,
Happy to hear good news! About the Prilosec it seems to me these doctors are a bit nonchalant about its possible downsides. I guess so many of these other drugs have worse side effects that they look at those as minimal in comparison. My daughter had been on it for four years and no one ever discussed the increased risk for osteoporosis especially as these kids are building their bone density currently. I brought it up with our doctor this year and she poo pooed it but I inisisted that we switch my daughter to zantac which does not have any of those possible side effects and she switched her and she is doing well.
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Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
03-26-2013, 03:44 AM   #10
Dearie
 
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His labs came back fine. Liver enzymes back to normal limits!
Thanks for that information kimmidwife. I will ask his doctor and look into possibly stopping the Prilosec.
03-27-2013, 12:59 AM   #11
Crohn's Mom
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Love to hear the good news and so happy that his liver enzymes are back to normal!
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~T~
Mom to Gab (20)
DX: Crohn's 2/2010
and Austin (18)
DX: Crohn's 7/2013
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Crohn's Disease Forum » Parents of Kids with IBD » Some good news 1year after diagnosis
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