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Crohn's Disease Forum » Parents of Kids with IBD » Remicade Reaction - how long before


View Poll Results: Remicade - How many infusions till your child had an allergic reaction
First Infusion 0 0%
After Second or Third Infusion 2 66.67%
After infusion 6 to 8 1 33.33%
After a year of infusions 0 0%
Voters: 3. You may not vote on this poll

03-23-2013, 07:42 PM   #1
my little penguin
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Remicade Reaction - how long before


How long after your child started remicade did they develop an allergic reaction ?


DS had a reaction the first time after his 6th infusion.
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03-25-2013, 12:04 AM   #2
vtfamily
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Gus never had an allergic reaction to Remicade. As far as I know, he didn't develop any antibodies to it either..at least none that showed-up in the lab work. The way we found out that Remicade had stopped working was that our doctor decided to do a pill cam study. It showed stricturing. He did a follow-up endoscopy and found two things. (1) the camera was stuck in the duodenum. (2) there was an extremely tight stricture at that location. Luckily, he was able to remove the camera without surgery.

Here's the crazy thing. Even with the camera stuck...my son never had pain due to the obstruction. So, I think the Remicade was great for his pain, but not so much for controlling his disease.

Last edited by vtfamily; 03-25-2013 at 07:56 PM.
03-25-2013, 07:00 PM   #3
Tesscorm
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Good idea MLP... will be very interested to see results!
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Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
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