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Crohn's Disease Forum » Parents of Kids with IBD » Much needed Vacation


03-24-2013, 02:04 PM   #1
Hope345
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Much needed Vacation

Our B is having a good couple of days and we are headed to the coast. Looking forward to some time with the family and seeing the ocean.

Pray that B continues to feel well.
signing off for spring break with the family.
Hugs to all my sisters and brothers on here and your beautiful children.
you will all be in my prayers.
julie
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Daughter (age 17) diagnosed with Crohns Colitis/UC 1/2012 Mod/severe changed to U.C.: 11/7/2014 anemia:blood transfusion current: Flare, weaning from Prednisone, still bloating: Meds ,Pentesa: 2000mg twice daily, Vegan diet, mesalamine enemas .Previous: mercaptopurine, Remicade (13 treatments), Imuran, prednisone ), Flagyl, iron infusions, cortifoam,
Continue to be hopeful
Daughter: age 21, undiagnosed: GI issues
03-24-2013, 02:09 PM   #2
upsetmom
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Enjoy your vacation..
I hope B continues to feel good.
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Daughter dx CD March2012...
(aged 14)

Currently on:
40mg Humira
125mg Imuran




Dx Premature Ovarian Failure 2014



03-24-2013, 02:53 PM   #3
DustyKat
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Oh wow!

I hope you all have a fab time and everything goes well. Have fun and a dip for me!

Dusty.
03-24-2013, 02:53 PM   #4
Johnnysmom
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Have a great time!!!!
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Mom of Johnny
Dx Oct 11 2011 Crohns disease
Prednisone done 12/30/11
6mp 50mg every day
Allopurinol 50mg -discontinued per new G.I. on 11/01/12
Multi Vitamin
Vitamin D3 1000mg
Prayer
03-24-2013, 03:50 PM   #5
Mehita
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Have fun!
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Mom of DS, age 17, dx Crohn's and Celiac Oct 2008
- Remicade, started Nov 2013, added Solumedrol June 2015
- added Methotrexate/Folate March 2016
- Multivitamins, Probiotics, Vit D
- Small bowel resection, Jan 2013
03-24-2013, 04:19 PM   #6
Devynnsmom
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Have fun!! Enjoy your family time.
I would love to go see the ocean.
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Samantha, AKA Devynn's mom


Devynn (12 years old) was *unoficially* diagnosed with Crohn's disease in Dec 2009.
That diagnosis was changed to Ulcerative Colitis in Mar 2012.
Pentasa ASA Dec 2009-Mar 2012 (dosage tweaked a couple of times)
Mezavant Mar 2012- Nov 2012
Sulfasalazine-Nov 2012
03-24-2013, 04:20 PM   #7
Sascot
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Have a great time!
03-24-2013, 04:21 PM   #8
jmckinley
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Have a great vacation!
03-24-2013, 05:21 PM   #9
Jmrogers4
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Have fun, love the coast. We've gone to Newport, OR a couple of times and absolutely love it. Hope the weather is at least not rainy
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Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
03-24-2013, 05:45 PM   #10
kimmidwife
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Have a great time!
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Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
03-25-2013, 03:18 PM   #11
CarolinAlaska
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Hope you have a great time and don't have to think about IBD all week (and longer!)
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Carol
J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), controlled with 6MP.
Osteoporosis, Scoliosis, EDS, Asthma, Lymphedema, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety postural tachycardia/POTS and multiple food allergies.
03-25-2013, 04:39 PM   #12
positivemum
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Have a fab time! we travel from the Uk to Florida in May and cannot wait!
03-25-2013, 04:44 PM   #13
parentnj
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enjoy!
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Son Alec 13yrs old - DX 11/2012
Remicade
Methotrexate 12.5 MG Oral & Zofran weekly
Folic Acid Daily
2000 IU Vitamin D Daily
1000 IU B-12 Daily
One A Day for Athletes

Failed - Pentasa
03-25-2013, 07:54 PM   #14
Farmwife
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Everyone is going some where!

I need details when you get back.

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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
03-26-2013, 11:49 PM   #15
Crohn's Mom
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Have a wonderful spring break vacation !
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~T~
Mom to Gab (20)
DX: Crohn's 2/2010
and Austin (18)
DX: Crohn's 7/2013
03-30-2013, 01:49 PM   #16
Hope345
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thanks everyone...
We had a great time and B is still doing so well.
she had one day with a migraine when we got back, but that is gone now. NO Crohn symptoms for 8 days!!!!
She ate most things, even had lactose.
We went on the beach, ate everything in site and enjoyed each others company.

Carol: as far as not thinking about IBD, our minds never stop going, as you all know, but it was still a great break!!!

We are having a early Easter dinner today and I wish you all a Happy Easter tomorrow.
blessings to you and your children.

We also hit the antique stores, Old Town and the beds were soooo comfortable.
03-30-2013, 05:19 PM   #17
DustyKat
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Thanks for the update! It so great to hear you had a wonderful time.



Dusty. xxx
03-30-2013, 05:31 PM   #18
izzi'smom
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So glad that you were able to enjoy yourselves...and welcome home!
FW, you and Gracie can come visit us in NY!!
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Angie, mom to Izzi,10 Crohn's Colitis 1/11 prednisone, entyvio since 2015 Tried: Tacrolimus, Bactrim, simponi, Levsin, Prevacid, Prednisilone, Humira, Remicade, EN via ng, vancomycin, Pentasa, carafate, Sulfasalazine, Cortifoam enemas, dietary changes, fish oil, VSL#3.
03-30-2013, 09:40 PM   #19
CarolinAlaska
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I'm so glad you had a great trip and that your daughter stayed healthy throughout her trip!
04-02-2013, 10:26 AM   #20
Hope345
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It has been almost 2 weeks for B without symptoms. She is acting like a typical 14 year old, which has its own set of problems-lol.

Her 8th Remicade treatment is this Friday (which we doubled last time.)

It all seems to be working together. We are taking it one day at a time and give thanks to the Lord for every good day she has.

This forum has provided so much support during the hard times and I thank all of you for that.
04-02-2013, 11:45 AM   #21
Farmwife
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It all seems to be working together. We are taking it one day at a time and give thanks to the Lord for every good day she has.

.

AMEN!
04-02-2013, 12:25 PM   #22
Jmrogers4
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That is great news, hope it keeps on going and she can just enjoy being a teenager, although I could do without the know-it-all, eye-roll moments that come with it
04-02-2013, 01:09 PM   #23
Devynnsmom
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I'm so glad to hear you had a nice time, and your daughter has been doing well!!
04-02-2013, 04:18 PM   #24
Johnnysmom
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Great news!!!

Glad to hear your vacation went well and she is acting like a typical 14 year old again, exactly how it should be!
04-06-2013, 10:21 AM   #25
CarolinAlaska
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Glad to hear that B is doing so well!
04-06-2013, 12:15 PM   #26
Hope345
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Thanks so much everyone. Her 8th Remicade treatment went well yesterday. We made the best of the ALL DAY event . Nothing ever goes perfectly, but the nurses were funny and B appreciated their humor. She hated doing her homework in the hospital, but we have to do it when we can. Between not feeling well for so long, Spring Break, and then house sitting with her sister, we have a lot to make up for.

So glad I can say that right now....

Hope you all have a good weekend and special prayers for all the children and their loving parents.
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