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04-02-2013, 09:41 PM   #1
Jmrogers4
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If it's not one it's the other

Finally my son seems to be feeling well and gaining weight. Seems that current medicine regime is working. We go back to GI next week for a check in.

So hubby had his blood work done last week and it is all wacked. Liver levels seem to be all over the place and he is losing weight UGH!!!
I'm sure the GI nurse will be calling to have them rechecked again in two weeks to see if there is any change. I told him to ask to get his B12 checked then but whether or not he will actually do it (Shrug)

Drives me nuts because I just want to take control so I can make sure it gets done.
__________________
Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
04-02-2013, 09:48 PM   #2
Clash
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Sorry, Jmrogers4!! I hope things stabilize for your hubby!!! So glad to hear things are still going well for Jack.

I'm so vitamin obsessed right now, I think I'm going to push the doc to test my levels just so I can feel productive in pushing labs!!
__________________
Clash
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira

Last edited by Clash; 04-02-2013 at 10:10 PM.
04-02-2013, 10:08 PM   #3
Jmrogers4
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Yes at least from my research on what his blood tests mean, it either points to liver function or low B12. He has been on Imuran for 9-10 years and has never had his B12 checked - Keep telling him he is not setting a good example
04-03-2013, 11:00 AM   #4
araceli
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Join Date: Nov 2012
Location: El paso, Texas

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Hi. Hope things get better. My daughter was diagnosed two years ago and has never been checked for Vit B or D. But thanks to this forum I learned that is very important. So I ask Gi and got lab order for both my kids.
__________________
Mom/ Girl 19
dx 2011 crohn's in terminal ileum, peri-anal
Prior Meds Asacol, Prednisone, nexium
Current meds.
Remicade since Nov. 2012
Supplements
5000 Vit. D, Multi-Vitamins with Iron
Currently in REMISSION :dance

Mom/ 16 boy
Amplified musculoskeletal pain
Prior. Prednisone, sulfasadine,
Currently. Celebrex, gabapentin, amitriptyline.
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