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04-06-2013, 10:25 AM   #1
CarolinAlaska
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Foul smelling gas

Jae is doing very well right now except for one small (but gnarly) problem. She has such bad smelling gas! I'm thinking that it may be caused by the "Prebio" in her Peptamen Junior, and will try to eliminate that, but I'm wondering if anyone has any other suggestions? Probiotics? Meds? Is this a sign of anything? We're ready to start reintroducing foods, but I'd like to get a handle on the formulas she's drinking before we do that to confuse the issue... Thanks for any suggestions in advance

By the way, her formulas right now are 4 cans Peptamen Junior (with Prebio) and 4 cans Ensure. The foul gas started before we went to Ensure. She drinks a mixture of one can of each 50/50 (Ensure for palatability, Peptamen Junior for digestability).
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J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), taking pred only. NG feedings nightly.
Osteoporosis/osteopenia, Scoliosis, EDS, Asthma, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety, postural tachycardia/POTS and multiple food allergies.
04-06-2013, 11:52 AM   #2
my little penguin
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Ds is on 3 peptamen jr with prebio a day - no gas issues.
That wasn't a problem when he was 7 a day without food either .
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04-07-2013, 09:52 AM   #3
dodie74
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Before my son was diagnosed he has terrible whiffy gas! since he been on his meds he has been much better though. xx
04-07-2013, 10:46 AM   #4
kimmidwife
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This has been an ongoing issue with my daughter. It is better now then it was now that her crohns is somewhat more under control. I think it is just an IBD thing.
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Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
04-07-2013, 02:09 PM   #5
Crohn's Mom
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I was thinking Probiotics, but honestly I don't have a clue!
I have no experience with EN, so I will just wish you luck on saving your poor senses!
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DX: Crohn's 2/2010
and Austin (18)
DX: Crohn's 7/2013
04-07-2013, 02:56 PM   #6
Brian'sMom
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I have found that wierd/bad smelling gas comes with things not going well in the bowels. If its isolated to one day...then I'd blame food
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symptoms 2005, official dx 6/2010

Praying for Remission
Vedolizumab 8-8-14
Ileostomy 3/22/14
Multivitamin,Iron,Vit D

Total EEN 12-10-13 to:TPN 1-29-14 - 4-2-14
Tried:Azathioprine,Pred,Pentasa,Cimzia Bi weekly & MTX 9/2013 to 8/2014, Humira 1/2011-9/2013, w/oral mtx 5 mos in 2013. Remicade: Had allergic reaction Jan 2011 Built up antibodies by 3rd infusion.
Has done round of Flagyl due to abcess 12/10 and 10-21-13 which helped both heal quickly.
04-07-2013, 03:27 PM   #7
Twiggy930
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My son had terrible smelling gas (the not just clear a room but clear a HOUSE kind) just before he was diagnosed when he was really inflamed. It went away as soon as he started meds.
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Son (age 13) diagnosed with Crohn's Feb. 2012.
Currently on Imuran and Sulfasalazine.

Also taking: TuZen probiotic and following a low FODMAP diet (not very strictly).

Past Treatments: Prednisone, Flagyl, Cipro, Pentasa, exclusive EN via NG tube (6 weeks), Prevacid, Iberogast (20 drops twice a day) and high doses of vitamin B2.
04-07-2013, 04:24 PM   #8
imaboveitall
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Carol, I just said this in the EN thread then saw this thread so:
Look up SIBO. Small bowel bacterial overgrowth can cause foul smelling flatus.
Also C-difficile but if she had that she'd likely have symptoms but worth doing a culture to see.
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VIOLET AGED 16

Current tx:
Pediasure PEPTIDE 1000 cals nightly via NG tube
Imuran 150mg
Humira


Failed and/or past tx:
Remicade
methotrexate
prednisone
Flagyl
Pentasa
atenolol
Florinef
cyproheptadine
Humira
04-07-2013, 09:57 PM   #9
Devynnsmom
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Devynn had the worst gas ever before being diagnosed. It got a bit better when the meds were working. She has her good days and bad days. If she eats anything with milk, pizza being the worst.. she can clear a room.
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Devynn (12 years old) was *unoficially* diagnosed with Crohn's disease in Dec 2009.
That diagnosis was changed to Ulcerative Colitis in Mar 2012.
Pentasa ASA Dec 2009-Mar 2012 (dosage tweaked a couple of times)
Mezavant Mar 2012- Nov 2012
Sulfasalazine-Nov 2012
04-07-2013, 10:11 PM   #10
If*
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Could be undigested carbs. (carbohydrates ) -fairly common with sugars even in fluids and juice, white bread, starches.

;-)
04-07-2013, 11:12 PM   #11
jmckinley
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Gas has been a problem here too. I was going to say the Ensure before you said it started before you started it. Dairy and sugar are big culprits for us. It's usually a sign that things aren't great in the gut. Yes, starting on probiotics or changing/increasing them can do it for us also.
04-07-2013, 11:54 PM   #12
CarolinAlaska
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I think that we may have narrowed it down to the Peptide. She cut that out today and so far, so good! I hope so!
04-08-2013, 05:07 AM   #13
DustyKat
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Where e'er thou be,
let thy wind blow free.

I hope you have found the answer Carol and the air is sweeter smelling!

Good luck!

Dusty. xxx
04-08-2013, 07:30 AM   #14
jmckinley
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Where e'er thou be,
let thy wind blow free.


Dusty. xxx

Only Dusty could find the goodness in gas!!
04-08-2013, 01:18 PM   #15
CarolinAlaska
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Where e'er thou be,
let thy wind blow free.

I hope you have found the answer Carol and the air is sweeter smelling!

Good luck!

Dusty. xxx
04-08-2013, 05:21 PM   #16
Farmwife
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Where e'er thou be,
let thy wind blow free.


Leave it up to someone from......
"down under" to say that!

As far as bad smells...I live on a dairy farm...I have to keep my widows closed when the wind blows from the south.
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
04-09-2013, 12:58 AM   #17
CarolinAlaska
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I think we found the culprit in Jae's case. We've ousted the Peptide from the mix and although she's still gassy it doesn't smell like sulfur any longer and her sister isn't making her keep a fan blowing air across her butt in the other direction to continue to play with her! (True story)
04-09-2013, 05:39 AM   #18
DustyKat
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Leave it up to someone from......
"down under" to say that!
I'll take that as a compliment.

Dusty.
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