Share Facebook


04-06-2013, 08:16 PM   #1
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
More blood.....

Ds had more blood today- only happened once...sooo.....
of course DH saw it and details are hard to come by.
the fun just keeps on coming.....
__________________
DS - -Crohn's -Stelara -mtx-IVIG

Last edited by my little penguin; 04-06-2013 at 08:16 PM. Reason: typos
04-06-2013, 08:21 PM   #2
CarolinAlaska
Holding It Together
 
CarolinAlaska's Avatar
 
Join Date: Jan 2013
Location: North Central, Illinois

My Support Groups:
__________________
Carol
J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), taking pred only. NG feedings nightly.
Osteoporosis/osteopenia, Scoliosis, EDS, Asthma, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety, postural tachycardia/POTS and multiple food allergies.
04-06-2013, 08:27 PM   #3
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
It is par for his course- typically just one BM streaked with Blood then we move on...
not sure why- but i am trying to be "ok" with it since we are not going to change anything
04-06-2013, 09:16 PM   #4
CarolinAlaska
Holding It Together
 
CarolinAlaska's Avatar
 
Join Date: Jan 2013
Location: North Central, Illinois

My Support Groups:
<<hugs>>>
04-06-2013, 09:42 PM   #5
Tesscorm
Moderator
 
Tesscorm's Avatar
 
Join Date: Jun 2011
Location: Ontario

My Support Groups:
I know that feeling of 'trying to be ok'... I'm glad you're getting the MRI done sooner and can move on with taking the next step! So much easier to be 'ok' once you're on the right road and moving ahead!
__________________
Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
04-07-2013, 12:15 AM   #6
DustyKat
Super Moderator
 
DustyKat's Avatar
 
Join Date: May 2010
Location: New South Wales, Australia
Thinking of you and your boy mlp...

Dusty. xxx
04-07-2013, 04:43 AM   #7
AZMOM
Moderator
 
AZMOM's Avatar
 
Join Date: Nov 2010

My Support Groups:
Ugh..........

((((Hugs))))

J.
__________________
Julie

Mom to Claire - 11 going on 17

Dx JRA age 3, Crohn's age 6
Acute transverse myelitis at age 5

Started IVIG September 2016
Started Tacrolimus October 2016
Neurontin 100mg twice daily
Folic Acid
Calcium/D supplement
Daily Vitamin
Daily Probiotic

No more Enbrel, Stelara, Methotrexate, Allopurinal or 6MP
04-07-2013, 09:10 AM   #8
Devynnsmom
Forum Monitor
 
Devynnsmom's Avatar
 
Join Date: Jan 2012
Location: Toronto, Ontario
((((((hugs))))))
__________________
Samantha, AKA Devynn's mom


Devynn (12 years old) was *unoficially* diagnosed with Crohn's disease in Dec 2009.
That diagnosis was changed to Ulcerative Colitis in Mar 2012.
Pentasa ASA Dec 2009-Mar 2012 (dosage tweaked a couple of times)
Mezavant Mar 2012- Nov 2012
Sulfasalazine-Nov 2012
04-07-2013, 02:07 PM   #9
Crohn's Mom
Moderator
 
Crohn's Mom's Avatar
 
Join Date: Mar 2011
Location: Florida

My Support Groups:
Thinking of you and wishing you didn't have to be "OK" with anything like this...
__________________
~T~
Mom to Gab (20)
DX: Crohn's 2/2010
and Austin (18)
DX: Crohn's 7/2013
04-08-2013, 03:46 PM   #10
AZMOM
Moderator
 
AZMOM's Avatar
 
Join Date: Nov 2010

My Support Groups:
How are things??

J.
04-08-2013, 04:54 PM   #11
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
a small bit of red yesterday with 5 BM's so better than the 7BM's Sat.
MRI was NORMAL!!!!

He seems to be feeling better.
The funny thing is ( ok not funny) but he feels horrid for a while with no blood or other stool signs . Then after horrible pain Saturday and blood - he seems to be on the mend.

OK maybe I am putting my head in the sand but....
I am aloud - Did I mention the MRI was CLEAR!!!!!
04-08-2013, 05:01 PM   #12
AZMOM
Moderator
 
AZMOM's Avatar
 
Join Date: Nov 2010

My Support Groups:
Yay for normal MRIs

J.
04-08-2013, 05:01 PM   #13
Clash
Forum Monitor
 
Clash's Avatar
Oh my that is the most awesome news I have heard all day!!!!!! Woohoo...literally jumping up and down for the clear MRI!!!

I hope the symptoms continue to settle!!!
__________________
Clash
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
04-08-2013, 05:16 PM   #14
Farmwife
Forum Monitor
 
Farmwife's Avatar
 
Join Date: Apr 2012
Location: Michigan

My Support Groups:
So glad to hear that.

hugs
__________________
I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
04-08-2013, 06:08 PM   #15
upsetmom
Senior Member
 
upsetmom's Avatar
 
Join Date: May 2012
Location: New South Wales, Australia

My Support Groups:
MLP i'm so happy that the MRI was normal...
__________________
Daughter dx CD March2012...
(aged 14)

Currently on:
40mg Humira
125mg Imuran




Dx Premature Ovarian Failure 2014



04-08-2013, 06:37 PM   #16
Tesscorm
Moderator
 
Tesscorm's Avatar
 
Join Date: Jun 2011
Location: Ontario

My Support Groups:
OMG, I AM SOOOOOOO HAPPY FOR YOU!!!!!!!!!! Woohoo!!!!!
04-08-2013, 06:43 PM   #17
Devynnsmom
Forum Monitor
 
Devynnsmom's Avatar
 
Join Date: Jan 2012
Location: Toronto, Ontario
So glad the MRI was normal!
04-08-2013, 09:10 PM   #18
Mehita
Forum Monitor
 
Mehita's Avatar
 
Join Date: Nov 2011
Location: Minnesota

My Support Groups:
Woohoo for a normal MRI! But...? What are you thinking the blood might be from?
__________________
Mom of DS, age 17, dx Crohn's and Celiac Oct 2008
- Remicade, started Nov 2013, added Solumedrol June 2015
- added Methotrexate/Folate March 2016
- Multivitamins, Probiotics, Vit D
- Small bowel resection, Jan 2013
04-08-2013, 09:12 PM   #19
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
HE tends to have blood for 1-3 days out of the blue then nothing.
SInce he has crohn's GI is not too concerned-
since it usually is just a small amount ( not in the water typically - only happened once like that)
DId I mention Ds is a puzzle only he know the answer too.
04-08-2013, 09:30 PM   #20
Mehita
Forum Monitor
 
Mehita's Avatar
 
Join Date: Nov 2011
Location: Minnesota

My Support Groups:
Maybe you can encourage him to be a GI!
04-08-2013, 09:51 PM   #21
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
He actually wants to be a pathologist of all things to make sure kids get the right dx.
04-08-2013, 10:20 PM   #22
Kimberly27
Senior Member
 
Kimberly27's Avatar
 
Join Date: Feb 2013
Location: Mendocino County, Northern California

My Support Groups:
Happy, happy news!

Kimberly
__________________

"You never know how strong you are until being strong is the only choice you have."

Mom of 17 year old son with Crohn's
2000 mg Pentasa
125 mg. Azathiorpine
Calcium/Vit D
Multi-Vit

Past Meds:
Metronidazole (Flagyl), Ciprofloxacin, Levofloxacin, Xifaxin, Zosyn, Augmentin-ES, VSL#3
04-09-2013, 01:27 AM   #23
CarolinAlaska
Holding It Together
 
CarolinAlaska's Avatar
 
Join Date: Jan 2013
Location: North Central, Illinois

My Support Groups:
Glad for the clear MRI!
04-09-2013, 06:15 AM   #24
DustyKat
Super Moderator
 
DustyKat's Avatar
 
Join Date: May 2010
Location: New South Wales, Australia
Oh mlp! What a relief! I am so happy for you!

Onwards and Upwards young penguin!

Dusty. xxx
04-09-2013, 06:17 AM   #25
polly13
Senior Member
 
polly13's Avatar
 
Join Date: Jan 2012
Location: Tipperary, Ireland

My Support Groups:
Glad for the clear MRI. Lucy tends to have episodes of bleeding that come from nowhere - again it is probably the fissures acting up. N
04-09-2013, 10:11 AM   #26
Brian'sMom
Senior Member
 
Brian'sMom's Avatar
 
Join Date: Dec 2010
Location: Kansas

My Support Groups:
Great news!! What's the plan from here?
Could the blood be simple as a hemmorroid inside or just wound near rectum? Glad the GI isn't alarmed. Have to hang on that
__________________
Kathy, Mom of 14 yr old Brian
symptoms 2005, official dx 6/2010

Praying for Remission
Vedolizumab 8-8-14
Ileostomy 3/22/14
Multivitamin,Iron,Vit D

Total EEN 12-10-13 to:TPN 1-29-14 - 4-2-14
Tried:Azathioprine,Pred,Pentasa,Cimzia Bi weekly & MTX 9/2013 to 8/2014, Humira 1/2011-9/2013, w/oral mtx 5 mos in 2013. Remicade: Had allergic reaction Jan 2011 Built up antibodies by 3rd infusion.
Has done round of Flagyl due to abcess 12/10 and 10-21-13 which helped both heal quickly.
04-13-2013, 03:19 PM   #27
AZMOM
Moderator
 
AZMOM's Avatar
 
Join Date: Nov 2010

My Support Groups:
Hope today is smooooooth.

J.
04-13-2013, 03:31 PM   #28
Niks
Forum Monitor
 
Niks's Avatar
 
Join Date: Nov 2012
Location: Swindon, United Kingdom

My Support Groups:
How did I miss this!! Fabulous news about MRI

He'll be a fabulous pathologist xx
__________________
Daughter 22, 1. Upper GI and colonic dysmotility with viscernal hypersensitivity.
2. Predominant Constipation with slow colonic transit and moderate gastroparesis,
3. Nephrolithiasis
4. Osteopenia bordering on osteoporosis



Peristeen Irrigation every other day.
Citramag/Picolax

Waiting for bowel stimulator!
04-13-2013, 08:11 PM   #29
Jmrogers4
Moderator
 
Jmrogers4's Avatar
I missed it too Niks, that is great on normal MRI.
__________________
Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
04-13-2013, 08:48 PM   #30
Twiggy930
Forum Monitor
 
Twiggy930's Avatar
 
Join Date: Feb 2012
Location: Canada

My Support Groups:
Geez, I missed it as well. Such GREAT news!!!!!!!!!!!!!!!!!!!!!!!!!



__________________
Son (age 13) diagnosed with Crohn's Feb. 2012.
Currently on Imuran and Sulfasalazine.

Also taking: TuZen probiotic and following a low FODMAP diet (not very strictly).

Past Treatments: Prednisone, Flagyl, Cipro, Pentasa, exclusive EN via NG tube (6 weeks), Prevacid, Iberogast (20 drops twice a day) and high doses of vitamin B2.
Reply

Thread Tools


All times are GMT -5. The time now is 04:24 AM.
Copyright 2006-2017 Crohnsforum.com