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04-07-2013, 08:37 PM   #1
abirch2013
 
Join Date: Apr 2013
MTX Issue...

Hello everyone. I'm new here. I am a 15 year old male. I was diagnosed with Crohns Disease in October of 2011. I tried Balsalazide, Prednisone, and natural herbs, but nothing worked. I lost down to 59 pounds and was severely anemic. After two trips to the hospital and countless trips to the bathroom, I was put on Remicade. Remicade does great for me. After a few months, I had a colonoscopy. It showed a slight narrowing in my colon, and a spot of inflamed tissue in that same area. I was then put on methotrexate. I am having another colonoscopy in the upcoming months, but this is my story with MTX. I was put on it to see if It would help narrow that small stricture. The doctor thought it was either scar tissue or inflammation. If it was inflammation, he said the MTX would calm it down. If it was scar tissue, he said he would have to go in with a ballon and stretch it out. The MTX also made me be able to wait the full 8 weeks ( I was at every 6 weeks) for my Remicade. The thing about MTX is this...I take it by injection (8 cc) every Friday. It leaves me feeling soooooo tired for the whole weekend. I really HATE it. It makes me nauseaous ( I take zofran) and gives me body pains and dark urine (sometimes its almost a red tint). I am just wondering if there is any alternative for MTX that anyone would recommend for my situations. I am really tired with all the side effects of this med, and I am really looking for something else. Also I take 1 mg of frolic acid every day except the day I take my shot. PLEASE HELP!!! Thanks.
04-07-2013, 09:55 PM   #2
Clash
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Do you take folic acid? My son is 16 and on Remicade and MTX. He takes the MTX in the form of pills but still with MTX it is recommended to take folic acid. My son takes his daily. I know this has helped some with some of the side effects. But some people have side effect regardless. I hope you find some relief.
__________________
Clash
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
05-08-2013, 04:08 PM   #3
parentnj
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Join Date: Dec 2012
Location: Hillsborough, New Jersey

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I would talk to your doctor about perhaps lowering the dose. Our son takes pills but only 1/2 the normal dose since he is on remicade. Perhaps you can get most of the MTX benefit with a lower dose.
__________________
Son Alec 13yrs old - DX 11/2012
Remicade
Methotrexate 12.5 MG Oral & Zofran weekly
Folic Acid Daily
2000 IU Vitamin D Daily
1000 IU B-12 Daily
One A Day for Athletes

Failed - Pentasa
05-11-2013, 02:00 PM   #4
crohnsinct
Senior Member
 
Join Date: Mar 2012
Location: California

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How long have you been on the mtx? Is it working?
__________________
Daughter O dx 2/1/12 at age 12
Crohns & Remicade induced Psoriasis
Remicade
Vit d 2000IU
Multi vitamin plus iron
Calcium

Previously used - Prednisone, Prevacid, Enteral Nutrition, Methotrexate oral and injections, Folic Acid, Probiotics, Cortofoam

Daughter T dx 1/2/15 at age 11
Vitaligo, Precoscious puberty & Crohn's
Remicade
Vit D 2000IU

Previously used, Exclusive Enteral Nutrition, Methotrexate (injections and oral), Folic Acid, Entocort,IBD-AID Diet
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