Share Facebook
Crohn's Disease Forum » Parents of Kids with IBD » How often do your kids see the opthamologist?


04-13-2013, 09:33 AM   #1
Amy2
Senior Member
 
Join Date: Mar 2013
Location: Lafayette, Colorado

My Support Groups:
How often do your kids see the opthamologist?

We were advised to take our son once a year, by the GI doc, but after being given a perfect bill of (eye) health yesterday, the opthamologist said that he would like to see my son back in 3 to 6 months.

We plan to stick to yearly check-ups, unless our son has a problem, but I was curious what other parents do.

Thanks!
__________________
Three passions, simple but overwhelmingly strong, have governed my life: the longing for love, the search for knowledge, and unbearable pity for the suffering of mankind. Bertrand Russell
04-13-2013, 09:36 AM   #2
dodie74
Senior Member
 
dodie74's Avatar
 
Join Date: Sep 2011
Location: west coast scotland., United Kingdom

My Support Groups:
we take the kids yearly to have eyes checked and seems to be the norm unless a problem i suppose. xx
04-13-2013, 12:18 PM   #3
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
WE see them every 3 months- you really need to stay on top of it.
They dont reccomend every 3 months just for fun.
__________________
DS - -Crohn's -Stelara -mtx-IVIG
04-13-2013, 02:03 PM   #4
Mehita
Forum Monitor
 
Mehita's Avatar
 
Join Date: Nov 2011
Location: Minnesota

My Support Groups:
We have yet to see an ophthalmologist! We just switched GI's this year and after having Crohn's for 4 1/2 years, this new GI was the first to ever mention an ophthalmologist. Our first appt is scheduled for May 1st and our GI told us to go yearly. It will be interesting to see what the ophthalmologist says...
__________________
Mom of DS, age 17, dx Crohn's and Celiac Oct 2008
- Remicade, started Nov 2013, added Solumedrol June 2015
- added Methotrexate/Folate March 2016
- Multivitamins, Probiotics, Vit D
- Small bowel resection, Jan 2013
04-13-2013, 02:47 PM   #5
ChampsMom
Senior Member
 
ChampsMom's Avatar
 
Join Date: Mar 2011
Location: North East Coast - USA

My Support Groups:
Why would someone with Crohn's need to go more often than someone else?
__________________
Shell

Mom of Champ (Alex)
Dx: CD April 2010
Meds: 04/25/13 switched back to Pentasa 3,500mg/day - Lialda brought lower abdominal cramps & exhaustion); 04/05/13 switched to Lialda 1.2GM 3 pills/day verse Pentasa 3,500mg/day, prevasaid 15 mg x 1/day, elemental iron, daily vitamin, calcium w/mag D, 50,000 mg Vitamin D/week, B12, B6 supplements, Cetrizine (for sinus issues)
Prayer
Priesthood Blessings
04-13-2013, 02:57 PM   #6
Mehita
Forum Monitor
 
Mehita's Avatar
 
Join Date: Nov 2011
Location: Minnesota

My Support Groups:
Why would someone with Crohn's need to go more often than someone else?
Our GI said Crohn's can cause a variety of eye issues from inflammation to blindness. In many cases, it's just a matter of catching it early and treating it before it becomes a problem. Also, pred can increase risk for glaucoma and cataracts. So, I guess I can understand an ophthalmologist wanting to see a patient more often than annually, especially if they've been flaring.
04-13-2013, 02:58 PM   #7
AZMOM
Moderator
 
AZMOM's Avatar
 
Join Date: Nov 2010

My Support Groups:
We are every six months. No problems to date. Hope it stays that way!!!!!
__________________
Julie

Mom to Claire - 11 going on 17

Dx JRA age 3, Crohn's age 6
Acute transverse myelitis at age 5

Started IVIG September 2016
Started Tacrolimus October 2016
Neurontin 100mg twice daily
Folic Acid
Calcium/D supplement
Daily Vitamin
Daily Probiotic

No more Enbrel, Stelara, Methotrexate, Allopurinal or 6MP
04-13-2013, 04:14 PM   #8
ChampsMom
Senior Member
 
ChampsMom's Avatar
 
Join Date: Mar 2011
Location: North East Coast - USA

My Support Groups:
:/ Think I'm going to call our doctor - he hasn't been in 2 years. Thanks for the info!!
04-13-2013, 04:59 PM   #9
upsetmom
Senior Member
 
upsetmom's Avatar
 
Join Date: May 2012
Location: New South Wales, Australia

My Support Groups:
We've been told every 6 months
__________________
Daughter dx CD March2012...
(aged 14)

Currently on:
40mg Humira
125mg Imuran




Dx Premature Ovarian Failure 2014



04-13-2013, 07:15 PM   #10
Catherine
Moderator
 
Catherine's Avatar
 
Join Date: Jan 2012
Location: Melbourne, Victoria, Australia

My Support Groups:
Anyone know much the risk of glaucoma is increased by pred, sarah grandmother is blind due glaucoma she developed in her early 20s.

Does glaucoma run in families?
__________________
Catherine
Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)
04-13-2013, 07:46 PM   #11
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
Yes glaucoma does run in families.
One of the things DS is checked for is eye pressure .
Due to increased use of pred .
04-13-2013, 09:05 PM   #12
CarolinAlaska
Holding It Together
 
CarolinAlaska's Avatar
 
Join Date: Jan 2013
Location: North Central, Illinois

My Support Groups:
Never yet. Does see regular optometrist yearly...
__________________
Carol
J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), taking pred only. NG feedings nightly.
Osteoporosis/osteopenia, Scoliosis, EDS, Asthma, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety, postural tachycardia/POTS and multiple food allergies.
04-13-2013, 09:13 PM   #13
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
Optometrist did not "catch" ds inflammation.
Only the ophthalmologist .
Ds has limbal vernal keratoconjunctivitis which requires regular topical steroids in his case.
04-13-2013, 09:25 PM   #14
CarolinAlaska
Holding It Together
 
CarolinAlaska's Avatar
 
Join Date: Jan 2013
Location: North Central, Illinois

My Support Groups:
Optometrist did not "catch" ds inflammation.
Only the ophthalmologist .
Ds has limbal vernal keratoconjunctivitis which requires regular topical steroids in his case.
I knew that was coming. The nearest ophthalmologist to us doesn't see kids. I don't know if one is in Anchorage, but if so, probably a long waiting list. Even so, I know I should look into it...
04-13-2013, 09:49 PM   #15
Jmrogers4
Moderator
 
Jmrogers4's Avatar
Never seen one but GI just told us to make an appt at our last appt. with him
__________________
Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
04-13-2013, 10:20 PM   #16
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
Carol
I hear ya...
We were not too keen on seeing the opthamalogist but at the time his allergist strongly suggested he needed to see an MD eye doc.
Thankfully they got him in quick when I called . He had already built up scar tissue on his eyes from years of repeated inflammation .
We did thank the allergist for recognizing something was wrong even if he didn't know what that something was.
04-13-2013, 10:42 PM   #17
CarolinAlaska
Holding It Together
 
CarolinAlaska's Avatar
 
Join Date: Jan 2013
Location: North Central, Illinois

My Support Groups:
MLP, did your son have eye symptoms? What is the risk of her having something wrong if she is asymptomatic and her Crohn's is in good control?
04-13-2013, 11:00 PM   #18
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
He had eye symptoms since age 2. So 5 years before dx.
He saw an allergist who thought allergic conjunctivitis .
He also saw an optometrist yearly from age three on - who said nothing.
His inflammation in his eyes is not directly related to his Ibd as far as we know.
More of a DS tends to be an inflamed ( mast cell active ) kid ( allergies, asthma skin stuff etc...)
Not sure what the risks are for the average Ibd kid.
04-14-2013, 02:17 AM   #19
Farmwife
Forum Monitor
 
Farmwife's Avatar
 
Join Date: Apr 2012
Location: Michigan

My Support Groups:
We were told 6-9 month for her.
Her Pediatric Ophthalmologist said with colitis it's important to make sure the inflammation doesn't effect their eyes. I've also read where eye inflammation can be a precursor to a flare.
__________________
I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
04-14-2013, 03:15 AM   #20
CDJ
Senior Member
 
CDJ's Avatar
 
Join Date: Jan 2013
Location: Uttoxeter, United Kingdom

My Support Groups:
Josh's doctors have never told us to see an ophthalmologist, despite having iritis twice [ a very painful side affect of crohns in the eye ]
He does seem the optician once a year as he wears glasses anyway, but no one yet has taken the iritis seriously. I may have to look more into this.
04-14-2013, 03:21 AM   #21
Sascot
Forum Monitor
 
Sascot's Avatar
 
Join Date: Aug 2011
Location: Falkirk, United Kingdom

My Support Groups:
Our kids used to get checked yearly but it has been changed to every 2 years unless problems arise. I think it's because eye tests are now free for kids they are trying to do as few as possible . I phoned Andrew's optician and they said there is no need to be sooner even though he has Crohn's
04-14-2013, 03:34 AM   #22
Catherine
Moderator
 
Catherine's Avatar
 
Join Date: Jan 2012
Location: Melbourne, Victoria, Australia

My Support Groups:
My husband has eye specialist, will arrange a referral for Sarah. Thank you for posting this thread.
04-14-2013, 10:09 PM   #23
Brian'sMom
Senior Member
 
Brian'sMom's Avatar
 
Join Date: Dec 2010
Location: Kansas

My Support Groups:
We were told once a year. Is that too long? Seems like everyone else goes more frequently
__________________
Kathy, Mom of 14 yr old Brian
symptoms 2005, official dx 6/2010

Praying for Remission
Vedolizumab 8-8-14
Ileostomy 3/22/14
Multivitamin,Iron,Vit D

Total EEN 12-10-13 to:TPN 1-29-14 - 4-2-14
Tried:Azathioprine,Pred,Pentasa,Cimzia Bi weekly & MTX 9/2013 to 8/2014, Humira 1/2011-9/2013, w/oral mtx 5 mos in 2013. Remicade: Had allergic reaction Jan 2011 Built up antibodies by 3rd infusion.
Has done round of Flagyl due to abcess 12/10 and 10-21-13 which helped both heal quickly.
04-14-2013, 10:44 PM   #24
Clash
Forum Monitor
 
Clash's Avatar
C has episcleritis with his CD. Dusty and Jennifer get credit for that dx since they posted the info on here that made me realize C's eye issues weren't allergies. Ophthalmologist agreed episcleritis and we go every 6 mos.
__________________
Clash
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
Reply

Crohn's Disease Forum » Parents of Kids with IBD » How often do your kids see the opthamologist?
Thread Tools


All times are GMT -5. The time now is 02:59 PM.
Copyright 2006-2017 Crohnsforum.com