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04-13-2013, 09:46 AM   #1
dodie74
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Location: west coast scotland., United Kingdom

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Update. x

Not been on for a while but thought would just update on Kian. Seems to be doing well at the minute, still on the metronidazole but only until May, hes so glad to be coming off it, not because of any side effects but the taste! The area where he had procedure for the fissure is healing so well now, still applying the manuka at night time though too but looks as if nearly healed. Bloods in couple weeks time and 6 monthly check due beginning of June. Fingers crossed it all stays this way for the foreseeable future. xx
04-13-2013, 10:52 AM   #2
Jim (POPS)
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Location: Antioch, California

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Hi,
I am so glad things are going well for your son. I got crohns at age 61 and thank God everyday that I was blessed to get it so late in life. I use to be really mad when I got it just after retiering but not anymore. I would give my life to take crohns away from one young child. My heart goes out to all the kids AND your son living with crohns. I know God has good things in life for your child. I hope your son keep the good health he has going on right now.

Jim (Pops)
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Imuran 150mg a day
Entocort 9mg a day
B 12 shot once a month
Vit "C" and Iorn daily
04-13-2013, 11:00 AM   #3
Twiggy930
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Great news!
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Son (age 13) diagnosed with Crohn's Feb. 2012.
Currently on Imuran and Sulfasalazine.

Also taking: TuZen probiotic and following a low FODMAP diet (not very strictly).

Past Treatments: Prednisone, Flagyl, Cipro, Pentasa, exclusive EN via NG tube (6 weeks), Prevacid, Iberogast (20 drops twice a day) and high doses of vitamin B2.
04-13-2013, 11:49 AM   #4
Devynnsmom
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Great news! I hope he continues to do well.
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Samantha, AKA Devynn's mom


Devynn (12 years old) was *unoficially* diagnosed with Crohn's disease in Dec 2009.
That diagnosis was changed to Ulcerative Colitis in Mar 2012.
Pentasa ASA Dec 2009-Mar 2012 (dosage tweaked a couple of times)
Mezavant Mar 2012- Nov 2012
Sulfasalazine-Nov 2012
04-13-2013, 02:59 PM   #5
AZMOM
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. Yay!!!!!
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Julie

Mom to Claire - 11 going on 17

Dx JRA age 3, Crohn's age 6
Acute transverse myelitis at age 5

Started IVIG September 2016
Started Tacrolimus October 2016
Neurontin 100mg twice daily
Folic Acid
Calcium/D supplement
Daily Vitamin
Daily Probiotic

No more Enbrel, Stelara, Methotrexate, Allopurinal or 6MP
04-13-2013, 05:03 PM   #6
upsetmom
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That's great news!
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Daughter dx CD March2012...
(aged 14)

Currently on:
40mg Humira
125mg Imuran




Dx Premature Ovarian Failure 2014



04-13-2013, 09:30 PM   #7
CarolinAlaska
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I'm very glad to read that he's healing so well! I hope that he never has to travel that path again!
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Carol
J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), controlled with 6MP.
Osteoporosis, Scoliosis, EDS, Asthma, Lymphedema, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety postural tachycardia/POTS and multiple food allergies.
04-14-2013, 02:24 AM   #8
Farmwife
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YA!!!!! For feeling better!
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
04-14-2013, 03:34 AM   #9
Sascot
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Glad things are going well. We are still using the honey on a little area that stubbornly refuses to heal! I think the doctors are wondering why I am still ordering it.
04-19-2013, 04:23 AM   #10
DustyKat
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Location: New South Wales, Australia
Thanks for the update dodie!

I hope all continues to go for your lad...

Dusty.
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