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04-18-2013, 03:13 AM   #1
Sascot
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Update

Hi guys, sorry I haven't been on as much. We were away in Spain for a week, then seem to have had so much to do, this is the first time I have spent more than a few minutes on the computer.
We had a nice holiday - it was good to get some sunshine!!
Slight hiccup with the sunshine and Andrew though. I went prepared to be extra careful with him because of the 6mp - always over a factor 30 (it is only spring, so not as hot) and I re-applied his sunscreen more than the rest of us (poor boy has no tan). However he still came out in the most horrendous rash on his hands - with a little on his feet and up his shins. I ended up having to take him to the pharmacy and get an anti-histamine cream.
Was I wrong in thinking I just had to be careful with sunscreen - does the 6mp cause almost an "allergy" to the sun? The sunscreen was hypoallergenic and is one I have used for about 4 years.
I am concerned about our summer cruise now as we are going to somewhere hot again. Kinda wishing we had chosen the Iceland cruise instead
Other than that and alot of tiredness, Andrew is doing alright so far on the 6mp - we will have a FC done in about a month to see what's happening inside!
04-18-2013, 03:24 AM   #2
Catherine
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Sarah got burn on the back of her hands because that's where we didn't think to use sunscreen.

My youngest daughter comes up in a red rash from the hypoallergenic sunscreen. We have move to zinc based sunscreen for whole family due to this reaction.
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Catherine
Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)
04-18-2013, 05:28 AM   #3
AZMOM
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I won't get this exactly right but there is a sunscreen ingredient called PABA that some people can't tolerate. Did yours have that? In my family, I'm the one that gets bumps from that. So we try to stay PABA free.

Oh here. found it. http://www.dermnetnz.org/dermatitis/paba-allergy.html

And despite all that, some people do just break out from the sun. I hope he isn't one of those. He deserves some fun!!! We all do.



J
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Julie

Mom to Claire - 11 going on 17

Dx JRA age 3, Crohn's age 6
Acute transverse myelitis at age 5

Started IVIG September 2016
Started Tacrolimus October 2016
Neurontin 100mg twice daily
Folic Acid
Calcium/D supplement
Daily Vitamin
Daily Probiotic

No more Enbrel, Stelara, Methotrexate, Allopurinal or 6MP

Last edited by AZMOM; 04-18-2013 at 05:29 AM. Reason: added link!
04-18-2013, 11:13 AM   #4
Tesscorm
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Sorry he had that reaction! I have read that some of these meds do make your skin more sensitive. Not completely sure re 6mp.

Did you use the aerosol spray lotions (not just the pump)? I used the aerosol spray on one trip and got a terrible rash. Couldn't figure out what it was and it was only in certain areas but then I realized that, in some areas, the rashes were almost in the shape of a blast of spray, sort of like this... < No one else got the rash, only me.

Very disappointing as I'd thought the spray would be so much more convenient!
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Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
04-18-2013, 11:18 AM   #5
Farmwife
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I'm so glad you had a good time.
My hubby and I get a kick out of this forum when y'all talk where you vacations at.
I just laughed and said Spain.....well I read about that place in a book once.
It's just best to leave farm folks on their farms.
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
04-18-2013, 03:49 PM   #6
Sascot
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Thanks everyone. Spoke to the IBD nurse, she said I can go to the GP and get a special sunscreen on prescription, so will be trying that. His rash is a little worse again today, but I had thought it was going away so had stopped the cream - silly me!
04-18-2013, 07:35 PM   #7
ChampsMom
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(Not Crohn's related)... Ahhh.. Spain! My Aunties & cousins go to Spain on holiday all the time. My Mum and stepDad are in Edinburgh right now - wish I could be with them!!

Glad you had a good time (aside the rash) - I have 3 sons, two of them are fair haired red heads (non Crohn's) - and they both get rashes from the sun - thank you for the PABA info - I'll look into that!
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Shell

Mom of Champ (Alex)
Dx: CD April 2010
Meds: 04/25/13 switched back to Pentasa 3,500mg/day - Lialda brought lower abdominal cramps & exhaustion); 04/05/13 switched to Lialda 1.2GM 3 pills/day verse Pentasa 3,500mg/day, prevasaid 15 mg x 1/day, elemental iron, daily vitamin, calcium w/mag D, 50,000 mg Vitamin D/week, B12, B6 supplements, Cetrizine (for sinus issues)
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Priesthood Blessings
04-18-2013, 07:59 PM   #8
Mehita
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Wash the rash itchy?
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Mom of DS, age 17, dx Crohn's and Celiac Oct 2008
- Remicade, started Nov 2013, added Solumedrol June 2015
- added Methotrexate/Folate March 2016
- Multivitamins, Probiotics, Vit D
- Small bowel resection, Jan 2013
04-18-2013, 08:29 PM   #9
DanceMom
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I agree Farmwife! lol Our big vacation this year is to Daytona Beach (for dance Nationals). Somehow that just doesn't compare to Spain!! lol
04-19-2013, 03:02 AM   #10
Sascot
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ChampsMom - Edinburgh is only 20 mins away from me!! Hope they are having a good time - the weather has been absolutely awful recently.
Have to say the area of Spain we went to (chosen by my mother-in-law) was "interesting" - a hotspot for hen and stag nights, so lots of very drunk, very rude men and women staggering around. My kids certainly had their vocabulary increased that holiday!!!
Mehita - the rash wasn't itchy thankfully, just looked bad!
04-19-2013, 07:52 PM   #11
DustyKat
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So fab to hear you had a lovely holiday! OLE...


Sorry to hear about Andrew's rash though. For some people the sun sensitivity that 6mp produces can cause a rash. Good luck with the prescription sun screen, I hope it does the trick and the rash is a thing of the past!

Dusty. xxx
04-20-2013, 02:04 AM   #12
CarolinAlaska
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Good to have the heads up about rash possibilities. I have seen sensitivities caused by sunscreens too . I am glad we live in Alaska where we don't get too much direct sun. I'm not sure if I have to worry about her going to Washington for Camp Oasis though... I haven't thought of that...
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J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), controlled with 6MP.
Osteoporosis, Scoliosis, EDS, Asthma, Lymphedema, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety postural tachycardia/POTS and multiple food allergies.
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