Hi, new to the forum

Hi I am Alane Clair. I was diagnosed with Crohn's in 2006. It affects my terminal ileum with a stricture. I have to start remicade soon. Not to thrilled about a 2 hour infusion. I'm an RN so I know what I am getting in to. I am lucky with my disease I rarely have to run to the bathroom, but I do experience pain. So I work full time as an RN on a medical surgical unit. I know many people with the disease can't work so I feel pretty lucky that I can still do what I love. Anyway I hope to get some information from others on remicade.

Welcome! I look at my infusion time as"me" time...I get to nap, ignore the phone and emails....

Please do look around, check the remicade forum.....lots of info and great people!

Thanks that's a good idea. I will take my iPad and play some games. Have you experienced any adverse effects?

Welcome to the forum! I have never tried remicade but I have heard it does work for some people. I also am still able to work full time and consider myself extremely lucky. If you ever need to chat let me know!!

Hello and welcome to the forum

I take it the stricture is down to inflammation not scar tissue? I have been on the Remi previously and it did a great job on the tum until it gave me drug induced Lupus, I have seen others here though who have been on it for a long time without issue so I will keep fingers crossed that it will do the trick for you. I used to take a book to read or have a nap during infusions as the chairs were so comfy.

AB
xx