EnergyEasyHi, I'm Lauren. I'm 25 In Just A Few Days.. I Was Diagnosed With Crohns September 2011. From What I Understood It Was Affecting My Ileum. I Kicked Myself Out Of Somewhat Of A remission This Past February Which Led To An Mri Enterography. I Have To Get 6 Inches Of MySmall Intestine Removed. My Symptoms Have Been Worsening These Past Couple Of Months.. Nausea EveryDay, Weight Loss, My Stomach BLoats Out Like I'm Pregnant After I Eat, Fatigue, And Non Regular Bm. Does It Get Better? Bc I Don't Feel Normal. What Causes The Nausea? The Pills They Gave Me Don't Work. And If They Know Where I'm Affected With This Awful Disease, Why Not Just Take Those SeCtions Out? I Begin Clinicals This August And Will Be Non Stop On The Go For The Next Two Years.. Am I Going To Be Able To Do This? People Don't Seem To Understand That EveryDay Is A Constant Battle Anymore With Fighting For Energy, And Fearing Eating Food. Please Give Me Words Of Wisdom And Your Personal Advice And Experiences.
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My story, with questions about crohns
- Thread starter wisfulthinker
- Start date
afidz
Super Moderator
Hi Lauren, welcome to the forum.
It can be better! I can't tell you how to go back in remission because there isn't one answer to that question. You can do little things like manage stress levels and avoid trigger foods, it might help a little bit.
Things like nausea, vomiting and fevers are the body's way to heal itself (it doesn't know it can't be cured). Your body is trying to get rid of what ever is making it sick.
They can take diseased parts of the intestines out, but it really has to be a last resort. Doing a resection now can potentially cause problems later.
Try to keep your chin up. August is a long way away, you may be able to go in remission or at the very least manage your symptoms better by then. Don't loose hope
It can be better! I can't tell you how to go back in remission because there isn't one answer to that question. You can do little things like manage stress levels and avoid trigger foods, it might help a little bit.
Things like nausea, vomiting and fevers are the body's way to heal itself (it doesn't know it can't be cured). Your body is trying to get rid of what ever is making it sick.
They can take diseased parts of the intestines out, but it really has to be a last resort. Doing a resection now can potentially cause problems later.
Try to keep your chin up. August is a long way away, you may be able to go in remission or at the very least manage your symptoms better by then. Don't loose hope
Wishfulthinker,
Welcome to the forum too. This forum is full of support and can offer lots of good information.
You are right, people will not understand the fight you are facing each and every day. But everyone on here will!!
I can not say removing the part is right or wrong for you. It has proven to be effective for some. But like afidz says, it is usually the last resort.
What medications are you currently taking? vitamins?
Regarding school: It is hard to say how you will be feeling at that time. Just so you dont stress yourself out, what are your options? Can your clinicals for school be delayed under special circumstances? I know in Oregon we have a 504 program set up for our daughter that extends through college. Look to see what your options are so you can focus on getting better right now
Welcome to the forum too. This forum is full of support and can offer lots of good information.
You are right, people will not understand the fight you are facing each and every day. But everyone on here will!!
I can not say removing the part is right or wrong for you. It has proven to be effective for some. But like afidz says, it is usually the last resort.
What medications are you currently taking? vitamins?
Regarding school: It is hard to say how you will be feeling at that time. Just so you dont stress yourself out, what are your options? Can your clinicals for school be delayed under special circumstances? I know in Oregon we have a 504 program set up for our daughter that extends through college. Look to see what your options are so you can focus on getting better right now
Thank You Guys So Much For Responding. I'm Currently Taking Prenatal Vitamins As Directed, And The First remission Pill They Put Me On, Imuran, Nearly Killed Me With Pancreatitis Last Year So Now I'm Receiving Remicade Infusions Every SIx Weeks. Trigger Foods, I Know A Few.. But Really Lately NoThing Is Staying Inside. I'm Trying Really Hard To Manage This, But It's Ironic Bc I'm The Most Stressful Person And I Get This Disease That Reacts To Stress. As For Clinicals, Unfortunately I Need To Graduate College In Two Years,I Can't Delay It. Will i Gain My Energy Back After The Resection?
Im sure you will ive had 2 resections and i always believe in mind over matter. Once they take out the nasty bit and its no where else in your intestines you should be feeling great. on the downside the more they take out you end up with other probs but medication sorts it. All the best
Sandra
Sandra
PaThank You Sandra.. I'm Currently Recovering From Having 8+ Inches Of My Ileum/Small Intestine, Part Of My Large With Appendix, And Some Pouch Found In My Colon Removed. DoEs This Get Easier? When Will I Not Rush To The Bathroom After I Eat?
Hi wishfulthinker. I am new to this forum but also have a IBD that I have been able to keep in control with diet. I am a certified nutrition specialist and have done much research on this.
There are four main inflammatory foods that could be causing issues, They are gluten, dairy, soy, and eggs. Then there is a subset of foods that are aggravators like RAW fruits and veggies, fiber ( beans, legumes), acid foods ( tomato, citrus) caffeine....eic.
If I were you , I would go down to a very simple diet of proteins, rice, and cooked veggies, broth. if nothing else, cut out all gluten and dairy and see if you improve
Good luck
leah
There are four main inflammatory foods that could be causing issues, They are gluten, dairy, soy, and eggs. Then there is a subset of foods that are aggravators like RAW fruits and veggies, fiber ( beans, legumes), acid foods ( tomato, citrus) caffeine....eic.
If I were you , I would go down to a very simple diet of proteins, rice, and cooked veggies, broth. if nothing else, cut out all gluten and dairy and see if you improve
Good luck
leah
Some people have good luck changing diets, I did not. Remicade was a miracle drug for me. I was on it for 10 years, 8 of those years I was in remission and held a full time job. Unfortunately Remicade quit working about 3 years ago and its been horrible again ever since. I have bad diarrhea almost daily non of the pills seem to work for me. I also have rectal fistulas, so I cant sit for very long. I just got approved for Social Security Disability and im hoping to go back to school part time. Good luck, im 30 and was diagnosed in 1997. If and when you do go into remission enjoy the good times and try not to dwell on the bad, its sometimes very hard to do.
I have to take powder called questran to stop me from going to toilet because of 2 resections i had but it ok i live with it some cant take it i just neck it and get on with all the best be positive