Share Facebook
Crohn's Disease Forum » Support Forum » Bile Acid Malabsorption Support Group


 
07-06-2017, 02:15 PM   #151
highlandsrock
Senior Member
 
highlandsrock's Avatar
 
Join Date: Jun 2012
Location: Surrey, United Kingdom

My Support Groups:
Just found this thread... that explains why my anus burns 2-3 times a week! All this started after resection/terminal ileum and removal of gall bladder both at same time in 2011 (oy did that hurt).
Were you warned before surgery that loss of terminal ieum means it is pretty much a certainty you will end up with BAM? I was told but not in terms I took on board. I explain it here - http://www.wrestlingtheoctopus.com/d...-not-that-one/
__________________
Wrestling The Octopus.com - the companion website to my, shortly to be published, book on 4 decades of Crohn's and other issues

Not taking Crohn's meds at present. In the past - pred, pentasa, aza, entocort, infliximab - with varying degrees of success

Currently on :
Loperamide to keep the BAM at bay
Propanolol/Omeprazole for PVT
B12 injections


Twitter - @crohnoid
07-07-2017, 08:39 PM   #152
The Real MC
Senior Member
 
The Real MC's Avatar
 
Join Date: Mar 2013

My Support Groups:
were you warned before surgery that loss of terminal ieum means it is pretty much a certainty you will end up with bam?
nope
07-28-2017, 06:19 PM   #153
woodlandperegrine
 
Join Date: Jun 2017
Location: Portland, Oregon

My Support Groups:
My colon cancer surgeon told me I wouldn't even miss the 2 feet of small & large intestine he was removing.
07-28-2017, 07:21 PM   #154
BlueSky
 
BlueSky's Avatar
 
Join Date: Apr 2015
Location: Bay Area, California

My Support Groups:
I was told that I would need B-12 shots for life, but that was it.
07-31-2017, 03:15 PM   #155
highlandsrock
Senior Member
 
highlandsrock's Avatar
 
Join Date: Jun 2012
Location: Surrey, United Kingdom

My Support Groups:
I see so many other sufferers saying exactly the same - "nobody told me about bile acid". I don't know why it's not mentioned as a matter of course when you are going to have your terminal ileum removed. We need a BAM Awareness Campaign to run alongside the IBD Awareness activities
08-01-2017, 08:15 AM   #156
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
I don't remember being told anything about them taking the terminal ileum or anything about bile acid.
08-03-2017, 01:55 PM   #157
woodlandperegrine
 
Join Date: Jun 2017
Location: Portland, Oregon

My Support Groups:
I started taking Cholestyramine powder daily about a month ago. For the last week, I've had really strong pain under my right shoulder blade. I know this can be a symptom of gall bladder problems. Might it have anything to do with BAM or the medicine?
08-03-2017, 09:32 PM   #158
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
I would let your doctor know what is going on, woodlandperegrine
08-04-2017, 12:21 AM   #159
woodlandperegrine
 
Join Date: Jun 2017
Location: Portland, Oregon

My Support Groups:
Thanks, ronroush7. I came to the same conclusion and made an appointment for tomorrow.
10-09-2017, 12:19 PM   #160
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
Part of my bm was milky. Does this mean there is a problem with the bike acid? What does that mean?
10-12-2017, 04:45 AM   #161
Spooky1
Forum Monitor
 
Join Date: Sep 2011
Location: South Northants, United Kingdom

My Support Groups:
Mines generally green with bile malabsorption.
10-12-2017, 10:24 AM   #162
RickS
 
Join Date: Jan 2016
Location: Ontario,Canada

My Support Groups:
I have had 2 terminal ileum resections. I take half a pack of Cholestyramine powder daily with OJ. One pack bound me up too much. Also take a B12 (1000mcg) pill daily. Have a blood test every 2 months. Down to 1 BM a day, happy guy.
Reply

Crohn's Disease Forum » Support Forum » Bile Acid Malabsorption Support Group
Thread Tools


All times are GMT -5. The time now is 11:21 AM.
Copyright 2006-2017 Crohnsforum.com